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04/11/2008 09:17
thomasann
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Thanks Pamela !
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04/11/2008 10:22
Mydragonfly
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I am almost speachless. Pam, I am so sorry about your friends. That is just wrong. Strange how when you try to educate people, they show their true colors.

Thank you so much to those of you who have been doing things to get the word out. Janilee, I understand that the emails we send have to go threw so much to get any possability of getting a show about fibro by this May. I would love to see them just say that it is fibro awarness day. That alone would be a great start.

The flyers that pam is makeing. there are so many places you can post them. here is a quick list some people might not think of.

Laundrymat, prarmacy, library, dr. office, go to your local school and ask if they will put one in the teachers lounge. hair salon, barber shop, auto parts store, video store. I am sure that others can think of others that I have not thought of.

Please, if anyone thinks of something please share with the rest.

and my favorit right now is my signature on my email. just think about some of the jokes that people send you. when you forward it, your signature goes too. and think about how many people they will send it to.

ok, I hope and pray that everyone is having a good day.

hugs to everyone.

Dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 10:44
cadburry
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Did you all see in the forums over at Dr. Phils site they have one for FMS. I can't remember the title, but it was something along the lines of real sickness or fake sickness (again thats not the title but what it might as well have been). It was for Fibromyalgia but towards the end people with chrons(sp?) disease were posting there.

They were basically asking if we were trying to get some sort of payoff by pretending to be sick or if we were really sick.

Just thought since it's in one of his forums that he might be a way to go.

Sorry I couldn't remember the title.



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04/11/2008 10:48
Mydragonfly
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I personaly have not gone to Dr. Phil's site, that is because I dont really care for him. That is just my personal choice. Because you posted about his forum, I will be going there and looking to see what it is all about.

Thanks.

Dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 10:50
PamelaG
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Dragonfly, when you find the post, will you put the link here. I would LOVE to see these ppl saying we are fake! How HORRIBLE!! Maybe THEY are FAKE!! Geesh!

I will look for your email and send you some posters I have ready to get your opinion.


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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04/11/2008 10:52
thomasann
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I checked his website dragonfly, but couldn't find anything.
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04/11/2008 11:02
cadburry
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Ok so I just looked for it again and found it, but sorry (fibro fog) the last post was in 2005

Sorry everyone.

Heres the link though if your interested in reading it.He still might be a way to go, I mean after all he has the only talk show that I have seen it mentioned on even if it was a few years ago.

http://www.drphil.com/messageboard_archive/?IDX=messages&DiscussionID=154



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04/11/2008 11:18
Mydragonfly
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I went to his sight and found where to send email and that is what I did. I also went to Ellen's web page and found her email. I did not think to get the link for Dr. Phill, but I will go back and get it.

But here is the link to email Ellen.

http://ellen.warnerbros.com/show/respond/?PlugID=10

I will go back and get the other link.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 11:20
Mydragonfly
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here is the link for Dr. Phill. to email his show.

http://www.drphil.com/plugger/respond/?plugID=9164

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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04/11/2008 11:28
thomasann
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I just got done sending him an email. Maybe if he gets enough of them asking to shed some light on fibro then he will do a show about it.
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