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aTinaL  Posts: 11832
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I thought it might bear bringing up the Showerless Club for the newbies. Quite some time ago, we made a discovery here in the forum. We found out that many, many of us don't shower every day because of the fibro! At the very least, it's absolutely exhausting. At the worst, it leaves some of us in pain and gasping for breath. Of course, just the water hitting your skin can be agony, too! If you're a member of the showerless club, please feel free to tell us about it here. I thought when we discovered this about ourselves it proved more than anything that we really can speak freely here. And, you'll be happy to know that the showerless thing isn't a life long sentence! Since I've gotten rid of the fibro pain, I'm back to showering every day. It still amazes me sometimes that I can do that! Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina
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oroman Posts: 1539
Senior Member
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Oh Tina This is really a terrible thing to have. You bought up something I feel I should read about and I am glad this topic has come up since I had not seen it before. Olga |
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MissStacey Posts: 14847
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I am a member! I am exhausted, in too much pain to barely move, I hurt to the touch even water, I am always cold with clothes on that I hate having to take them off to even worse get into a crap temp shower with my MS I am extremely sensitive to hot water so when I do finally get my butt in there they are very unrefreshing luke warm at the most showers that just make me feel clean but I feel worse. I looove being clean but dread the shower. Of course I do it so please don't think I'm this stinky thing here lol.  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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Marie12 Posts: 42
Member
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I am a member too. Its nice to know I am not the only one. The last thing I can do on my bad days is take a shower. I HATE not being able to shower everyday but when you can't you can't |
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RedGirl Posts: 1594
Senior Member
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I belong to the club too. There are days when I just absolutely don't have the energy to take the dreaded shower. I don't have MS but I do have to take lukewarm showers. If I don't I end up sweating like crazy when I get out even if I feel cold. Weird. I'd love to take a hot shower again sometime. Meantime, no I don't shower every day. Oh well. Just another one of those things..... Red I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.
"Nothing but heaven itself is better than a friend who is really a friend."
Plautus
"The language of friendship is not words but meanings."
Henry David Thoreau
"Life is hard. After all, it kills you."
Katharine Hepburn |
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debbie1955 Posts: 819
Member
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I didn't see this post. I'm a member, too. Like Stacey says, the water hurts my skin and the temp has to be just lukewarm so it is an every other day thing here. So is washing the hair, sometimes can stretch that to 3 days. Boy, are we really close brothers and sisters, when we can talk about showers and washing our hair. We live in the country so we have a pressure tank. I flush the toilet so hubby has pressure to take his hot shower, then I have to wait til the bathroom cools down so I can breath in there, and then take my shower and hope the pressure tank doesn't kick on until I'm done. Hubby (Ron) asked me one time how I can take such a quick shower and I told him, it is only lukewarm and I need to get out of there before the water has too much pressure. You should have seen his face. He loves the hot water and needs as much pressure as he can get. He likes it at the end of his day to relax his shoulder muscles. I'm not stinky either. I do use deoderant(sp). Plus no one is around here but hubby and he has seen worse in 36 yrs. Hugs, Debbie  
Look familiar? Debbie
The info I gave above is just my opinion. Please go to a dr or professional for further advice. Remember we are all different. God bless you all. |
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MissStacey Posts: 14847
VIP Member
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If it's hot it burns my skin and I get real dizzy and can't breathe. It's lovely, I have tried to suffer through that pain just to get the heat on my muscle pain and almost passed out. It was pretty dumb lol I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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aTinaL Posts: 11832
VIP Member
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Yup, that's what I thought! It's embarrassing, I know. When it came up before, one brave soul posted it and then we all followed suit. I wish I could remember who was the first person who brought it up! For me, more than anything, it was the exhaustion and the SOB that it caused. I may as well have run a marathon! I would always have to shower the day before I had to go anywhere, because it simply wasn't possible to shower and GO somewhere on the same day! I don't know if baths are any better. I've never liked baths for anything except relaxing, but since fibro, even that seems like way too much effort and work! Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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aTinaL Posts: 11832
VIP Member
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Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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faieriemama Posts: 3345
VIP Member
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I'm definitely a member of the club. Most days lately I'm so light headed and dizzy I need a lifguard in there so I don't fall over. The water has to be lukewarm and I can barely turn it on otherwise it feels like needles poking in my skin. I have found this great alternative to them except it doesn't work for hair. You can get these packs of rinse free wash towels, like baby wipes only thicker. I sit on my bed and wash allover with those. Not a perferct solution but it keeps the smell away until I'm brave enough to get in the shower again. Now all I need is a low pain way to wash my hair. Any ideas??? 
I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.
Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das |
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