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04/11/2008 11:35
Mydragonfly
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Well, I hope he gets some from others here.

Will everyone please please write to the media. Some of us here have done the search for email addys already. If you type out a letter and save it. Then you just need to copy and past the same letter to everyone you send an email to about this. That is what I have done. Makes everything go so much faster. That gives you a chance to spell check and go over your letter to make sure you have said everything that you want.

Thanks again.

Dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 12:17
Janilee
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www.myfoxtoledo.com Here is the address for writing to Fox TV in NW Ohio.

I just wrote to them and Ellen. I'm off to the TV stations in Ft Wayne IN now.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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04/11/2008 12:25
PamelaG
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Things are moving along wonderfully. Dragonfly did you get my emails?

I'm going to see about getting a list of our Senators here in MO when I get back home on the 21st and sending them letters to, let them know SOMETHING needs done, changed, or whatever at Social Security so we ARE recognized with our conditions, and YES it is dibilitating. Maybe not to everyone right off, but shoot, I know when I go to Wal-Mart, I may go a couple aisles and my legs, hips and lower back are killing me with pain, and upper back & shoulders from pushing the cart! I hate feeling like this, and so old!! I'm 43 and most days feel like 93. My husband tells me the light and sparkle I used to have in my eyes is gone. That's sad.


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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04/11/2008 12:45
Mydragonfly
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you are all so great.

Yes I got your email Pam. I sent you an email back.

Thank you so much everyone. I know that we are all doing this together, but I kind if feel like it is helping me personally seeing all we have done together.

I dont know who to word this right, so please no one take this the wrong way. This write in campaign makes me feel like I have done something good. I know that it is not about me it is about all of us. I just feel like I have a purpose in a really bad time of my life. Gives me reason to get up on check my email to see who is doing what they can to help our causes.

If the way I have worded anything upsets anyone, I am sorry. I dont always know how to put my words right.

Dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 12:48
sweetheartsuzee
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You worded it perfectly dragonfly...and you're right too. You HAVE done something and you are helping all of us by doing so!

Thank you for that.

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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04/11/2008 12:52
thomasann
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I doubt you have offended anyone Dragonfly! It also helps me to know that I and everyone else here are trying out best to get the word out there. You are most definitely doing something and it should make you feel good about yourself ! It gives you something to look forward to and that is wonderful! Keep it up.
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04/11/2008 12:53
PamelaG
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I agree with Suzee. You are doing great! Anyone who is helping in getting the awareness out there is doing SOMETHING. And I know in my heart that only good will come out of all this effort! We may not see it in a month or two, but down the line we will!

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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04/11/2008 12:56
Janilee
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www.wane.com That's the email for Ft Wayne Chanel 15. It serves MI, IN and OH so any of ya'll in those states can send them and email.

Pam, thanks for rave reviews on my email. LOL Sometimes I can't put things down on paper just right.

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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04/11/2008 13:06
PamelaG
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Janilee you did awesome! Very well worded, very good information put in there. It should definately be something to open someones eyes!

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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04/11/2008 13:08
Mydragonfly
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Posts: 1031
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I have some really great news. I got a responce from a news program.

and it was not just and auto answer.********

Thanks for the information on Fibromyalgia Awareness Day.

I have forwarded your email to our Medical Editor, Irene Maher, for her consideration.

dragonfly

Thanks for watching News Channel 8 on Your Side.

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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