DaniBelle
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story. I'll try to make it concise and brief, but I'm not making any promises (LOL)! I first noticed 'something' wasn't quite right when I was a child. I didn't want to play with other kids because I didn't feel well, no energy, and my thinking was 'foggy'. At age 8, I had surgery to correct bladder reflux. From that point, the achiness became worse and I developed what I now know to be endometriosis around my bladder, female organs, etc.. Needless to say, my monthly cycles were terribly painful, requiring heavy-duty pain medications. Through my teen years and on, I continued feeling 'not right', but thought it was just the way I was 'made'. After 3 pregancies (my first was stillborn - in heaven with our Lord), the cramps, etc. were all but gone. When my youngest was 3, it all came back. Over 4 years, I had 4 surgeries to remove endo,cysts,and eventually a complete hysterectomy. Soon after, I noticed the FM was extremely bad. I spent 2 years in the bed or couch. I could no longer sing (my profession), because I couldn't be on stage due to the FM and Interstitial Cystitis which I had developed. Thank God, after a year of bladder instillations (in doctor's office and self-administered at home or on the rare vacation), it is almost completely gone! The FM, however, is still with me. I've made some progress, in that I have lessened my pain medication from Morphine,Lortab and Soma down to a lower dosage of the Lortab and Soma as needed. I did not tolerate the Morphine (although it helped greatly with the pain), because of respiratory issues and too much sedation. I feel like 4 years of my life has been taken away and the worse thing is that I don't remember many things. FibroFog is awful. My Mom and Dad support me emotinally, but my husband believes that if I stop taking the medications (which are very few), I will be 'cured'. He is so misinformed, and believe me, I've tried so many times to inform him. I don't even talk about it anymore. I also have epilepsy (a mild form) and must take a strong medication for it as well. I have hypothyroidism, low white cell count, low adrenal gland function, and my hormones are all out of balance. I refuse to take an HRT....know too many women who have gotten breast cancer within a year of taking HRT! I also have a recurrence of Rhabdomyolisis (which I don't understand), so I'm trying to find out how this all relates to each other....I want my life back!!!! Will write more later....thanks to all for your support on this site. Dani |
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