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Hi to all. I'm new to the support group and wanted to introduce myself. My name is Janice and I was diagnosed with Chronic Fatigue (CF)about 19 years ago and Fibro almost 13 years ago. I was never disabled, work wise that is, from the CF but I was from the Fibro. I was off work for almost 10 years. I was in bed most of the time. I really thought I was going to die. I then started to feel better so I returned to work. I did work for almost three years, about 2 1/2 years to long. I was okay working for about 6 months but I kept on going working. In June 07 I decided to take 12 weeks off of work and try to get my body back under control. It's now October and I'm still off work. It's not better, in fact I feel worse. I'm wiped. I am now back on the multiple drugs, just different names with some different effects, and I worked soooo hard to eliminate some of them. At the suggestion of my wonderful primary doctor I'm going back to see the Pain Management doctor for his input. I'm so bummed. I wish that I would have predicted this. I gave up Social Security 3 years ago. I'm so scared that I can't get it again. I don't know what to do. Any suggestions? I have a husband of 21 years that is a wonderful man. I have 3 daughters 21, 17 and 14. My hubby is emotionally supportive but he can't help me. He is as disabled, if not more, than I am. He is suffering from a muliple-level failed back surgery from L3-4 to L5-S1.He now has recurring herniated discs. L3-4 is 10mm, L4-5 is 7.5mm and the L5-S1 is 4-5mm. He has back pain but the disabling part of this is his left leg pain, or should I say "He's plugged into a light soccet right now". He can hardly even walk to the bathroom, cane assisted of course. The leg gives out on him when he is brushing his teeth, going potty and forget about standing in the shower that is pure hell. He is either on the bed or on the couch. He needs constant attention. We have not found a drug out there that is helping with the leg pain. He's on Neurontin at this point but were still trying to get him to a theraputic level. He is currently at 1500 mg and building. I find that I'm relating to both of those on the board that are in pain, feeling depressed and wanting the answers and I'm also relating to those that are greiving for the ones that are in the pain, feeling depressed and and having such a hard time with the huge toll that it takes on your whole world. I'm in both the inside looking out, and the outside looking in, it's really hard. I'm feeling confused, sad, lonely for my best friend and I would do anything to help him, and myself. So, I just keep going and doing while I feel like I want to collapse, which I probably will do shortly. I'm not sure where this all is going to end up. Any suggestions to help me get a balance? Thanks for listening, Janice aka frazzeledbutgoin |
"I am so happy to be a part of the MDJunction family! Where I used to be alone, I now have friends whom inspire me, comfort me, support me, and do not judge me. My new life began October 17, 2008. I weighed in with severe depression, social anxiety disorder and avoidant personality disorder. I was born with complications but I am fighting for my life and I will survive!!" (apieceofwork)
