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shellygwar
Posts: 27
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Believe me, I do not want to be disabled; I would rather be out doing things and enjoying life. I do find myself getting frustrated like today. I cannot walk very far because of the pain. Most days I am running and swimming. However, If I am in an attack,,, I cannot even go to wal-mart unless a spot close to the store is open. I feel at times I am not recognized with my disability, legally or parking or in any manner. This makes me feel very alone. Does anyone else go through this? It can be so frustrating cause people will not take you seriously and you feel you have to rip open a huge gaping wound for them to understand that yes, I have limitations, you just cannot see them!!!! Sometimes my eyesight is affected and some people do not realize that fibro does this to people also. MY symptoms are exactly like MS without the lesions so I am fibro. Yet I do not have a specific treatment plan or proven medication. Fibromyalgia makes me feel very alienated at times and I am sure many on this board understand these feelings. Most days I can stay positive. Oh, and my personal fav is,,,,,,, 'Fibro is not a real disease'. if i hear that one more time, I will explode!!!!! I love how other's can judge someone ELSES condition. Well enough for today. I really want to be my usual positive self but not today. Ill rest and start the fight for quality life in the morning! shelly |
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mesafoxx
Posts: 255
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So Sorry u had to go thru that today, or any day matter of fact, but because our illness is invisable people will keep on doing that to us because they choose to be uneducated. Try to not let it bother u, i know thats easier said than done. Keep that awesome attitude u have its becoming. Just keep smiling, when u smile they get more angry, maybe they will check it out, all u need to do is,( if u want to ),is say fibromyalgia, check it out. maybe they will. Or just dont say anything at all. People judge others for everything, like i said, its because their uneducated. You have a wonderful day, keep up that good attitude. Gentle Hugs! Post edited by: mesafoxx, at: 02/25/2008 22:06 ***If God brings you to it, He will bring you through it.*** {{GENTLE HUGS}}.
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meleggs
Posts: 483
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I also think we hide things well. I can run around like a maniac if the situation calls for it- however when I get home I usually end up on the couch. I have a pretty out going personality so most outsiders don't see me mope around on my bad days. Yes we certainly know what you are going through. I think I am going to be more cautious as to who I talk with about my fibro. I have learned that if I share I have it- and people see me on my better days or days I am pushing myself- they start to think it is more some "mental problem" then physical. I'm really sick of the scrunity. I'm going to make sure that people don't use my fibro against me. (It kind of happened at my last job!) |
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joytobefreee
Posts: 121
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I do know exactly what you mean and how you are feeling. Just because we look ok we are ok.....NOT. I have been taking care of my mom who had shoulder surgery last week and the rest of the family has the attitude well she isnt working so she can do it all. Well earlier today I broke, my mom is in a med fog and my step dad is disabled but they say my pain and are trying to do everything they can to not burden me. Which makes me feel guilty, stupid i know but I do. When I get this way I look up and say "Ok God carry me as I cant go any further on my own" I feel my burdens lessen immediately. So g/f keep your positive attitude, smile and always turn to God he will get us through everything. Susie The power of prayer is the best gift any of us can give to another and it is free! God is good Always! |
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mamanordy
Posts: 2055
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I feel the same way. I think some people in my family think I just do not want to work anymore. DUH> Ok 50k A year vs nothin at the moment, waiting for a decision from SSD and if approved less than 15K a year. Now which would THEY choose? Sometimes I think people are so very blind. |
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fibroforever
Posts: 863
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I think we all get frustrated with this invisible illness. It hurts in all sorts of ways. I'm just so glad that we have each other here at on this forum. We get to vent our frustrations to each other. And, I know that a lot of us do have family and/or friends that are understanding.... but no one truly understands more than a fellow-fibromite. You hang in there!  Amy "When you feel like giving up, remember why you held on for so long in the first place." ~Unknown |
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booklady14
Posts: 506
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I agree. I am sick and tired of this invisible sickness. No one, but no one except fibrites can begin to understand. And of course when you meet with a doctor that THE ONE day your hair looks alright, you might have put on makeup for the first time in months. I just hate it when family members, not my husband at least looks at me like, boy I wish I didn't have to work . And I always think how much I would like to work. In fact I turn my resignation in today and will gfquitting a job that I dearly love in 6 weeks. Then I'll be applying for SSD. Wish me luck. Lots of transitions fixing to happen in my life.Kathy ((((HUGS))) Kathy
we all need "splashes" of JOY in the cesspools of life
3:16...........real joy |
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sweetheartsuzee
Posts: 1078
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Oh...I do hope you're feeling better!! Just the thought of someone thinking let alone saying that there's nothing 'wrong' with me makes me wanna scream! BUT...I try not to complain and go on with my life (if you wanna call it that) and let them NOT KNOW what I go through...some day, they will and they'll feel bad for what they failed to care about now! In the meantime, let's keep our chins up...as high as possible! We can make it through this nasty thing.......WE CAN!!!! WE HAVE EACH OTHER!!! YAY~ Good luck booklady! {{{{Invisible Fibro Hugs To All}}}} ~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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Mydragonfly
Posts: 1031
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I get so tired of all the dirty looks I get from people. And the comments made by "friends& family" behind my back. I have a handycap(sp) card for parking. When we park and I get out, if I can stand and walk ok, I get looks and sometimes comments about "stealing parking fome sick people" There are times when I need to use an elecrtic car boy oh boy do I get the looks then. So we all get them comments and looks dragonfly Post edited by: Mydragonfly, at: 02/26/2008 20:51 |
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savedone
Posts: 102
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I feel the same at times...I am in the health care and a professional!!Everyone think I should be on top of my problems and not have a "bad day" hello,,I am and I do!!!I have my disablity case mar.5. my fibro cakme out do to sever trama to my body due to a ban auto acciedent,,we need to vent and my out let is GOD,,,he has pulled mr through the most herendest things!!! Let go and let him help!!! chat soon,,,I am doing sretching exercise,,it is important and water therapy, and doing dietary supplement,,fibro hugs,Lesley/savedone I HAVE BEEN STUDYING UP ON FIBRO. I HAVE DECIEDED TO DO IT NUTRIONALY, AND USING AS LITTLE MEDS AS POSSIABLE!SCIENCE HAS FOUND WHAT WE HAVE BEEN WAITING FOR!NOW WE CANIMPROVE OUR HEALTHWITH WHAT GOD HAS PROVIDEDNATURAL.WITH HIM ALL THINGS ARE POSSIABLE!!! |
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