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04/01/2008 17:32
Ihatetohurt
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Posts: 17
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 i'm laura. i'm new to this group. i just got diagnosed with fm a few months ago. but the symptoms started over 4 years ago. and i'm only 25. i'm on lyrica, but it's not helping enough. i have 2 little girls at home and i want to play with them. it's hard enough to get up in the morning let alone play. i'm really having a hard time coping right now. i can't seem to find the right treatment. my migraines are the worst part. i can tell when a storm is coming just by how i feel. I work in a hospital 12 hour shifts. so i really have a hard time then.well thats just a quick version of how things are going.
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04/02/2008 07:15
Ihatetohurt
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 how many of you have little kids? how do you deal with trying to take care of them and play with them. i feel bad when i don't want to play with them because i hurt too much or don't have the energy. does anyone have this problem or is it just me?
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04/02/2008 07:41
Kaze
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 Welcome, I hatetohurt, I am surprised that you are working 12 hour days, that is great! Any mom working that hard is going to be tired with or without fibro. Don't be so hard on yourself. I think we notice things more than the children. My children are grown now but I have a granddaughter and she just knows Nana's having a bad day. So we draw, color or read books...even if I have to do it from bed. She adapts, Have a great day, Kaze
Friends are angels who lift us to our feet when our wings have trouble remembering how to fly.

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04/02/2008 07:55
ALCSS2008
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 I went to my daughter's today because I was missing my grandson who is 5 months old. I was worn out after only one hour. We did get some quality play time in. He has one or those sauser that he can sit and spin around in so I can interact with him and not have to hold him. They are wonderful. We laughed and carried on and then we were both ready for a nap. I think I am going to do this a couple of mornings a week instead of going back to sleep. I am tired, but it is so much better!
ccc

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04/02/2008 08:12
mommyofsixFriend2U
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 Welcome to the group! I have 6 kids and know how you feel when you can't play with them. I get depressed and feel guilty some of the time. I have learned not to push myself and find other things to do with them. I don't have to be SUPERMOM all the time. I get help with the little ones from my older children so that helps. Do what you can on your good days and rest when you need to. You have to take care of yourself. If you don't, you won't ever feel well enough to play with the girls.

Take care and PM me if you ever need anything! We are here for you!

Your Friend, Chris

Your Friend, Chris
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04/02/2008 18:05
Bkwrm398
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 Hi Ihatetohurt,

I just wanted to welcome you to the group.
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04/02/2008 19:02
Maineiac

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 Hi Laura, welcome to the fibro family.
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04/02/2008 20:33
spruce1
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 Welcome Laura! I'm Laura too!! I'm known as spruce...but you call me anything ! Just don't swear !!

I was hit with fibro 22 yrs ago and one thing that made it so much worse was the migraines!! I had 3 different types and it was EVERY day!!! After a lot of years they've finally settled down. I'm amazed your working and I don't know if thats good or bad. For me it just made my pain and headaches worse. If you cut back, I think it would be better for you, however, that's just my personal opinion and beleive me I'm NOT God!! I just feel the stress of home and work and so many hours can make your pain bad!

Are you geting help for your pain?? I hope so.

Well, I hope you have a decent nite and a good morning.

Spruce aka Laura


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04/02/2008 20:57
cadburry
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 I know what you mean about having young children and not being able to play with them the way you would like. Before I got sick I worked 10 hour shifts 4 days a week and eight hour shifts Firday and Saturday.I would take my kids out for a walk every day, and we would ride bikes, play at the park,and I'm one of those cooky moms that gets up on the play ground equipment with the kids lol. I was also 100 lbs lighter back then.

I feel so guilty because my kids miss out on so much, but they know mommy is in allot of pain so they never hold it against me. They are the most understanding and compassionate little people I know lol.

I just cant beleive you work! Thats amazing! I havnt been able to work in over a year, but I'm hoping once I get some kind of pain meds that I can try to work at least part time.

What do you take for your fibro?
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04/02/2008 21:24
foxyroxy1
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 I have a 13 year old and its hard. Some times she wants me to go some place or drive her some where but I am too sore or tired. Plus I repeat myself alot and ask the same questions over and over. Sometimes she cant have her friends over because my head hurts too bad. Usually I go in my room so she doesnt get deprived of her friends, (just her mom). I also work full time. I think she understands. We talk about it. But I am also pretty sure she has some issues with me because I am not like her friends parrents. What can we do. We didnt choose to get this.
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