Why wear a ribbon?

"I have been living with Alzheimers for at least 8 years. Brid, my wife of 44 yea..." (tony36)

MDJunction to me

"MD Junction is my second home, Where my friends are always ready with advise , compassion and a kind word or two. Where I can always be myself never having to put on a brave face or smile if I don't feel like it.
Thank you MD Junction
" (mpmom)
We comply with the HONcode standard for trustworthy health information:
verify here.
Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Related Discussions:
05/26/2008 21:27
leelee805
Purple Ribbon
Posts: 3
New Member

Send a PM
Give a Hug
Does anyone know of a cure for this? Is there a university doing research or experimental treatments? Sign me up PLEASE There has GOT to be something that won't just numb the brain. All the narcotics do is cover up the symptoms but they don't stop the symptoms! And then there are the side effects!! There has got to be a better way! I have read that if one removes all the dental silver/metal from their mouths that it can heal arthritis. I wonder if I am being poisoned from all the fillings in my mouth. If I knew this would work I would spend the money to remove it. (And I HATE going to the dentist!!) Calling all Major Universities: Do some research!! Find a cure. The sooner the better!

Popular posts by leelee805
    Hi, I'm new.
Reply  


05/26/2008 22:01
meleggs
Purple Ribbon
Posts: 483
Senior Member

Send a PM
Give a Hug
leelee it would be great if there was one magic cure but I guess if there was there wouldn't be close to 900 people on this forum site. Some people are helped by this and others by that. My own lay person's theory is maybe we have similar symptoms but different things going on- who knows.

I only want to comment on the filling stuff. There are some alternative doctors who believe the metals are making people sick. I can only say this. I have very few fillings- good teeth I suppose and I have fibro. Even alternative doctors couldn't blame it on that because I have so few.

I think it would be EXTREME to have all your filling redone at this time. There are tests alternative doctors do to see if you actually HAVE heavy metal poisoning so please at least do that before you have your mouth taken apart.

Also at one point I went to an acupunture person. She told me one of the local alternative doctors had all his patients get their filling out. They ended up coming to HER for their pain that still existed after all their filling were redone.

We are all at times desperate to do anything to feel better. Just know any risky or expensive treatment you should research. These forums are a great place to find out who has done what and how much it helped or not. I know it is hard to do this but at least use your drugs for now to get by but go ahead and DO research as to some alternative things you might want to try. Jumping in all kinds of cure alls without any forethought can be expensive, risky and when all is said and done a major disappointment which emotionally isn't good for fibro.

Reply  


05/26/2008 23:09
Fletch2ya
Orange Ribbon
Posts: 987
Senior Member

Send a PM
Give a Hug
HI... As for a cure..... well not at this point.......

First of all there is to many problems with just deciding if it a disease or a mental condition..... If it is a disease, well then they have to have a tried and true, clear cut test that proves you have it...

Secondly there has to be an agreed that there is a treatment plan for this disease.......

Now yes congress did in fact make this a bonafide disease.... but the medical community has not..... most doctors do not agree... on any of the above.....

And when you put the cart a head of the horse, you will not usually get a good result, by this I mean it is the Pharm. Co. that are calling the shots..... As in Lyrica... It was the Pharm. Co that were pushing congress to made Fibro a real disease..... They then all of a sudden had this miracle drug.... Well it is not such a miracle, not with all the side effects...and we have no idea what problems it will cause us later down the road....like a lot of those RA drugs are doing to people now.....

What I am tring to say is...... We need to find some lobby group to lobby for the medical community to agree on the disease its self and then a treatment plan, that means a way to treat it, using all the specialtise at its disposal, Physical Therapy, meds, and what ever else is proven to work...... As for us right now...we have the cart somewhere way a head of the horse... why... becasue the Pharm. Co are calling the shots.... they are telling the doctors how to treat, and dictating the treatment protocol. When they pushed with all there millions of dollars for congress to make Fibro a diesease they were only looking for one thing..... and that was not a cure for fibro.... it was there way of just expanding there market share.... in there business....... you and I were really the last thing they were thinking about

And then we need to talk next on the INSURANCE co...... but that is a different subject at a different time....

Please remember Lryica is only 2 molecules different from its origin Neurontin.. They had to change it because the patent had run out on Neurontin.... Now the same old drug really has a new lease on life for Pfizer to sell .. And the amount of side effects that it causes with so many of its patients.... has to make you wonder if this was a good thing.... just look at the number of people here who have tried it and and terrible problems with it... me for one.... where I was on Neurontin for yrs and had no problems.....well had one..... it did nothing for my pain....... but that was just me....

http://www.yourlawyer.com/topics/overview/Lyrica

www.neurontin.com

Again I say to you all sorry for getting up on my soap box... I am down now......

Hope you all had a great Memorial Day.....

Craig

Reply  






05/26/2008 23:23
leelee805
Purple Ribbon
Posts: 3
New Member

Send a PM
Give a Hug
You are so right! I happen to work for a Pain specialist (how ironic) and the pharmacuetical companys pay for our lunches almost every tuesday! They try to get the docs to rx their meds and even advise them how to get around the insurance companies...I've seen the ads for Lyrica and one of the pain docs mentioned it but I fight so hard to maintain my weight that I refuse to take it. At least with prednisone the weight gain is temporary. (I guess I'm vain) Calling ALL lobbiest....!

Popular posts by leelee805
    Hi, I'm new.
Reply  


05/27/2008 01:58
crazywonderful
Pink Ribbon
Posts: 151
Member

Send a PM
Give a Hug
Please see my comment under the title "Lyrica." I took it for two years for my peripheral neuropathy before it was discussed for fibro. I then realized I had only had two bad bouts of fibro while I was on the Lyrica. I stopped it three months ago because with all my other meds it was cost prohibitive. Since then my peripheral neuropathy has returned and so has my fibromyalgia. It's worth the money. I'm going back on it. I tried neurontin but had to take such a high dosage to touch my symptoms and I had side effects. Felt very, very weird on it. Every one is different. Good luck

Post edited by: crazywonderful, at: 05/27/2008 04:00

I use to have superhuman powers but my therapist took them away ------------------------------------------------------------ --- DON'T WONDER WHY PEOPLE ARE CRAZY WONDER WHY THEY'RE NOT
Reply  


05/27/2008 13:19
Fletch2ya
Orange Ribbon
Posts: 987
Senior Member

Send a PM
Give a Hug
hi...I am really glad for you that it is helping you...but it is far from a CURE.... it only treats some of the people...and it is only treating some of your symptoms.....

I know it helps some people......as for me it was lousy....

and if you read the Lyrica post you can clearly see that is the way..... some are ok with it others are not..it is a person to person thing... but as for getting a cure for this.... I believe it will never happen.... what would happen to the drug companies if they really cured something....... there meds would be useless.... its better to just treat symptoms, that way they have you hooked for life..... because there drug helps you with that symptom...

Craig...

Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved