Aunt Rinn
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Welcome! Surely your more positive side will get you through all of this. I can relate to the relationship that you and your husband have in relation to Fibro. My boyfriend tries, but he fails some of the time too. When I say I'm sick, he relates it to his cold he has now. It seems that sometimes people don't afford us the respect that we should get because we can't control this condition. He sometimes complains that "he hates going alone" too and I just have to give up on the explanation and walk away. If he wants to be upset, then so be it, but if I can't go, I can't go. I have a great Fibro letter that I can send to you if you would like to send me your e-mail address through a private message. It explains things from our perspectives and I've sent it to a few people. I think that it paints the perfect picture of how we would like to be treated as those with Fibro should be and provides a bit of insight into our daily struggle to deal with life. Stress is the worst for any of us and we can ill afford to let the stress get to us. Granted, that's easier said than done, but after we make our best attempt to explain how we feel, it's up to others to interpret that and act accordingly. My boyfriend sometimes relates my FM pains to being lazy, like if I can't carry the laundry basket to the laundry mat. Sure, laundry is a bear, but we all have to do it. I have led an entirely self-sufficient lifestyle through the first 6 years since being diagnosed with FM, but I just had to recently realize that I have to ask for help. I get frustrated easily with forgetting things and not being able to do everything that I want to. Although we know the pains that we will suffer if we over exert ourselves, don't let that be a limiting factor. Overtime, I realized that I will suffer the pain to relish on the moments of happiness and live without regretting that I missed out on something. There are limits that we must follow most of the time, but a little dose of some medicating happiness and laughter can go a long way! I refrain from going on long walks to amusement parks or to the county fair, but I will gladly overexert myself to play with my nephews or help my mom and dad around the house. I've babbled enough in my attempt to welcome you to the group and help you really realize that you are not alone and that you will find a lot of people here in your same situation, some less and some worse. But, one thing you will never find here is people that will ever judge you for expressing anything or asking any kind of questions! So, welcome and I look forward to getting to know more about you! |
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