Write in Campain

Rita, you are doing so much that you dont have to be sorry at all. We all know pain and how it can mess up the best of plans. {{{senting you soft hugs}}}}

I am so happy to see that people are sending out email. Makes me happier right now than anyone here can know. Thank you all. Not only for us, but for others like us or and all the others who will get this inthe future.

dragonfly

Something else I would like to encourage is seeing if your Dr's Office will allow you to put one up and even at your Country Health Department. I am going to put 'tear off strips' on the side so people can tear them off if you will cut on the lines with scissors, it will allow them to take home the web addresses for the National Fibro site, mdjunction, etc. conveniently.

All I have to do is figure how to post the choices. I guess I could put them in emails to send to anyone who wants them, and you could choose which one(s) you want to print and hang. How does that sound??

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

My speciality is Charities and I have handled many Disease Awareness campaigns in conjuntion with others. My exact specialty is not the WHAT as much as the HOW and WHO...I am a specialist in

Direct Response Marketing (compelling the recipient for a call to Action - act, donate, vote etc.)

Advocacy (Awareness, Education of Mission or furtherance of a cause)

and a special emphasis on 501c3 50c4 and PACS. Many of my clients are well known charitable and advocay groups. I use these venues: direct mail and web-based programs/campaigns. No space or TV, although i know how to manage print campaings. I do NOT handle telemarketers becuse i HATE getting the damn calls.

As i enter the fourth year of treatment -- It has been in the back of my mind to somehow offer my skills to the many non-profit groups for chronic pain, but have been praying about it a great deal. I do believe i will be led to that answer -- ya know who, when, and how...

So ---saying this feels right, but i ABSOLUTLEY WOULD NOT be even slightly ofended, if you don't need my pearls of wisdom.

Love and Unity and strength here are the BEST components for the effort. ThaT'S pretty much what my clients do too. They generate interst, activism and support - awareness and education.

So y'all don't need me -- you are doing it fine. On the other hand my thoughts and advice is free. If i have mentioned anything that might be of interest, or that I might contribute as a marketer it would be my pleasure and PRIVLEGE.

I have been blessed in ways that bring tears to my eyes (almost just as often as the pain does) --

you all are blessings to each other and EITHER WAY i am so pleased to be here!!!!

Anway -- good time to lend a hand in ANY fashion -- My biz is about to head into the only slower period we have May & June so let me know if i might be of service

Post edited by: auggie, at: 04/11/2008 06:38

I have no idea if there is a place to send donations for research. I have never seen anything about a spokesperson. we would love any ideas we can get. Alot of members here dont have the energy to do much. I am trying my hardest to get people to know about this. It is not easy. I dont even know now how many emails I have sent. I have not gotten a responce from anyone. It is kind of depressing, but I just keep trying.

I dont even know how many people here are sending our emails.

dragonfly

The site will also have links to support groups, MDJunction being the primary focus, as this group is so wonderfully family like. And support aboundds here. I've been working with Roy and have permissions to have a page about MDJunction.

Let me know if there is something you may be able to help with on this, I would be thrilled to have your expert advice!

Now back to working on posters! LOL If anyone is interested in putting them up around your town, please send me a private message with your email address, or better yet, email me at pamelagraham@centurytel.net.

Love & Gentle hugs!

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

What I've done to get the word out is to write my story. I put it in an email and I've sent it to all my email buddies and told them to forward it on to their buddies. If you want to see a copy, PM me with your email address and I'll send you a copy. I did it this way cause our town doesn't like to put fliers in their windows. It's illegal to put fliers under the windshield wipers too. To take out an ad or run a story in the newspaper would cost too much. I'm not a local so no one knows me here. I do want to thank PamelaG for that website with the window stickers etc for fibromyalgia. I'm going to order some and give them to my friends and relatives. I'm also going to stick the biggest one I can find on my car.

May your troubles be less,
Your blessing be more,
And nothing but happiness come through your door!

I really like the idea of putting one on my car! I don't drive much, but my son drives enough for two people.And if I had 2 of them , I could put one on his and mine. GREAT IDEA.

I would LOVE to have a copy of your story, would you please email it to me, my email address is in the post above yours. Thank you so very much!!

Want to hear something incredibly crazy? I sent the link to my "friends" for the You Tube from the man who's wife committed suicide due to her Fibro. I lost ALL my "friends". They are all now calling me a Crazy Bitch on a sympathy kick who is trying to get everyone's attention. They are now saying all kinds of goofy stuff about me and no one will talk to me. I've gotten REALLY hateful emails from my "friends" many I've known for over 6 years!! They all have told me "Don't you EVER, EVER write me again or I will turn you in to your ISP for harrassment!!" (That was the nicest thing they said.)

So I am even more driven and committed to getting this campaign going and the web site too. The "normals" are CRAZY!! AND their reaction to anything having to do with us is just so OFF the wall!! I'm hoping what I'm doing will help.

Here is the address for the Ellen Show. She has some REALLY good stuff on there and is very driven on things she supports!!

The Ellen Show

Human Interest Story

P.O. Box 7788

Burbank, CA 91523

You won't find this address anywhere online, I called CA Information and got a number and they gave me a number, etc. until I was able to talk to her secretary and got it.

Hugs and love

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability