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07/21/2008 05:26
Smiley
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Hey all, I'm back. I should know better than to leave the only place in the entire net that can help. I'm sorry.

I'm still waiting for results from the disability claim.

I can't seem to find a doctor that will catagorize my symptoms as fibro. They all will not label it as such. Instead, yes, you can work, we'll help with your pain, we'll give you more pills that will help with your variousnesses, BUT WHO CAN AFFORD THEM!!!

I'm frustrated, hurt, tired and confused and lonely, and angry as hell!

h* e*l*p* me to be smiley again...

Cindy

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07/21/2008 06:00
Barbkubacki
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I am feel sorry that you still have not been diagnosed. We can all diagnosed you, you have what we all have. What is wrong with these doctors. What kind of doctors have you been to? It is unforuntely, just going to the doctors cost me $20. Rhumy cost me $30. That is alot of money. Then when you go now you got to start playing which medicines works? I have wasted probably in the last 4 years atleast $1000. in medicines that make me sick. You can't return them. To bad it is illegal to give others medicines. It would be funny to get all of our medicines together. The ones that work on us and the ones that don't. It is a shame we just flush the down the drain. I wish I could help get rid of you frustration, hurt, tiredness, confusion, but you are not alone we are all here for you. Just PM me and I will listen and talk if you need me to.

Barbara

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07/22/2008 05:51
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actually, I was diagnosed with fibro pain in 2003. There are so so many other symptoms that I can't get the doctors to say that it is indeed fibro that is causing it.

I'm crying every day now, from pain, frustration and anger.( I release tension that way.)

I have been through many mant meds. I wish marijuana was legal here. I'd try it! Knowing my luck, I'd get arrested, but I'd try it.

Thanks for the support.

Cindy

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07/22/2008 06:16
Leonardy
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We have all been through this, as far as the pain is concerned. Some of us take as few meds as possible where I pretty much will try anything once.Marijuana is legal in another form;it's called Marinol and has been used to treat cancer patients. My son took it for a while to boost his appetite when he had cancer. I did try Marijuana once when I was first injured, sorry to say it didn't help. Have you been to a rheumotoligest or pain management physician? They should deinitivly be able to give you a fibro diagnosis.My GP doesn't have it written down because I have so much trouble with my back, but the pain management doc determined my diagnosis by the number of trigger points I have on my body.What meds have you taken?
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07/22/2008 06:24
mcbeth
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The thing that gets me about Marijuana is that they do give it to cancer patients to boost their appetite. I know with the Cymbalta I gained weight and I'm afraid with Marijuana I would gain more.

I couldn't do it. I tried it once and was so parinoid that I was going to die and my obit in the paper was going to say "died of a drug overdose"

Be wise and dignified like the swan: he maintains his composure, staying unruffled on the surface, while always paddling like crazy underneath.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!


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07/22/2008 09:50
Janilee
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Loved the feeling, hated the munchies. Have you tried talking to your pain? Get mad at it. Tell it that you are not going to let it get the better of you. Long time ago on TV I watched this program where this lady had some sort of cancer. This hypmotist took her (thru her mind's eye) thru her body until she came to the spot where the cancer was. He then guided her to destroy it. It was facinating to watch and I've sometimes wondered if they are still doing that. Anybody else ever heard of that?

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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07/22/2008 11:07
Barbkubacki
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When my mother was dieing of cancer I tried to get her to smoke

Marijuana with me. She wouldn't because I was her daughter. It would have helped that poor woman with her suffering.

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07/22/2008 12:34
Sistrozzie
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I just got back from physical therapy for lymphedema for my arm from a mastectomy. While we were talking, she said lympedema doesn't hurt so it's probably the fibro that's hurting me! She gave me tons of easy exercises to do, some of them while lying on the bed. I'm going to start them first thing in the morning before I get out of bed. Maybe it will help, maybe it won't,but I'm going to try.
PatOsborn
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07/23/2008 06:11
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Good momrning,

I was diagnosed in 2003 by a rheumatologist that has moved his practice much to far away for me to comfortably drive there. The pain doctors I've seen agree that I have fibro, but refuse to put it in their records. God knows why. They tell me they are not there to treat the label, they are there to treat the patient! How do you come back with a comment to something like that?

I have been to psychiatrists, psochologists,herbal doctors. my regular doctor, several internal doctors. medications aren't helping, and there is nothing more that they can do.

I have been to physical therapy, water therapy occupational therapy...

I have taken darvocet, vicodin, lyrica, tramadol, mobic, cymbalta. (that stuff works great!) but the insurance says that I can only take it once a day, and my doctor prescribed 60 mg, 2 times a day. and, finally, I take, 800mg of skelaxin 4 times a day. That relieves the muscle stiffness.

The problems I'm having are that no doctor that I have found will label the other symptoms I have as fibro symptoms, such as;IBS, forgetfullness, fogginess,excessive scar tissue build-up.

Cindy

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07/23/2008 06:21
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Hi Janilee,

I thought I've been through it all. Did you prove me wrong!. I'll talk to my pain doctor about hypnosis. It's worth a shot.

I am studying the art of Nin Shyn Jytusu. It is the are of moving the energy through the body.Where the energy is blocked, that is where the pain is, and the energy releases itself. It does work, I am living proof. but takes awhile.

anyone can pm me if they would like to know more.

thank you very much for all the input.

Cindy

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