Cyndipain
Posts: 28
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Hey Janilee! I love what u posted. I can just almost say ditto to all that. The suprise I've been working on, that will benefit all of us, has to do with getting a national day of awareness established. I don't know if in our pm's i told you, but that one group i was part of, remember, that did the senate hearing, using my testimony without me? The main thing is that the state level legislation was proposed and it should be processed and approved. But by sheer coincidence, I met a congressman at the fair and he gave me names and numbers of people to contact. He heard my story and promised me that my ssdi will be approved this time, there will be a congressional seal on it! BUT more importantly, he told me to present our cause higher than the state level. So I've been real buisy writing congress. It's awesome to get letters from the House of Reps and emails back and forth about what this disease does to people. I'm so excited about it! If i can ask anyone who reads this post to write their own local congressman and plead our case to raise awareness, tell them your own personal stories, how it has impacted your abilities, i think if every congressman was made aware, that when it does come before the House, atleast all of them would be familiar with it. On your local congressman's website, there is a section that tells us how to write a letter to the congress. It is important to tell personal stories, but it is imperitive that we submit facts like how many suffer and the treatments our dr's give us, how that affects us. So if you want to help us do this thing, google fibro facts and do some research to present an educated letter that will get thier attn..THIS would be on my list of what I am grateful for, the opportunity to make an impact on our Nation's populus that suffers with this terrible thing called Fibro. Cyndi |
"MDJunction to me has been the helping friends of understanding that I have needed. I feel now as if someone else it the world understands the things that I am going through. I feel less alone and happier. Here I can let out all my emotions and get support from many people who have been in similar situations. It really has been a life saver for me!" (Amanda78)
