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FMS ForumsLounge - Off topic discussionsDone with tests
02/25/2012 01:39 AM
faieriemama
faieriemama
 
Posts: 3345
VIP Member
I'm an Advocate

Amy well dear at least you have a diagnosis with the POTS now and can hopefully get situated with some meds instead of eating salt. You are still in my prayers dear, sorry I haven't been around much lately. Hugs and Love
I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.

Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das
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02/26/2012 06:56 PM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

Thanks. I'm still having to eat the salt. But the fludrocortisone is a salt steriod that will help me retain more. I'm hoping that I'm one of those who can go off them after a little while and not one who has to stay on them. She said it could go either way. I HATE steriods, but it's better to start this one while trying to build the other stuff up before I go without it. I'm mostly worried about it decreasing my bone mass. I am prone to and have had osteopenia(worked my way up to a low normal with loads of calcium recently).

At least I know I'm not nuts when I bend over and about pass out or when I lay down and feel like my throat is closing up.

Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.
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