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FMS Community FMS Support Forums Lounge - Off topic discussions I'm so depressed
I'm so depressed
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08/16/2008 09:58
Janilee
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 Thanks Wendy, Very good advice.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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08/16/2008 10:31
koranistar
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 Janilee, get your hubby to write a detailed report of what your average day is. This helped me. Also I agree with Wendy, get statements from everyone who you deal with and who know about the condition that you are in. get copies of every doc visit you have. BOMBARD THEM WITH PAPERWORK, remember, the squeaky wheel gets the grease. {{hugs}} and blessings from the Great Creator. Korani.
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08/16/2008 12:43
Janilee
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 thanks koranistar. It'll belike pulling teeth with him but he will eventually do it.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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08/16/2008 17:32
irish11
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 Jan.. I thought you might find this interesting...I was snooping around the SSD site just to find some info on what happens at the hearing level. Well...from what I understand you only have 10 days to summit new evidence but you can ask for an extension. Well here's the kicker...if your evidence proves that you got worst or if you have a new medical problem they will hold a pre-hearing but there has to be new evidence. They have been doing this because of the back log. The only way you can get the pre-hearing is if you have someone representing you also if you don't have new medical evidence you will not even get a hearing date. I'm not sure if you new that stuff but I thought maybe you would like to know.

Oh ya before I forget they can also make a decision with in 6 months of the date from which you appealed on with new evidence.

wendy
May God give you...For every storm a rainbow, for every tear a smile, for every care a promise and a blessing in each trial. For every problem life sends, a faithful friend to share, for every sigh a sweet song and an answer for each prayer.”
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08/16/2008 17:39
Janilee
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 Thanks for the info Wendy. I got to snooping too and found out its an average of 521 days to get a hearing scheduled in Ohio. I do have an advocate working for me and they have a 95% success rate at the hearing level. It also said the reason there is such a back long is because there's only 72 judges hearing the cases. I'm keeping a positive attitude though.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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08/17/2008 05:12
EMarie
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 Hi Jan...Koranistar does have a really good point in regards to your husband writing a log of your condition/average day. As a nurse, I know how important this information is to health care providers and agencies when seeking disability benefits. My husband and children would always accompany me to my doctor(s) visits and give their input about my condition and how it affects my activities of daily living. They proved to be a big help in assisting my doctors to write more thorough required reports to my disability insurance company and SSA. I wish you good blessings and good fortune...dont give up, be that "squeaky wheel" Koranistar spoke of. Smile. EMarie

Post edited by: EMarie, at: 08/17/2008 05:13

Hello. I am a registered nurse coordinator who was diagnosed with FMS two years ago, but my primary doctor suspected I had suffered with this conditon for years, but it had become progressively worse. Due to the worsening of FMS, I am now retired on disability. I am seeking support to better understand and manage my pain, anxiety and depression regarding this condition. I hope that I can also be of great support to others here too.

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08/17/2008 09:20
Janilee
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 Thanks EMarie, I planned on talking to him this morning about everything and what we should start doing but he worked Overtime til 4:00 AM and he's still asleep.

I'm going to do everything I can think of to diary what my days are like. Limitations and all. I just walked over to my neighbors house to see how she was doing. She has fibro too and this is the first time I've seen her in a while. We talked for about an hour and I walked home. I am so tired now I can't keep my eyes open. I haven't even started my day yet and I'm tired.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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08/18/2008 22:08
JanfromTN
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 Jan I just read where you were denied SSD again. I am so sorry. It seems as if we have to fight and fight to get what we deserve. We have a couple of lawyers on TV here that say we will help you "WIN" your disability case. It sounds like the lottery. I also think they have form letters they hand out because one letter sounds like the same ones others get, About how we can work and how we don't fit their qualifications of disabled. I have had drs. write that I can't climb ladders or stairs, I can't do repetitive movemement, I can't sit at a job for long periods of time, I can't stand at one job for more than a couple of hours, I can't walk long distances and it would be helpful if I could take a short nap in the afternoons to help with the fatigue. I also can't sit at a computer and do data entry, this was because of RA before I was diagnosed with FMS. I sent this to the SSD and was told that there is a job out there for me. I am looking for the employer who will hire me with those limitations. If I get another denial maybe I should ask them when I can come in for work at the SSD office since they seem to think any employer would put up with those limitations. I am through venting now. May everyone have a pain less day tomorrow. Jan
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08/19/2008 07:59
Janilee
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 When I sent that 8 page rebuttal into SSDI after the initial denial of this claim, I had put at the end that it's frustrating to see that they can give SSDI and SSI benefits to all the illegals worming their way into our country but they can't help out a person who's paid into the system for the past 40 years. I was really mad when I wrote that note to them. It took me three days to do it too cause my fingers keep falling asleep and I told them that too.

Hugs to you and I hope yo uare having a good day. So far it's good for me so I think I'll go grocery shopping today.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

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08/19/2008 08:07
Cori
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 I am so sorry to hear you got denied again but there is hope out there. I am scared that I am going to lose my job because I get sick so much. I miss 1 day a month and most of the time I should be home at least once week but I am to scared to call in. So I sit at work, taking my pain meds, barfing from the pain, and attempt to walk to all of the places I need to go. I hate the fibrofog too because I lose track of what I am doing and can't concentrate. I think that you will eventually get approved, it just takes time. I am sending some strength your way, take care.


Sometimes it's hard to walk, talk, or even know what's going on in my own mind. But as long as I have a smile on my face I can give a little bit of sunshine!
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