My baby girl (she's only 2) has some form of Juvenile Rheumatoid Arthritis! She has severe pain and many joints swollen.....her knees, fingers, ankles, toes, hips and back. They think she may have some type of leukemia that has to do with joint swelling. They also think her back and eyes are inflamed. They are doing many tests to figure out what is all wrong and what is the best treatment. We spent many hours at the childrens hospital.

We have to go back in a few weeks for more tests and another check up. She has to get into an eye doctor for children ASAP to check for this inflamation. She could end up losing her eye-sight if it isn't treated right away.

I'm just a basket case right now. She is in so much pain and I hate to see her hurting. I can't imagine her having to deal with this for the rest of her life.

Does anyone know anything about this? Please pray for her. Thank you, Chris

I wish I knew something to tell you.

dragonfly

I just know that there are several different types and that I have to rule out alot of different diseases before they can say for sure what kind it is. She has so many positive symptoms. The specialist said that the blood tests taken before were incomplete and not very helpful.

There are so many unknnowns with this! It can last forever or go away forever. It can be severe or hardly noticable.....hers is considered severe right now b/c of all the inflammation.

Thanks again!!!! I so appreciate it!!

Your friend,Chris

Post edited by: mommyofsix / Friend2U, at: 05/18/2008 14:45

I will be praying for you family and your little girl as you go through this ordeal. I am sorry that you little one has to suffer so much pain and I will especially ask God to bless those caring for her with the knowledge needed to treat her quickly and accurately so she will not be in pain. Please keep us advised of how she is doing.

God bless you,

Sandi

If it is okay, I would like to put you on our church prayer chain.

It's hard enough when an adult has a diagnosis like that, but when it's a child....dang that is just to hard. And being Moms it's hard on us because with can't "fix" it.

Be wise and dignified like the swan: he maintains his composure, staying unruffled on the surface, while always paddling like crazy underneath.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!

i am sorry to hear that as well! i work in surgery and we have alot patients who have RA i personally haven't seen one as young as your daughter, but the people who come in to have joint replacements were born with it and the age ranges are about 20-30year olds. How long as she been having these problems. Did she get tested for any other autoimmune diseases or meningitis? If she truly does have RA just like Fms you have to find ways to try to manage it. I will pray for you and your family and i wish you the very best. Do as much research as you can. My doctor didn't diagnois me with fms i researched it myself and told my doctor soon after i switched dr's and with out me saying anything about what i thought i had to the new doc 6 months later of testing she diagnosed me. What i have accepted about docs it that they aren't any smarter than me or you they just studied medicine with the same books that are available to us all. Oh but they can write prescriptions we can't oh and they make more money oh well