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05/13/2008 11:23
thomasann
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Posts: 364
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 I use a cane when I absolutely have to. Other than that I just move at a turtles pace. I walk down the stairs sideways because of my knees. And use both arms at time to get back up them . I am certainly not a stair lover anymore. I try not too sit for too long and like Goofy ole Tuffy there, I have so much morning pain and stiffness it takes all I can do to get to the coffee pot. But I eventually make it.
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05/13/2008 11:49
BLB
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 Tuffy I love your humor...I work in hospice and we have what is called hospice humor which it is a little strange but you have to have humor to get through life...as we say in hospice we are not "circling the drain yet"...ha ha
Hugs,
Barb
God will never give you more than you can handle!!
www.myspace.com/exceptionallady
Info on Health and Wellness
http://youtube.com/user/tmbdoll
http://www.myspace.com/legalrnconsultant
http://groups.myspace.com/livingwellwithfibro

We all have time on our hands...be productive and help others!
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05/13/2008 14:09
Ksdmjd
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 *sigh* yes, I do feel like my fibro is progressing, but I am living on De Nile and am ignoring it as best as I can. Except, I forget most of what I read and I have cramps all over really badly. My body aches so badly, but I will not ive up. GRRRR

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05/13/2008 15:09
sindee4499
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 I to think that mine has gotten worse over the years was dx'ed about 6 years ago because I had really bad pain in my arms and wrist and they couldn't figure out what was wrong so sent me to the rheumy and got my sentence and I call it that because when I was first told and couldn't find a doc to help me that is what I told my dr. at the time that I felt like I had gotten a life sentence without possibility of parole not even with good behavior LOL I felt like I was a prisoner in my own body all the docs I wen to told me that I would just have to learn to deal with it cause I would have it the rest of my life and they wouldn't give me pain meds because I couldn't be on them forever but would tell me the good think was that even though I would have to deal with it I could get get it under control with exercise and diet and life a normal life (YEA RIGHT) and that it WAS NOT a disease that would progress so once I got use to liveing with it I would be fine. Well I don't know if things have changed since then and that they have found out it does get worse or what but I do know mine has got ALOT worse in the past few years and wonder if my biggest fears will come true that if it is this bad at 34 and it continues to get worse where will I be when I am 44 or 54 and noone seems to have the REAL answer
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05/19/2008 10:59
angelblossom1963
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 sorry i took so long getting back to you.thank you.i hate this so bad.i hate this so bad
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05/20/2008 12:38
kesslmama
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Posts: 480
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 I am positive that my fibro is getting worse. I used to be able to work and now I can't. I don't know if the doctors recognizr it yet but those of with it sure do. Tuffy,I love your sense of humor, it take a good sense of humor to get through a day with our "special friend"

fibro. I agree BLB I am not "circling the drain" yet.

May life always bring you laughter.
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05/20/2008 13:19
BLB
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 Kesslmamma...you go girl!! Keep your chin up and think positive! I try to laugh everyday eventhough I feel like crap...it produces endorphins that help you feel better...there is laughter therapy
Hugs,
Barb
God will never give you more than you can handle!!
www.myspace.com/exceptionallady
Info on Health and Wellness
http://youtube.com/user/tmbdoll
http://www.myspace.com/legalrnconsultant
http://groups.myspace.com/livingwellwithfibro

We all have time on our hands...be productive and help others!
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05/20/2008 13:27
Tuffy
Posts: 233
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 Hey BLB & Kesslmama....I sure do TRY & let my 'sick side' out every now & then!!

If I didn't joke around a bit... god knows what I would do!!

I find it really DOES help..& laughter is such a wonderful healer! Otherwise, my 'emotional' side would just sit here like one big "Limp Noodle" and I'd be cryin' in my soup ~ like I am today!! For some reason I am nothing but a weary lonely participant in my own backyard "Pity Party"!!! But hey, the sun is shining, so I'm getting my Vitamin D.

Love you guys, and will ALWAYS inject humor into my posts where appropriate!!

Gotta go...gotta go see the neurologist fr my newest 'problem'. Man, it SUCKS being me....
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05/20/2008 14:47
Mydragonfly
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 Tuffy, you are so right about laughter. I am sorry to hear that you are having your own personal pity party, we all throw one of them every so offten. I even invite people to join in mine sometimes. LOL.

Sometimes tears are a good therapy too. it is proven that stress is releaved in your tears. Like my mom tells me. Sometimes there is nothing better then a good cry or a good laugh.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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05/21/2008 08:48
Tuffy
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 Here is everybody's formal invitation to attend this Holiday Weekends Bi-Monthly "Pity Party" to be held in 'my' backyard!! Hot Dogs, Burgers, Kleenex and Humor will be provided! But plz BYOB!

This 'sure to be a hit' party will commence this Saturday and go from '2-5pm'. RVSP ~ ASAP!!

Cause Baby...I need a Party!! I went to a Podiatrist a week ago for the constant severe swelling in my foot, get referred to a Neurologist, saw him yesterday and now it is suspected that I have CSM - Cervical Spondylotic Myelopathy... of which the MRI this Saturday will confirm!!! No worries, I'll be home by the start of my party!! I 'think' this CSM thing....wait...let me 'whip it out', no no, no, not that thing silly.... my PDR

From what I can 'translate' from the medical terms is it is something to do with my cervical disks that may be pressing on my spinal cord or something weird like that! IF anyone knows what it is, please PM me!! Oh great and I can just see myself IF I have to have neck surgery! I'll be in that head steel "Halo Contraption" and can wheel myself up & down the street scaring all the neighborhood kiddies!! To bad it wasn't closer to Halloween!! He-Yah...arms flailing up in the air like a bat..Yahhh...ggrrrr BOO

So see? Ya gotta have Humor.. in this sucky life otherwise I'd be a rich lady as I'd have 1000's of shares in Kleenex!

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