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05/16/2008 10:16
PainHurts

I keep waiting for the cure Yeah, I have had fibro for 23 years. I am currently with flu, allergies, liver problems, and I can't stand Fridays. I don't have a family and in LA all your friends live at 40 miles away. Not that they are responsible for me.

My neighbors are horrible, they make fun of me because I am only able to sit here at the computer. I just don't understand stuff sometimes. I accept it (the prison-of fibro), but I really want to work and make moeny buy my own house with neighbors very far away. lol.

I hurt so much not sure I would even be happy anywhere. I know I wasn't even able to do anything but when I was in Hawaii. I can move anywhere in the USA, but somehow I keep winding up here in cali, doctors and social system a little bit better here.

Just lonely, I don't think the doctors think about this aspect of this illness. the lonliness and my inability to do the smallest of things.

Sorry had to get that out of my head

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05/16/2008 10:23
thomasann
Purple Ribbon
Posts: 365
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Hi Painhurts

I think we all would love a cure for Fibro. As you said, it makes for a lonely life and limited one. I just tell myself one day at a time and do the best I can. We have to learn to live with our limitations and that is no easy task. I hope you find a lot of support here. I know I have and it helps to know you are not alone in this battle. Your neighbors are being ignorant, so try to ignore them. Try to find a local support group in your area and if there isn't one, maybe you can start one yourself. Then you can make friends with people that understand. Just stay strong. Post as much as you need to. Vent, cry and get it all out. We are all here to listen and support you.

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05/16/2008 13:18
Barbkubacki
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Oh I am so sorry that you feel like that. Who needs neighbors? I know it is hard not having family around to help. My parents both died young and siblings live so far away. My husband and daughters all work. I have been sad yesterday and today. Thinking why was I like this? Why can't I find someone around here that has the same thing so atleast someone can understand me. Atleast you know that you computer family is always here for you. I am sorry I can not do more.

Barbara

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05/16/2008 23:54
PDW
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Painhurts,

I know how you feel. I really don't want to go anywhere or do anything. I rarely even get on the computer, let alone work, or talk to any neighbors. Sorry I didn't mean to go on I just wanted to say Hello and your not alone here.

Trisha


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05/17/2008 00:43
Fletch2ya
Orange Ribbon
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HI...I really don't want to sound cynical here..... but come on.... a cure...... not in this life time.... there is to much money to be made in the treatments and meds to help you feel better....... a cure..... why would they...... and cut out a part of there profit margin..... that includes.... Doctor, Pharmacies, hospitals, everyone that is making a buck off this disease does not want a cure.... they just want more treatments....... and new meds...... that is how Lyrica came to be........ it is all about money and not about our lives and them getting better.......

Sorry all..... but that is how I feel........ did not mean to rain on anyones parade..... Please do not give up hope.... maybe someday some lone chemist might find it for us..........

Craig

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