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05/06/2008 17:15
auggie
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Guys -- OMG -- you all must think i am a flake

First off -- HOW is you all? Man - i HOPE i can scroll back and cath up decenlty. Thanks you so MUCH for the PMs from the gals.

** UPDATE **

the RADIO/TV program blast is set to go out FAX Blast or Email TOMORROW xxooo--- I think the final count was like 3200 contacts? Across the country for first wave.

Need your help Pam (pretty please) While i had posted a draft here there was SO much on the thread --Roy had suggested i "re-post" to ARTICLES. I tried to, then got sideswiped by life. SO if anyone didnt' see the drafts when i sent them and wants to .....(and if not, you won't hurt my feelings )

If you all are interested in seeing the 3 "types" or using them for yourself...i had my a creative partner help - real short but simple and easy to catch reader attention to be pulled aside. NOT as a "individual message" remember? blah, blah -- Anyhoo ---Broader but vocal message etc.... not a sniper, but a target grenade, etc., etc....

i have been embroiled in a very ugly legal cah-cah matter -- NO Kidding. Like a screw-me---out-of-the-blue (and i might add frivilous but absurdly BIG BUCKS) Sons of bitches -- UGLY and i cannot ignore. I literally JUST got served last week. YUCK and SUCH bullshit... (they say in scripture: pray for your enemies - like heaping hot coals on their heads)

Remember the guy who sued the dry cleaner for losing his pants? Well - It is that absurd!! -- BUT still huge headache...and huge amount (did i say MORON)?

I think it will all be OK.. (did I say friggin' morons?)

Hopefully i can get the claims dismissed right out of the gate --

please pray xxoo I need this like diaper rash!

auggie

PAM -- if i send the copies to you can i ask that you follow up w/Roy if u think it is right thing to do?

LOVE HUGS TO ALL -- miss you guys and DF and PG -- thanks for the PM's

i know the personal STORIES are the strongest emotional tug - and there are some very solid real stoires here that it woudl be great IF you all could line up to a mike and tell IT LIKE IT IS

Post edited by: auggie, at: 05/06/2008 19:31

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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05/06/2008 19:07
Mydragonfly
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Knowing what you are being hit with, it is more the size of dinosaur cha cha. I will pray with you for the hot coals.

if you need me, you know I am here if you need. I know you already know that, just saying it again.

Thank you for all of the really had work you have done for all of us here and others with Fibro that we dont know. You have done more work that anyone here even knows. And I for one am truly thankful more than I can say.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***


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05/06/2008 20:11
PamelaG
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Yes Augie, you can count on me, just send me an email and I'll get them posted. (I don't have the copies).

Here is something I've been working on, besides posting fliers with cut strips, etc. And getting them in the hands of others to post in their States/areas (not people on this board, personal contacts of mine).

I'm involved in some higher networking groups. These are world wide groups. I have people who are wanting to work with us on promotion of our syndromes and help us make our efforts a success. (DH said too bad we don't make money off this! LOL He knows that's not the intent, but knowing how many of us need finances so bad is why he said that.) Anyway, I have people from Ireland, Scottland, India, Africa, Several in the UK...gosh just all over I can't even think right now, been SUCH a long day. But I think that soon things will be breaking and we will be gaining more awareness than we think.

The write in campaign I think is already a huge success. With all the ladies who put up the posers from here (I had quite a few requests) and all those doing phone calls, written letters, email letters, etc. I think everyone here just Rocks!! Congratulations to everyone for your time and energy!

Now I need to go work on a few things before bed, early day tomorrow, Drs in Springfield...UGH...I know after Dr 3 days in a row, by the time Friday rolls around I'm going to be needing R & R, but...I'll be putting more posters around this area Friday. Don't want anyone to slip through the cracks!

But first I need to go make a new inquiry post here in our world.

Love & Hugs


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability



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05/07/2008 03:26
auggie
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Hello all --- again thanks for the hugs and PM's and I need to say the "good". I am VERY grateful for a lot. And you all too.

I think sometimes I am the most un-spiritual sounding spiritual person, hee hee. (Potty mouth smart ass) yet i have enormous faith. I believe I will be provided for and protected. And I believe in miracles. I have seen the times where I can sit in the palm of God's hand, in the calmer center of the "eye-of-the-storm". I try to remember this and stay there or at bare minimum, remember the place exists

I believe EVERYONE HERE is a miracle in their own rights. To me, miracles ARE a matter of perception for me AND I DO BELIEVE THAT GOD HAS A PLAN FOR me. Although I wish he would whisper it in my ear

Some young person once said he got advice to stop asking God "why?" and ask Him "how"?" I am trying to learn to live in the "How"?. That is why I luv being here ---- BECAUSE you all try to live in, and share the solution and support each other!

OK y'all -- here goes: As small biz owner I reallllllllty DO believe if you love what you do AND you do it in service to God and others - success follows. Now that being said -- my definition of success is about my "soul" and what I believe is "doing the right thing" and asking what the right thing is? Thankfully God gives me all these angels to help me here on earth to know what the next right thing is. (This is why I am not overly freaked out yet - it IS a frivolous lawsuit and I will be guided). I do not measure my success by my bank account (hee hee damned good thing

I feel blessed most days - if i have to have this pain on my plate - i am NOT alone. I hate it. It scares me BUT again so many blessings. My marriage became stronger and my biz had to become smaller BUT each person is SO precious to me. Client or staff. I LOVE my husband, my employees and my clients. So I will NOT be on the front page of the trades. I will never be rich by other's standards BUT I have a rich life and thank God for the opportunities i do have and the incredible, amazing support i have. I will be OK.

So NOW for some reason (?) i am in middle of a nasty personal trial ( a legal matter) and an ugly test right now. BUT THEY SAY....When one door closes another one opens.....

**** so!!! GET THIS Y'ALL ******* I am kind excited but it is only a hope right now...

I JUST got a call to do marketing (i hope) for ONE OF THE LARGEST NATIONALLY KNOW OSTEO-ARTHRITIS ORGANIZATIONS!! out of the blue - just like the legal cah-cah! Timing is uncanny.

I would LOVE to handle this account so please say little (teeny) prayer

IF THIS IS WHERE GOD THINKS I MIGHT BE OF SERVICE I WOULD BE HONORED. IT WOULD BE A PRIVILEGE.

My mother is crippled and on methadone daily because of osteo-arthritis, fibro and Rhum-arthritis. God bless her and her rhum was a quack who didn't help her for years...My heart breaks for my Mom and I miss the person she used to be, as she does and we all do for ourselves. She has been in chronic pain for 15 yrs and she is young at 70 now. She can hardly walk and my Dad is a good man, but can be irritable and short with her much of the time.

So -- IF I AM STRONG ENOUGH physically i hope i can "show up" but only as God would have me. ....

And.....Not to only report the negative .....the R&D treatment my doctors are trying apparently is having some effect we think. Still too early to tell (It is called ETOIMS or TOIMS -- if you want info let me know, but i will tell you up front, depending on which methodology (there are three levels) and how deep the damaged “Trp” is or how old and how sensitive the central nervous system is....man it HURTS like hell in the application, but later it subsides)

OMG -- i hope it helps and this is not just a temporary improvement or i am wishful thinking/illusionary. XXXOOOO. (It has been really hard and painful 3 times a month, and it is draining all of our savings, and we still don't know if i am a candidate for success.... it only works for 50% of the folks who try it and it is not FDA approved yet.)

thank you all so MUCH for being YOU!!! and showing me more about the type of person I want to be - every day.

Post edited by: auggie, at: 05/07/2008 07:09

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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05/08/2008 17:45
AngelBooze
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Hi Ladies & guys, I got the article from the paper but I can not figure out how to place it in the article area, it's idiot proof , So when someone can tell me how to do it then I will place it there but until then I am going to try to copy it to here.

Post edited by: AngelBooze, at: 05/08/2008 19:47

Post edited by: AngelBooze, at: 05/08/2008 19:49

AngelBooze
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05/08/2008 17:50
AngelBooze
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It did not work so as soon as I can get it placed on the article then I will place it on the site.
AngelBooze
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05/08/2008 19:14
Mydragonfly
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Posts: 989
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Wish I could help you, but I have never posted one.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***




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05/08/2008 20:14
PamelaG
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Posts: 342
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It's just like posting in a regular thread except it doesn't show up immediately, it has to be approved first by Roy or Alon. Just click on articles in the upper left side and it will take you to articles, then open a new one, etc.

Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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