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Fibromyalgia Specialist



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04/18/2008 11:32
puddles
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Hi there,

I am finally able to see a fibro specialist next week and I was wondering what specific questions that I should ask the doctor. Although I have been suffering with this for years, I was just diagnosed last week! I am still in a fog and not certain what to do to deal with this. If there is anyone out there who could give me some suggestions, I would truly appreciate it very much!!

Thank you.

Laurie

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04/18/2008 14:07
Red2
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Hi puddles!

Welcome to the group!! I am glad you are able to see a fibro specialist. I hope that goes well for you. I have been reading a book that may help you, if you don't already have it. It's called "The Fibromyalgia Advocate" by Devin J. Starlanyl, M.D.

It has a Checklist for Your Doctors: this is for you only....it has suggested questions that you need to ask yourself about your doctor to see if he/she really is the right doctor for you. It has a lot of good information.

It also has a section called "What your doctors should know: information for medical specialists" It's sorted into different sections that address the different healthcare professionals that we might need to visit.

For EXAMPLE: Primary Care Physician, Cardiologist, Chiropractor, Dentist, Dermatologist, Emergency Room Staff, Allergist, Eye Doctor, etc.

Each section tells the doctor what they should know about your FMS so they can better care for you. They may not like being educated, but I find it is necessary many times, as long as done tactfully by you. If I had a doctor that would not listen to me....I changed doctors!!

It also has a section on "Legal Rights and Advocacy" for you, "Social Security and Medicare".

Even a section on how to handle "Family and Friends"

The author of this book also suffers from FMS and MPS so she is all too familiar with our struggles.

It is hard to tell you exactly what to ask. I would certainly make a list of questions so you don't forget them when you get to the office. All questions are important to you...so I would not be afraid to ask anything! Even if you think it sounds trivial. There is no such thing as a silly question.

Good luck to you!!

Red

Post edited by: Red2, at: 04/18/2008 16:13

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04/18/2008 14:47
KristineP
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I agree with Red2. Purchase a book or if you have access to a book store, go and browse the health section. I am amazed at the number of books that are in the stores now that are exclusively about fibromyalgia. Doesn't it seem ironic that there are so many books about a disease that many people still refuse to believe exists? Just a thought.....anyway.....get a book, research websites that are in the book, read up on things and you will be amazed at the wealth of information out there.

We are always here for you.

Kristine



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04/18/2008 16:27
ALCSS2008
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Thanks Red2. I think I will buy the book. It may help in my fight for disability.

Welcome Puddles

It is sad that so many books are written about fibro and yet no one believes in it. I do believe that the more people are diagnosed the more exposure it is getting. We need one big named person to get it. That is mean to say and I really hope it doesn't happen. Look what Michael J Fox has done for Parkinsons.

It is good that we have each other. I look forward to talking with everyone each day. When I can't sleep, I come down and talk my friends on the internet.

ccc
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04/18/2008 16:44
Red2
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Your welcome! I hope it does help you. I agree, sometimes I have felt the same way. If only someone "important" would get this!! Then, too, I feel bad for wishing this horrible thing on anyone else!!

Another book some might be interested in is "Fibromyalgia Up Close and Personal" by Mark J. Pellegrino, M.D. Mark also has fibro. and treats many FM patients. This book is full of info.

Somtimes it's overwhelming to read these books and think where do I even start?? But I just take one thing at a time and change what I can. I am also thankful for my friends here! They are always ready to pick me up after a bad day and laugh with me on a good day!!

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04/18/2008 22:13
PDW
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Puddles,

Congradulations on getting a Fibro specialist. I wish I could help you, but so many people have syptoms others do not. Remember to make a list of your problems. Wether it's aches or headaches. Or swollen fingers cause each person has some more severe or less no one has the same signs. Good luck and just be honest.

Trisha


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04/18/2008 22:54
booklady14
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those have all be great suggestions. Make a list of questions, make a list of your aches and pains, and I have not personnally read the book they are talking about - I have heard it is really good. In fact I may go to amazon.com right now and see if I can get a copy.
((((HUGS))) Kathy

we all need "splashes" of JOY in the cesspools of life
3:16...........real joy


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04/19/2008 11:54
puddles
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Good morning Everyone!

I just wanted to say that all of you who took the time to answer my questions about seeing a fibro specialist was greatly appreciated. Tons of terrific suggestions. I will let you know how it goes next week. It is so calming to know that even though we all live in different parts of the world with different forms of fibro, we all have a strong bond!! I don't know what I would do if you all wern't here for me!! I thank God for finding this support group and I look forward to getting to know you all better over time.

I am having a pretty good day today!! Yee, haaa

God bless all of you!

Puddles

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