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FMS Community FMS Support Forums Lounge - Off topic discussions I CAN'T TAKE THIS ANYMORE! when will the pain stop
 

I CAN'T TAKE THIS ANYMORE! when will the pain stop



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03/24/2008 05:59
mamanordy
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Welcome, Danibelle. Hope we can offer some assistance to you! I have never heard that food allergies cause Fibro. Anyone else?

Fibro is a hard disorder to explain to others because most of us look healthy and they cannot wrap their heads around the fact that we are sick. I get flack too from dh about taking a lot of medicine. But I have to in order to function. He has always been funny about taking medication so I guess he thinks I shouldnt.

Anyway, yes naps can help, and no we cant sleep all day, I wish I could but after a while in bed I get sore from laying too long.

Any kind of exercise for me really sets me back, except a short walk.

I cleaned my three bathrooms, (not the tubs- kept those for dh) about a week ago, did the sinks, floors, etc and I was down for at least 2 days from the pain it caused me.

I have had a lot of surgeries also but I had fibro before that. Interesting enough my rheumie told me ( I was diagnosed with FM in 1992!!) said it could have been from my silicone breast implant that I had from a reconstruction after I had a mastectomy for breast cancer. So I had it taken out and another procedure done to see if I would feel better. Uh, no, but glad I had it taken out, I like the new reconstruction better. Anyway, I dont think ANYONE knows how we get FM.

Glad to have you here!

Debbi

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03/24/2008 06:35
amyj298
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Hi Danibelle and welcome! I am new here too but in the short couple of weeks here I have found that this is the best place to be for support. Hang in there and know that we are all in this together!

Amy

LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/24/2008 07:09
Mydragonfly
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my hart goes out to everyone. I wish there was some miracle pill that would make us better. I have been in a flair since I had surgery. I hurt all the time. I get no relief. not even when I sleep. Hubby says I toss and turn and have been talking in my sleep.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***




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03/24/2008 08:04
mamanordy
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Mydragon, I am so sorry you are in a bad flare. Surgery usually does that to me too. I have to have surgery April 11 so I am dreading the outcome. God Bless You!
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03/24/2008 10:38
coolmamma
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Danibelle, I am so sorry for your pain. My hubby used to have a hard time with my taking meds too. At first he thought it was my not having enough faith to fight thru the pain. After he spoke to a good friend of ours that helped him to understand that the dr doesn't prescribe meds if there isn't good reason, he finally understood that I took the drugs to try to get some of my life back. Does that make sense?

My hubby since then has been very supportive and often tells me that he knows my desire is to not have to take the meds. He wishes that too. However, if the meds help me to be more like myself and do things with the family, then amen.

Like others have said, it's hard to say why we have the fibro. I agree with mamanordy, naps help me too but I have to get up cuz of the pain as well.

The best thing I can say at this point is try not to hold stress in. If you need to, use our shoulders to help carry the load. We are here for you. The stress doesn't help the fibro pain - only makes it worse.

So, I am gonna step off my soapbox now...sorry!

Please don't hesitate to lean on us cuz we are here to help. We also know you will help us when you can.

Sending you hugs for less pain.. (((((HUGS)))))

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03/25/2008 16:31
Janilee
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Welcome into our group Danibelle. I hope you are feeling better. My in-laws finally saw full blown fibro on Easter Sunday. They never believed me about fibromyalgia. I was in so much pain that I came home early just to be by myself curled up under the covers. Since being diagnosed last July with fibro, I too have a problem with talking in my sleep. I actually participate with the dream. Answering questions laughing, moving etc. It's embarassing. My husband thinks its funny. Funny part is that I hear myself doing this and can't stop myself. Is this part of the fibro or maybe a reaction from one of the many drugs I'm on for other stuff. And like most of us, my Doctor wouldn't give me any kind of pain pill. She told me to take some Aleve. Aleve doesn't work for me at all. Now here's the kicker. I had a D&C on March 14th. I've have 3 before and none of them ever had any kind of pain involved afterwards except maybe a small discomfort. My surgeon actually prescribed me some Vicodin for the post surgery pain. It's now March 25th and I'm still waiting for some pain to appear from the D&C. Anyhow, I sincerely hope that you are better now. If you need to talk or to vent, I have one of them shoulders that people gravitate to. It's always there for someone who needs emotional support no matter what it may be.

Yahoo messenger name is freespirit102150. MSN messenger name is moonbeam_opal

I'm usually on line every day.

Hang in there, you are not in this alone.

Jan

"When you're down to nothing, God is up to something"


Jan

http://heavens-gates.com/shenandoah/
http://www.thejoymovie.com/?SRC=080617

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03/25/2008 19:51
ginat
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do you see a reg. dr or pain dr. i couldn't live without some kind of pain meds of relaxer. does anything help like a heating pad or taning bed. i've started going and it helps alot. gina


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03/25/2008 20:26
Janilee
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A warm moist heating pad helps me. I got one that vibrates . It acuatlly feels like one of them TENS units which I hear is great for the fibro muscle pains. My chiropractor said to put moist heat for muscles and dry heat for swelling. I can't do pain pills because of some of the other pills I'm on for my Heart, HTN and Diabetes. When they do give me pain pills, it's only for a very short time. I wish that my insurance would pay for myotherapy. That's deep muscle massage. I had it when I was in the 1998 auto accident and that therapist had the hands of an angel.
"When you're down to nothing, God is up to something"


Jan

http://heavens-gates.com/shenandoah/
http://www.thejoymovie.com/?SRC=080617

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03/25/2008 21:19
booklady14
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Welcome to all of the newbies listed above. I am sorry for your pains and difficulties getting meds. But one of the main things I want to say is........I'M SORRY YOU ARE A PART OF THIS GROUP!!!!!

Because if you are a part of this group, then you are one of the thousands suffering from pain, depression, defeat, lonliness, fear and on and on. But, since you are here, there are a lot of great people to answer questions and help you. And believe it or not, some day you'll read your screen and read some horrible story of someones pain or doctors problems.....and, you'll find yourself trying to help them. Yepp. It happens.

Best wishes to all that are recovering from surgeries and prayers to those that are preparing for surgery.

Someday, I'll let ya'll know a secret about me. Not really a secret so much as just some information about me that tends to make people uncomfortable. So until then, just let it all hang out and anyone PM me at anytime. Someday when I'm more at ease, I'll let you know something really about me. I love the shock I always see on people faces. Ohhhh. I won't see your face. Shoot. Oh well, maybe someday I'll put my mug in my spot on my site.

And ya'll (I'm from Texas, can you tell) be real careful about your private last names and email sights. For your safty it might be best to put those on PM's. That's just the mommma talking in me. But remember, there are really a lot of "sick" people out there.

Forgive the spelling.......

((((HUGS))) Kathy

we all need "splashes" of JOY in the cesspools of life
3:16...........real joy
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03/27/2008 11:26
sistergal2
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Please, please find a new doctor who specializes in immune system disorders! I learned you can find a doctor who is sympathetic to your condition and will listen to you! I think there is a fibro susie at the iVillage.com Fibromyalgia Support Group who will e-mail to you the specialists closest to you if you e-mail her.

God Bless and hang in there! I've been walking in your shoes, too, since 1988 but had no idea what was going on! My doctors dismissed me at the time as a hypochondriac (sp?). I finally found a specialist in 1999 and my life has changed so much since I found Cymbalta 120 mg. I do have fibro flares from time to time but nothing like before! I had a gastric bypass and could no longer take Ibuprofen which was the only thing that helped me! No other RX helped until the Cymbalta for me. We all have to find the right med to help.

And gentle yoga (DVD at home) helps me too.

God Bless! You are in my prayers -- you are never alone!

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