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imhopeful
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Hi. I'm new here. I have experienced fibro for about 10 years, and was diagnosed 5 years ago. I've tried all sorts of meds, not much sucess with that. Although I get plenty of pain meds/oxy, if I wanted to become an addict it would be easy, the Doc's write scripts like candy. Rather than seek the cause, medicate. I am no stranger to pain. This is the most excruciating pain I have ever experienced. I was also diagnosed with BPD in 1988, and have a genetic skin condition like a 2nd degree burn, that flares under any stress. Between all of them I get very depressed. I was in a accident 6 months ago, and my fibro has been flaring up even more since then. Headaches, and the whole body ache. Looking for some feedback, and hope in the times that seem so hopeless because of the life that has changed so much I don't recognize myself, and get very frustrated because I have been unable to work for a long time, and stay at home alot to keep the stress down, and not get freaked, breakouts, and in more pain. My days are very simple long, and sigh....bla..bla..bla...anybody relate? |
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SoBlessed
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I do understand your pain and your situation. I was diagnosed about 15 years ago and everyday is a battle. I did make a decision to come off my pain pills about 8 years ago. It was very difficult and I wake up everyday with pain, but I just keep moving. I know not everyone can get to this point. I did because I was missing to much of my childrens lives. I do take tylenol on a regular basis. Keep looking forward to the good days, even if they are few. I will be thinking of you. |
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imhopeful
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Thank you for your reply. No one can understand except another fibro friend. Thanks for your words of encouragement. I believe that together is how we make it through this and other agonizing situations. With big time faith. I be holding high thoughts for you too, that your days are less painful and you experience more peace without pain, so that you may have the best of times with your family. |
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hawkeye
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Yes, I can relate. My days are the same. I hate my life and it just seems like I am waiting for it to be all over. What a way to have to live. |
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imhopeful
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Hi hawkeye. I understand.I hope you are having some times that are less painful for you. I can absolutely say there are many times I have felt the way you expressed. Gratefully, not as many as there have been in days of past. Thankfully, with the support of group, on-line, and personal friends, counsel, and meds when absolutely neccesary..for me. Many more of my days are better, still some very painful, and occasionally the pain is minimal, and sometime..none! I am respectful of the ease with which meds could become an addiction, with the types of meds prescribed...so I only take them when the pain becomes too exhausting. I hope that you are finding some solace with those who care about you, and support programs that help you through these difficult times. I am kinda new to the forums...about two weeks, and I have done a few posts, here and bipolar group. I am finding the on-line commune helpful. Only those of us who have these experiences can truly understand. I like the feedback and the support. Thank you for your honest response. As ---- as it feels one day, and even the next, 'imhopful', that you are having times that you feel better. I'll say a prayer of peace for, you. Blessings to you hawkeye.     |
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imhopeful
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Hi again. I went back and looked at the post I did originally, just another example for me that I can be inspired, not ALL of my days are miserable. When I am feeling depressed, 'nothing' is ok. (Relate?) When I am having better days, it is strange to read how miserable and consumed I have been on these occasions. Thank GOD, every day really isn't grossly horrible and painful as I feels on those 'bad' days.!! Today, I am feeling ok. Despite the fact I just had a terrible blowout with my sig' other. I am aware that my body is feeling ok right now. ( maybe, just had to let the pressure off..Not fun for the bp part, but just another part of the process. Another good experience. We were gone for a few days, and although it was tense, it was ok. The most exciting thing was that the fibro, was minimal, one one day pain med. And my skin appears more healed . This is very exciting! Thanks for listening. Bad days are the P-I-T-S of hell, but at least I can begin to recognize and experience days that are...good! Yippo. |
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bshapiro
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I think the best part of this group is that we all do relate In one shade or another we're all going though what you are, some with Lyme or BPD on top other with other co-morbidities & we all share the common experience. Nobody's going to tell you it's all in you head or that you should "just get over it" or tell you "don't go there" - we all live there. Welcome to a place where you can find someone else hurting & coping with the same thing a 2am I hope you find information that will help you here but I can guarantee you'll find compassion & a place to share your pain & suffering - Bruce |
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Aunt Rinn
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I think that all of us have the capability to be inspirational. I'm glad that you can find that and recognize that within yourself IMHOPEFUL. It just goes to show that we may be a bit bitter sometimes, but for the most part, we don't like to see anyone else going through what we are going through, even if it is someone hear. I think that we are more in tune with being uplifting to others. We always try to extend a helpful hand or encouraging words because we experience this first hand and wouldn't wish this on any enemy. On our good days, that some of us experience, that's how we can find a way to make others feel better, like you have done. Through everyone's joys and pains, we do find comfort. Even on your best day, you are a great help through your words to someone that is in a bad flare. The best times are when you feel good and feel like you have accomplished something, like making someone else feel better. That's like instant gratification. Thanks I'MHOPEFUL for being here. It's great to have Fibro friends around that listen, provide insight, and aren't afraid to say when it's bad, it's really bad. I think we all learn different ways of coping and are all here to find that piece of comfort that people we are around everyday don't always give us. |
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kychick
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I just want to sqy I AGREE with all the above. I thank God everyday for leading me to this site and my new great friends who understand and support me and make me feel not so alone anymore. Thanks to all of you out there. Sherry |
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imhopeful
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Hi KorrineInOhio. Wow. I just began to read a book called Consider The Butterfly. It refers to recognizing/healing experiences through things we may say are coincidence, or serendipity. I just love it when that happens. Thank you sharing your warm words with me (and many others.) I am having a particularly difficult weekend, mostly with darkness of BP, some fibro aching, but mostly, heartache. So your inspiration, is very serendipideous (if that really is a word ahaha ) Amazing how somehow...in the dark moments it really is possible for laughter to happen. Thank you for your heartfelt words. Very timely...I like to call it Divine Intervention. Many Blessing to you too. Yes it is a wonderful thing to be reminded, no matter who we are, or what we are feeling..even one word can make a difference to someone who is hurting. Than you for appreciating me, I needed it, this moment.  |
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