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10/21/2007 18:15
imhopeful
Posts: 30
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Laughing. I so agree. I believe that if we felt as though we could 'get over it', we would, at that moment beam ourselves immersed in crystal blue water on some peaceful beach, or any desired wonderful place. I think I do 'get over it', when my body process' the chemical reactions that are going on. Then at that moment 'I am over it', until it may consume me when I least expect it and I get 'slammed' with this excruciating pain, that those who know this pain...KNOW. It is truly amazing, and I am so grateful (Spirit lead me here...accidently??) ahaha. I too find it most annoying to have been told for many years, 'in essence'...'it's all in my head'...thankfully more of the med estab. is seeing things a different way. I mean yea.. I think it is in our head, 'not illusion but chemical malfunction'. It still is amazing to me that this type of pain can be off the chart, out of the blue, and reduce, minimize, or sometime dissapear....for a time...What the hell is 'it' REALLY? And 'don't go there'... another ahaha. I wonder. those who say that to us think we are any where else..but where we live..there...Such wisdom. thanks for sharing. Sending you a smile.
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10/21/2007 18:22
Aunt Rinn
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Posts: 246
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Your welcome Hopeful. You must know that you have it within you, that thing called hope. Or, you wouldn't have picked that name. Even if you never thought about it, your fingers were able to type it

It's hard to hear when others feel the way I do b/c it can be so bad. Yet, I'm more than happy that I am not alone in this. The only thing that we can do is do things to mentally change our outlook on things. Slowly, over time, we start to make the happy good moments more memorable so that when we do find ourselves down, we have something memorable to reflect on to try to get our mental back in shape. It's the thoughts that can convince you, just as making someone smile through kind word or actions. Even those moments can be reflected upon to try to change the way our mind is trying to convince us that life is or isn't.

When we find ourselves in that dark moment, we can come here and no one will mind, only try to lift you up! Even if it's just a crack of a smile or a sigh of slight relief, that moment is memorable for someone else. In a way, it's much more than making yourself happy, rather knowing that you can make someone else see a bit brighter and knowing that you are capable of doing that, in turn you can get your dose of the happiness medication that we all need from time to time. Some more than others, but no one will notice here, in a good non-judgmental way.

No one here will say "you just need to get over that" or "everyday it's something else with you that's wrong or that hurts" or even "you shouldn't be feeling that way, why are you so miserable, you have no reason" The difference between here and anyone else you may have met in your life is we like to share the good with the bad and not have to worry about what other people think of you. You will never ever have to consider that anymore when you vent or laugh here.

Nice to meet you and looks like you made it here just in time. That was me about a couple or few months ago. I was starting a new job soon, had made a fool of myself going to work exhausted and ended up crying in the middle of the day b/c I was not only so tired, I was in pain. The boss never took the time to understand me and she made it seem like her personal problems were more important than everyone else's.

I never went to her to explain myself b/c I didn't think she would be interested. The last week I was there, she was nice as pie to me, and we finally had "the talk" about my Fibro. It was the greatest relief I had felt in a long time. I wanted her to know where my frustration was coming from, but that I never really complained to her or anyone about it before. I held it in until that last couple of days, I already had a different job and I had done 3 interviews the week before. Some of them called her, so she knew but acted surprised when I handed my 2 weeks in. The point being, I refuse to associate with fake people that make no attempt to understand what another person deals with everyday. No one can justify that what they are going through is worse than you are. Everyone deals with everything their own way. So, I surround myself with people that are understanding, considerate, and sometimes empathetic (I don't want sympathy) with what I might have to deal with one day when I have a migraine, I'm sweating, my muscles haven't let me sleep but 4 hours last night, and I can't grab the pen for the first hour I'm there.

Sure, there may be some that have better coping skills, but that doesn't mean that your frustrations or bad days are not as bad as you make them seem. Frustration and bad days are personal, so I don't let others that make me feel like my pains and aches and frustration and depression are unfounded or they aren't actually real. They are, unfortunately or fortunately because I would miss out on a bunch of really great people because I have Fibro and I will have Fibro.

I was told by my Human Resources Director on my last cry session that I can change my environment and surrounds, but I don't at all have to change myself, but surely I have to choose what I think is best because I'll never change other people. I think of that when I come here. I'm able to find this place that I don't have to worry about anything, but I can take care of me and others that appreciate it!

I hope that you find wellness soon. It's out there, but sometimes, we are the only ones that really know what we need and just have to dig to see what that is. Each time I'm happy, the pain goes down. When I'm entertained at work and knowing that I love what I do, I don't concentrate on the pain. I have to let my mind wonder off of that sometimes.

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10/21/2007 18:38
imhopeful
Posts: 30
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Hi KorrineInOhio. SO nice to see you online. Yes, you are an inspiring member. My eyes filled with droplets of joy in your understanding and you warm expressive words. Much love, many blessing, from my heart to yours.

P. S. Ever considered writing a book?

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10/21/2007 21:46
Honey45
Lavender Ribbon
Posts: 226
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Welcome to our site. You'll like it here. I hope you begin to feel better real soon!

Popular posts by Honey45
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12/12/2007 17:04
tessarenae
Purple Ribbon
Posts: 20
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How supportive are your employers? So far, mine is pretty good. I worry about the day I have to call in cause I can't work. I have called in to work to let them know I wasn't coming in the next day twice since I started this time last year. Not even a sick day. One was because the roads weren't safe and the other was my kids were sick. What is the best approach for all parties involved? How do I explain this disease? Or where do I find the info to give them?
Harley
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12/12/2007 20:01
Snoopy30
Blue Ribbon
Posts: 1411
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My employer has been very understanding. I have been up front from the beginning. As a matter of fact somewhere there is a post that I overslept one morning and instead of calling to see why I wasn't there on time they waited until later in the morning to call and see IF I would be coming in. When I asked why they didn't call earlier the response was 'I knew you needed to sleep". That being said my employer is probably not the norm. be honest when you have to call in is the best advice I can give
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