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08/25/2008 13:14
maddy73
Posts: 13
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One question ..

How many of you worry about Lymes disease?

I know there are only a few reliable tests for that and

such a controversy with treatment.

There are so many articles online discussing the % of

FM sufferers that have ended up with Lyme and Lymes patients treated when really they have FM.

Do any of you ever worry and wonder if you should do further testing?

The symptoms are almost exact..

Just wondering.

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08/25/2008 13:21
faieriemama
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I don't worry about Lyme Disease cuz I don't go walking around in the woods where there are ticks. Thats the only way I know of to get Lyme disease is from ticks. I know I have been diagnosed with FMS and a dead thyroid from an autoimmune disease,RLS and IBS, thats enough diseases for me.

Post edited by: faieriemama, at: 08/25/2008 13:21

May the sun bring you new energies by day,
May the moon softly restore you by night ,
May the rain wash away any worries you may have,
And the breeze blow new strength into your being,
And then,all the days of your life,
May you walk gently through the world,and know it’s beauty and yours.
A Native American Blessing

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    Taken on too much
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08/25/2008 13:28
tsage
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Lyme doesn't include the existence of pressure points like fibro. I got tested to make sure I don't have both, but thank goodness I don't have Lyme. You should get tested for peace of mind.
tsage

May God heal your body and soul.
May your pain cease,
May your strength increase,
May your fears be released,
May blessings, love, and joy surround you.

www.fmaware.org
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08/25/2008 13:37
maddy73
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I have read about the pressure points..

Do you feel them on your own??

Im sure he will talk about it tomorrow..

I have pain everywhere but how do you know you have those pressure point ones??

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08/25/2008 13:42
Sistrozzie
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When I went to a masseuse for a massage recently, she woke up a tender point on my left elbow and it ached really badly. I saw my chiro the next day and asked him to alleviate it so he took his adjustor and put it on the tender point and talking to himself said carefully, carefully, and zapped it. The next day the pain was gone. I can always feel the ones in my neck area when he "adjusts" me as well. For some reason I have been in a lot of pain for about three days and I don't know why. It might be the rain we're having, but I didn't think the rain effected me. The bottoms of my feet even hurt!
PatOsborn
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08/25/2008 13:47
tsage
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It's hard to find them on your own, but your doc should give you a tender/pressure point test. It might be better if you don't research them, that way you'll know whether or not you actually have fibro after the test is done.
tsage

May God heal your body and soul.
May your pain cease,
May your strength increase,
May your fears be released,
May blessings, love, and joy surround you.

www.fmaware.org
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08/25/2008 14:01
broken
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I worry about lyme disease,I live in the woods and we always have more then enough for everyone,I get bit many times every year and the next blood draw I get Im asking for the test
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08/25/2008 14:18
Frenchie
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My doctor knows just where to find them, as part of my monthly visits, he measures the severity of your pressure points by feeling them,,this is called Mapping

he maps out your pressure points. I don't know why, really, I get the same advice and meds each month.

Life is a mystery. It is a gift.
Don't dare miss even a moment of it.
Yesterday was a lesson, today is a prayer,
Tomorrow would mean nothing,
If I can't find you there..... by MonaCherie Nov.2008

MEDS:
Seroquel 300 mg...Lyrica 100mg...Buspar 10mg
Vistaril 50mg...Nexium 40mg
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08/25/2008 14:32
tsage
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That's interesting...I haven't heard about "mapping" of tender/pressure points. I was only tested once by my rheumy.
tsage

May God heal your body and soul.
May your pain cease,
May your strength increase,
May your fears be released,
May blessings, love, and joy surround you.

www.fmaware.org
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08/25/2008 21:10
sleepwalking
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You should edit your post and put the word Lyme in the title so you get more responses.

I thought this was about if you worry about things too much.

Yes, I worry very much about Lyme. And it is Lyme not Lymes with an s. I asked to be tested and showed up negative, but now I read that the Quest lab tests are not reliable for Lyme. But I can't afford over $300 for an Ingenix test.

You don't have to walk in the woods to get bit by a tick. They know how to find you. Pet someone's dog. A dog or cat with ticks was in your yard or house....

Everyone who has been diagnosed with FM should be tested for Lyme. The regular tests we go through include Lupus, but not always Lyme.

I hear it over and over again from people on all the boards who have been misdiagnosed with FM but it turned out they really have Lyme. Lyme is treatable if you catch it in time.

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