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FMS ForumsLounge - Off topic discussionsWrite in Campain
04/03/2008 10:00 AM
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

I think we should write to every new program, Talk show hosts, our government,new papers. Any one else someone can think of. And we need to post everyone we send a letter to. so we have an idea of how many letters we get out.

Oh, the morning showes too, like GM America, Today show. etc.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
Reply

04/03/2008 10:18 AM  Top
Bkwrm398
Bkwrm398  
Posts: 993
Senior Member
I'm an Advocate

I think this is a GREAT idea! Should we start compiling links to web addresses and mailing info here on this thread....or should we start a thread for each contact???

Post edited by: Bkwrm398, at: 04/03/2008 12:19


04/03/2008 10:18 AM  Top
cadburry
cadburry  
Posts: 543
Member

We also need to include the fact that some doctors dont treat their patients for their pain and how some like me are left to suffer without any releif.

Previous discussions I participated in:
suicide due to Fibro pain
having a bad week
hi i\'m new

04/03/2008 10:23 AM  Top
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

I think to many threads will be confusing to most. I just know it will be for me.

I am going to start getting some email addys of some of the people I feel we should right. I hope others do the same.

We need to make sure that we tell when the Fibro awarness day is

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
Sex?
suicide due to Fibro pain
Recently diagnosed

04/03/2008 11:03 AM  Top
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

here are just a couple of places I looked up.

this link will take you to Good Morning America suggestions site

http://abcnews.go.com/Site/page?id=3271346&cat=Good%20Morning%20America

This link is for ABC new suggestions

http://abcnews.go.com/Site/page?id=3052660

This is how to send a message to Dr. Oz

http://www2.oprah.com/health/oz/ask/oz_ask_plugs.jhtml

The today show

today@msnbc.com

I will post more later

dragonfly

Post edited by: Mydragonfly, at: 04/03/2008 13:05

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
Sex?
suicide due to Fibro pain
Recently diagnosed

04/03/2008 11:20 AM  Top
Red2
Red2  
Posts: 234
Member

Wow, good job dragonfly!! These are very helpful!

04/03/2008 11:22 AM  Top
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

I am far from being done. That was just what I thought of well we were messaging back and forth.

I hope that others jump in and help

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
Sex?
suicide due to Fibro pain
Recently diagnosed

04/03/2008 12:11 PM  Top
hipmama42
hipmama42  
Posts: 939
Senior Member

Dragonfly,

thanks for all of the information! I just got done watching Montel Williams afternoon program, and I believe that he might be a good one to write as well, since he himself has Multiple Sclerosis and he is not as "big" as Oprah....also he tends to do more features on individuals who are struggling or suffering with something and need to get their message out. Oprah seems to be doing more fluff pieces lately about

hairdressers and getting the perfect eyebrow trim. Just my opinion.

Post edited by: hipmama42, at: 04/03/2008 14:12


04/03/2008 12:17 PM  Top
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

I totaly agree with you. I myself have already wrote to Montel. This is his last year taping the show. The last taping ... oh I forget when. I would still love for everyone to write to him also. If nothing but mentioning that May 12 is fibro awarness day. That would be great. It will take more then my 1 email for them to do anything. So please write to him and anyone else. I personaly dont like Dr. Phill, but write to him too. I know what you mean about Oprah being fluff lately, but it is Dr. Oz that I would really love to get. He is just so great at explaining things. That is why I put how to contact him too.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
Sex?
suicide due to Fibro pain
Recently diagnosed

04/03/2008 12:58 PM  Top
Mydragonfly
Mydragonfly  
Posts: 1123
Senior Member

OMG, I just got the best idea. How many of us read them magazines marketed for ladies? I know sometimes I get them. Anyways, why dont we write to them too.

We could get Cosmo to do an artical on how to have sex with fibro. LOL

Boy is hubby going to be shocked by me.LOL I am on a wonderful manic high. When this ends, I will be out for days.

my brain is going faster then my fingers.

Dragenfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
Sex?
suicide due to Fibro pain
Recently diagnosed
Reply

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