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04/21/2008 16:53
smithsa107
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Does anyone ever get so totally drained that they feel like they could collapse?
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04/21/2008 16:59
Fletch2ya
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Hi...almost every day.... right now I am on the couch....we just got in and ....that is it for me...... I feel like if I try and go any farther....my heart will just stop..... I am so exhausted...that I can not even think of going another step...and it it really hard right now just to type..............

I think almost everyone here has this feeling from one time or another............ I do hope yours gets better......

Craig

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04/21/2008 17:03
DoDo
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I know what you mean Fletch.....I too experience that almost every day. Seems I can be up for awhile, then I have to go and rest for a while. Just another thing I have had to get used to.

Also, I second that....I hope yours gets better soon.

Lorna

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04/21/2008 18:09
Red2
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Yes, I have the complete exhaustion quite often. It is a little better than it used to be....but I have to be veeery careful how hard I push myself. It used to be that it would just hit me out of the blue. It was terrible....I would start hurting, muscles might cramp up, my heart rate goes up, I get very nauseated, I start shaking, then I go limp.....I have to lay down, or fall down. I have gotten better about stopping before I reach this total meltdown. I try to make myself lay down if only for about five minutes even if I'm not that overly tired. If I will do this throughout the day, I do better. When I try to continue, even though I know I'm getting tired, then I'm in trouble. I really don't like the feeling when my body just totally quits, so I try to be careful not to over do. It's hard with kids. I want to do things with them like I used to. Now, I just do everything much slower and rest in between. They are good to understand.
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04/21/2008 18:16
JLCarter
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I too have the extreme exaustion.And I agree with you Red...I don't like the feeling of my body just giving out!It's like you no longer have control over your own body,even though your mind is still sending messages to get up...its very strange.But I get exausted very easily anymore.I try to be careful,but even being extremely careful doesn't exclude me from being exausted.Hope you feel better soon.JL
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04/22/2008 01:34
PDW
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I have been exhausted since 2006. I don't have any strength. I look and see show much that I need to do and just can't.

Trisha


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04/22/2008 05:24
Kat5150
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I feel that way more than I care to admit. I always feel guilty when we get home from the grocery store and I go to bed while everyone else puts away the groceries.

Yesterday I thought I would collapse just brushing my teeth! It sounds so silly, I guess it is easy to understand why people think it is made up sometimes. But we know it is real.

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04/22/2008 06:17
ALCSS2008
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I told my counselor yesterday that I am cheating my kids. My older kids got to experience the real me and my two younger kids got the Fibro Princess. I am so tired. They have to help with everything. Yesterday, I was so tired, I could barely drive. Then when we got home, I could barely get out of the car. It has been raining here for 4 days and I am hurting so bad it hurts to move. I was up all night with a stomach something. I wasn't sick before I went to bed. Anyway, I am tired of being tired. If I have to go one place a day, it takes me the whole day to do it. I wish I wouldn't have got sick until my last child would have turned 18.
ccc

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04/22/2008 06:22
thomasann
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I too get completely exhausted on a daily basis. Yesterday was one of them. And I was having alot of pain and the weather has been warm here.60-80 degress1 I thought the warm weather would help everything, bbut not this year. Then I couldn't sleep well, even taking the klonopin and flexeril before bed.,
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04/24/2008 20:50
sugardoc
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i JUST WAS ON LAST WEEK BEFORE I HAD A SURGERY COMPLAINING I WAS UP WITH LITTLE SLEEP FOR LIKE 5 DAYS AND EVERYONE HERE LET ME KNOW THAT YES, THIS IS PROBABLY DUE TO FIBRO. I HAD SURGERY ON FRIDAY AND SINCE THEN I HAVE SLEPT LIKE A BABY BUT PROBABLY DUE TO THE MEDS I HAVE BEEN TAKING FOR THE PAIN POST-SURGERY.IT WILL DRIVE YOU CRAZY. I FOUND RELIEF WITH A LITTLE OTC MED CALLED MELATONIN IT IS HERBAL IN THE VITAMIN DEPT AT WAL-MART. I BOUGHT 5MG AND IT WORKED FOR LIKE 5 MONTHS BUT HAS NOW STOPPED SO IT MAY BE WORTH THE 9 BUCKS TO TRY IT. PLUS, YOU DON'T FEEL GROGGY OR IN A FOG THE NEXT MORNING. I DON'T RECOMMEND AMBIEN DUE TO BAD SIDE EFFECTS LIKE EATING A WHOLE LOAF OF BREAD AT NIGHT AND NOT REMEMBERING IT. MY AUNT IS ON IT AND SHE IS REALLY BAD LIKE IN A FOG AND SHE WILL LISTEN TO NO ONE WHEN THEY TELL HER HOW SHE IS ACTING. I AM TRYING TO GET HER OFF TO AND HAVE HER TRY MELATONIN TEMPORARILY UNTIL SHE CAN GET TO A DOC WHO CAN HELP HER. SOME OF THESE MEDICINES ARE BAD AND DEADLY, JUST BECAUSE THE FDA APPROVED THEM ALOT OF THE TIMES THEY ARE APPROVED FOR A DIFFERENT CONDITION AND GAVE TO PEOPLE AS AN EXPERIMENT TO SEE IF IT HELPS THEM. SO JUST BEWARE ON SOME MEDS. LYRICA ABOUT DID ME IN. IT HELPS ALOT OF PEOPLE AND THE FLIP SIDE IS IS ALMOST KILLS ALOT OF PEOPLE BECAUSE OF THE HORRIFIC SIDE EFFECTS. HOPE YOU FIND PEACE AND SLEEP SOON!
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