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03/30/2008 18:43
Red2
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 Maybe they have some pain too, but can they understand the horrible fatigue that goes along with this? Even if I can fight through the pain, I have no control over the overwhelming fatigue I get!! My body just gives out and either I lay down or I will fall down! And, this can happen to me anytime! I don't know how they can understand this, but this really keeps me from doing sooooo much!
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03/30/2008 18:46
mamanordy
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 You know the pain I can really get through too but the fatigue IS overwhelming. I sometimes feel as if I cannot go one more step or I will just crumble.
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03/30/2008 18:47
jomama
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 I am so glad to have found you! I finally have some one to talk to and understand this with, but I made a mistake on my profile I have had this for eleven years instead of what I said. Have gone through many struggles and will probably go thru more as life goes on. But thanks so much for all your support and hugs to you all.
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03/30/2008 18:52
Red2
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 Maybe we just need to all fall on the floor and not move, then they would really be concerned! I have actually sat on the floor in a shoe store before. I just couldn't go any farther. I had to sit a few minutes then I could finally get up and make my way out of there. Funny, no one seemed to notice! So, maybe falling on the floor wouldn't work
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03/30/2008 18:55
mamanordy
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 No Red it doesnt work too much. I actually passed out at my sons house one day not too long ago. My son came running over, my hubby was upstairs and son called for him, he came in, saw me sitting on the floor and said to son, oh yeah she does that from time to time, she will be alright. My son got really mad at his dad for that. But I said not to worry honey it is just part of all the stuff wrong with me and your dad is deconditioned to it.
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03/30/2008 19:05
Red2
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 Oh no mamanordy! I can't help it, you just made me laugh! It's terrible isn't it?! I think that's what everyone would do with me if I fell over too. I also have spells where I feel like I will pass out. I'm not sure why, I think my blood pressure might dip a bit. It's been low before. Thanks for the smile
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03/30/2008 19:13
mamanordy
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 Red glad I could make you laugh! It is quite funny, actually. I have a lot of passing out spells, I have a rhythm problem in my heart. I am going to have it fixed hopefully April 11. Maybe I wont be friends with the floor too much after that. LOL
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03/30/2008 19:21
Red2
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 I hope they can take care of your heart problem! It's not much fun being friends with the floor!! I have mitral valve prolapse, but after a lot of testing, they said it shouldn't cause me any problems. Hopefully it won't. I don't want to make friends with the floor too often!! LOL
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