skeedawg50
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I have had this for over twenty-five years. I've tried everything that's come down the pike. Recently I've begun experimenting on a treatment that actually works, but it's just not practical for everyday use. As an adjunct to my treatment continuing to exercise is important to maintaining overall health. I was an athlete for many years as well and at 57 I still go out and run with a local rugby club. After years of keeping a fibro diary, I am convnced that our physical activity is not even related to our symptoms! Whether we work out or not, the pain is going to go on in it's own way. If my theory is right of how this actually works, then I will tell you that by the time you start feeling the pain it is too late. The damage has been done. It is damage that keeps occuring in the same spots over and over again and sometimes overlapping. I believe we suffer from temporary blockages in our capillary system that result in layers of dead tissue surrounding our joints. Areas that we have damaged in our lives, old tears in our connective tissue - often from an athletic life. The initial really bad pain (the knot, or pea-sized spot, fibro spot) is dying tissue inside of us next to bone and joint. It is hypoxic at this stage - and this does go in stages. The subsequent pain is from our joints being separated from the inside out. That is the damaged tissue swelling and pushing against our joints. It doesn't take much movement in the wrong direction to result in excrutiating joint pain. After the swelling goes down, we are left with several days of tissue regrowth. It is fresh tissue that is re-damaged easily and will contnue to hurt like a large healing wound for days. Suffer this process over and over again and we get tired, really tired - no...fatigued...exhausted. I believe you can have several attacks a week, some overlapping previous ones, and you can even get an attack in your sleep. Oh yeah, just getting up (from the prone position) can "squeeze" more of the stuff that is causing the blockage into our capillaries and cause the "hit by a truck" feeling first thng in the morning. I can explain in more detail if you like. There is no cure, but my experimenting have resulted in a paradigm that explains all of the weirdness of this condition. For more info check on the internet with Hemex Labs in Phoenix. They have part of the puzzle figured out. Good luck. |
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