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RJOGORD Posts: 13
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Hi everyone, My name is RJ and I was diagnosed with FMS about nine years ago. Right now, I've been battling a recent flame up for about six straight days. I've been trying to find someone like myself to express and communicate what it is like living with FMS. I hope I have now found it. I have FMS+CMP plus a few other conditions mostly due to those. I am hoping to be able to get some things off my chest and would love to hear about others and what they are going thru. I am a man. I first heard that FMS was mostly in women but I have come across numerous men at the VA hospital who also suffer from FMS,CMP and other chronic pain conditions thought to have been found mostly in women. Once again I am looking forward to exchanging ideas and listening to others who also suffer. RJ Post edited by: RJOGORD, at: 07/25/2009 03:13 PM |
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River Posts: 3465
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Welocme RJ I can always use another brother...You are not alone here we have men and women. this is a great place you get thinks off your chest vent all you want. We are here for you. HUGS river  Life, Love, Laughter
What I say here is in no way intended to be medical advice. Please see your doctor.
God put me on earth to do a certain number of things...right now I am so far behind I will never die |
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hatbox121 Posts: 10509
Group Leader
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There is even a men with FM forum on here so you are not alone. True it affects women more than men, or men just don't want to admit it one. Either way we're both in pain.  Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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aTinaL  Posts: 11832
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RJ, welcome to our Wonderful World of Mighty Fibromites! It's a pleasure to meet you  We do have a great group here. I'm confident that you'll find that there are lots of people here that you'll connect with. I understand that men have very specific issues with fibro, but you can be as open as you'd like here. We all certainly are! Yes, we even talk about S-E-X!  More than anything, though, we have a lot of love and support to give. We even have lots of tips and tricks. PLUS we still manage to have some fun! A lot of the men hang out here anyway. You're more than welcome to join both. So please do make yourself at home and post away! I, for one, would love the chance to get to know you! Big Newbie Hugs, Tina  Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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mammy Posts: 7217
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Welcome RJ, so glad you joined us. If it is support and understanding you are looking for then you have come to the right place. The people here are the best too. Feel free to jump in on any conversation or start a new discussion with any specific questions you might have. Don't be shy, as Tina said, we talk about everything and share our experiences here. This site has truly been a blessing to me, I was in a very bad place when I joined. So please stick around and let's get to know each other  Connie  Connie
I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice. |
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hopefull1 Posts: 1965
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It sounds like everyone has given you a proper welcome. I'm glad you have joined our group. It's always nice to have some men around. I have an uncle and male cousin with fibro. I think there are more men out there then we know about they may not be as vocal as we are about it though.  Steffanie
Do you or someone you know have Von Willebrands Disease? Come join us at http://www.mdjunction.com/von-willebrand-disease
Please note that any advice given is not a substitute for getting a diagnosis from your doctor. |
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shortstuff116 Posts: 1633
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Rj, Welcome to our Group. It's so nice to have a man join our group. I hope that you don't mind talking to a bunch of women? Yes, you are right that FM is primarily diagnosed by women. But the books that I have read about Fibro, it is not only for women, there have been studies done that men get it to. One thing I would love to see happen and that is trying to find a cure for this. I know since I was diagnosed this past Sept. my life has changed so much. I have no idea what my life will be in two years. I do know that, instead of getting better, I can feel that parts of my life will never be the same no matter how much I want it to be. I am trying so hard not to give into this disease, But everytime I turn around there is something else happening. So you see, You are not alone with this. I am glad that you have joined our family. I will warn you, as Ms. Tina said, we do talk about sex. We all support each other. we have fun, we laugh, we cry, we pick each other up, we are always here for nayone that just wants to talk. Venting is completely allowed. So again, Welcome. Hope to talk to you soon. God Bless You. shortstuff 
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Disentangler
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Men, Women, and Kelly  Technically I'm not quiet either, and yet both. Welcome to our family RJ. I hope that you will find this group as positive, amazing, supportive and wonderful as I have. With much love, hugs, and blessings, Namaste, Kelly |
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RJOGORD Posts: 13
New Member
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Hi Kelly, thank you for your kind words. I hope to get a lot out of this website. I need to know there are others who are also in pretty much the same boat as myself. Thank you and I look forward to hearing from you and others very soon. RJ |
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tracy6878 Posts: 574
VIP Member
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just wanted to say hi and welcome you too!!! hope you find as much love and support here as i do...glad to meet you!!! welcome to the group!!!  Look me up: www.facebook.com/tracys_in_love
Love, Liberty, & R[̲̅ə̲̅٨̲̅٥̲̅٦̲̅]ution to everyone!!! Ron Paul 2012!!!
Managing Chronic Pain:
Your Basic Rights:
People with chronic pain are often “people pleasers.” We find it hard to express our needs and require that others respect them. And when our needs are not met, tension is increased and our pain seems worse. But you do have the same basic rights that you grant to others.
You have the right to:
1.Act in a way that promotes dignity and self-respect.
2.Be treated with respect.
3.Make mistakes.
4.Do less than you are humanly capable of doing.
5.Change your mind.
6.Ask for what you want.
7.Take time to slow down and think before you act.
8.Ask for information.
9.Ask for help or assistance.
10.Feel good about yourself.
11.Disagree.
12.Not have to explain everything you do and think.
13.Say "no" and not feel guilty.
14.Ask why.
15.Be listened to and taken seriously when expressing your feelings.
Read and reread these rights so that you not only know them by heart, but so that they become part of your daily life.
Success is not final, failure is not fatal: it is the courage to continue that counts.
~Winston Churchill
Love and many hugs, dear friends ~tracy |
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