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Lyrica?
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06/19/2008 08:33
Rac
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 Acceptance for me doesn't mean that I plan to have this disease for ever. It is an accept of just right now this is how i feel. For me this helps. I am not saying it would help anyone else. It allows me to be more relaxed and do what ever I can to get well. It actually makes the pain less. I can consiciously relax some of the pain filled muscles and reduce the pain. It helps emotonally too. Just a note I still ahve my dark nights and sometines days where I just feel like fighting.

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06/19/2008 14:45
broken
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 do you think denial is good or bad? I like denial its a place where I live its kind of not going to the doc when you dont feel good cause if you dont know it cant bother you. for instance I went to the doc. because I was having bad problems with my right arm and shoulder I knew it was a disc problem which it was and when I had an xray well they found a goiter.now I've had a soar throat and have gotton choked with food and thought hmm I wonder why? it didn't really bother me.well now I know why and though I do not dwell on it, really the pain from my disc and arms are what worries me but now I have to have test, today I had a scan and while laying there for the first time I started to think maybe the thyroid is my problem there is the denial.I had one time I felt so bad and hyperventalated (they think)when I finally went because family made me the doc asked why didn't you come in when this happend I looked at him and said I felt to bad to go to the hospital
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06/19/2008 15:00
Rac
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 I am not sure how to answer about denial. I think it is differnt than acceptance. but we all have our own definations. If denial keeps you from having the treatment you need then it is a bad thing.

I d beoieve the natural state is for the body to heal. but I am not sure why mine isn't completly healed yet. I guess something keeps it from healing completly. You have a serious injury. take care of yourself!


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07/24/2008 10:15
raynedae
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 I've been on Lyrica (150 mg x 2) for about 6 weeks now but I'm ready to quit. I have gained 15 lbs even though I've been exercising (yuk) regularly. When I first started it I was so stoned...I was seeing colors and felt dizzy as hell. It eventually took the shooting pains in my arms and legs from about a 15 to about a 4. It does nothing for my neck pain tho and ever since I started it I have a lot of edema in hands & feet and my migraines are worse. I know that the side effects are supposed to get better over time--the dizziness & 'high' feeling have but not the edema. I think I'll try the neurontin instead because I know this edema can't be good for my blood pressure. My MD says it's not the Lyrica, it's my anti-inflammatory, but the edema started a week or so after I began the Lyrica and I've been taking the anti-inflammatory for a couple of years with no side effects.
rayne >^.^<
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07/24/2008 10:32
grannytaz
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 Hi, Raynedae........I too was on Lyrica and stopped taking it when I saw all of the pretty colors and was totally disoriented. I was put on Neurontin and I had the same results with it. My rheumatologist then put me on Ultram (I am up to 800mg per day). The pain is worse with the Ultram but I'm not as goofey on it. I also take Celebrex for the inflammation in my knees and elbows. Unfortunately this is an ongoing illness and hopefully some day there will be an actual cure, until then we have to go thru all of the drugs that are thought to help. I also have a heart condition so I have to consult my cardiologist before getting any new meds. Just know that uou are not alone in this. By now I would think that the majority of the fibro victims have tried those three meds. Good luck and very soft hugs to you.
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07/24/2008 10:53
hipmama42
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 I have not tried Lyrica or Neurontin yet....too scared off by all of the dangerous and unpleasant side effects everyone else on this forum has mentioned! I know there are some that can tolerate these drugs and get serious pain relief from them, but I already take two meds that cause huge weight gain and fluid retention, and I just KNOW the Lyrica would turn me into an even larger walrus within weeks! I am tired of having to buy new clothes in larger sizes, and my family doc is on me to exercise and lose weight from the meds puts more strain on the back and joints and causes worse arthritis degeneration....it's a catch 22 for sure....rayneday I hope you find something soon to help you. I take Cymbalta, Mobic for joint pain, switching off with Aleve, and a number of vitamin and mineral and herb supplements which are helping some. It's a matter of finding the right combo....and then that changes from month to month! Be careful with the high doses of Ultram...
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07/24/2008 12:46
raynedae
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 My doctor seems to think that Lyrica and neurontin are my only choices because I'm developing sensitivies to opioids. Got a rash from Darvon which is just about the weakest prescription painkiller of all so I'm supposed to avoid opioids. That's fine with me--painkillers always made my TMJ worse 'cuz I clench my teeth when I take them.
rayne >^.^<
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07/24/2008 13:58
broken
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 I was on neurotine and it almost killed me of course I was on an exstrem dose 4800mg,but I also had an aunt who was on a much lower dose and when they tried taking her off she kept blacking out then another friend who was put on it got sooooo depressed and went off I know we all react diffrent to meds please as with any new med have someone close to you keep a look out for signs you might not be awhere are happening,I am on "Gabitril" almost for four years now and I have tried lyrica but was not able to function good.
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07/26/2008 03:19
Cyndipain
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 Man, reading all these post make me so angry at this ugly disease. I'm sorry that ya'll are in such agony, too. Got a question, has anyone ever experienced those tremors, like Parkinson's when the flares get so painful, even though u are on meds? I'm still on Lyrica and the sides have subsided, the wght gain has slowed down and I know if i stopped taking it that my flares would increase. The neuro has already tried one valium like med for the tremors but has taken me off and now has me on Keppra, which is a scary drug for me. (pamphlet says not to just stop taking it because it could trow u into a seizure that no one can stop...eeek) He put me on that FOR seizures)

Lyrica --- it does make you inflamed, gives you edema, but for me, it is not as uncomfortable as the flares that it seems to greatly help. I started having the tremors a long time ago, but just now saught treatment for them because of insurance coverage The neuro just did an EEG and 24hrs prior, I had to be med free. I definitely felt the diff and it got my goat, because it showed me just how dependant I am on this stuff. I don't think I can remember a day without pain...ya know? All these meds over the past 14 yrs have just controlled it better.

OH,,,,the ultram comment, I definitely don't recommend high doses of that crap...I mean, it's diff for everyone, but watch yourself, better yet, as suggested, have someone else watcha...it almost took my life and i ain't playin!!

UHmm...I'm sorking on a projuct to present our disease and it's affects, to congress for a National month of awareness, not just a day like we have now...if ya want to help me let me know. Letters letters letters, stories stories stories....we got work to do...

xo


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07/26/2008 10:08
Janilee
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 Cyndi, count me in. Just let me know what you want me to do. Fibro needs to be presented more to the public than it is now.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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