Please don't give up there are people out there that care and will support you, by the way my name is Denise. I am sooooo sorry you are in such physical pain. It took 2 yrs. for me to get diagnosed for my multiple medical conditions and Fibromyalgia being one of them it is a condition that a lot of medical doctors still don't believe is real medical condition, it is an auto immune disease (excuse the spelling)I'm so bad at spelling, because there are no real test yet that pin point this syndrome. Find a doctor in your area that believes in this condition. Also, you should go see an endocrinologist that deals with gland diseases as maybe you have and adrenal disease like I do also. If you have been taking steroids at any point and gone off them you could have have adrenal insufficiency. Please don't give up I know how much pain you are in and if your like me I went to Doctor after doctor and ER visits I was told I was depressed or having panic attacks. One day I was rushed in ER with these strange like blisters on my edges of my face and my face felt like it was burning from the inside out. The doctor said he never saw anything like it before and called in an endocrinoligist to consult. and they discovered adrenal gland disorder and a host of other medical conditions. I have to go but I wanted you to know there is help out there for you, please email me back as I want to talk more but have to go for right now. I will check my site tomorrow, and I will be praying for you.

Hugs and prayers, Denise

I don't know anything about your physical problems, but I can tell you that you will get all the love and emotional support you can handle right here. This is a special group of people that look out for each other and share each other's pain. We are compassionate and kind. We know what it is like to live with pain. Some of us with a strong support system and some of us with a weak support system at home and a strong support system here. Please give us a chance. Jump right in anytime you like and PM me if you would care to.

Your friend,

Sandi

Please know that you have come to the right place. You are a strong person who needs a good support system - that is us! We will be here to hold your hand and walk with you, cry with you, be silly, whatevery you need, we will walk the walk of pain with you every step of the way.

There are some here that don't have the support at home and others of us that do. Either way, everyone on this site is wonderful. There is a lot of great knowledge, compassion, humor, etc. here, so lean on us and let us help you.

Please keep us updated to how you are doing. Sending you hugs for less pain... (((((HUGS)))))

T

I feel God led me to this site also. I do not even have one friend that I can talk to about this. I had to quit teaching because the fatigue and pain were just too much. I couldn't even hold up my arms to write on the chalkboard. It also affected my driving. I was unable to drive for quite awhile. Now, I drive for only short periods at a time. After I left work, I tried to continue seeing my best friends I had made there. It just didn't work out. I felt as though they thought I just didn't want to work anymore. They no longer call or keep up with me. I even had a family member pretty much accuse me of lying about not being able to do things myself (like driving, etc.) My husband has been supportive, but even he gets tired of dealing with me sometimes. I think he gets overwhelmed and just gives up on me. He wants to fix me, and he can't. I can't even seem to make him understand how hard it is for me and what all this fibro. monster does to me - so, how can I possibly explain to others?

I also dread the bathroom visit when my left knee is hurting. Not much fun trying to get up!! Bath is not much fun getting out of either. I will tell you - I am a small frame person, just always have been. It hasn't made much difference with me being able to get up or do things. I struggle with these things greatly. Steps kill me - I look like a little old lady going up and down them (I'm only 42)!! My clothes also hurt me. I cannot wear heavy jackets for any length of time. I cannot wear jewelry, unless I want pain. I cannot hold hands with someone for very long, etc. etc.

Since we are so tired and hurt so much, I found I have to change things slowly. I get overwhelmed otherwise and do nothing. My doctor wanted me to eat healthier. So, I chose to stop drinking all cokes. Then after awhile, I dropped something else out. I do better taking one thing out at a time. Then I will slowly add one thing back in it's place. I now try to drink green tea whenever I start craving something junky. This seems to help stop the cravings. There is no magic bullet that works for everyone (wish there was, I'd be first in line . We each have to find what works for us. I also don't care what others think anymore. I have decided that when I need to lay down, I lay down. I know what my body needs, they don't. I'm afraid I have never taken very good care of myself. Well, I decided it's time to start.

I am so glad I found this forum, because at least now I know I am not alone in this. You, are not alone either!! You will see that there are many of us! You are not crazy! Each time you feel alone and in pain, just think of us cheering you on!! You will remain in my prayers!

Red

Do you work full time? It sounds as if you do not have insurance... I dont either, and I have found some meds that I have gotten for free or discounted and some of the hosp and docs have given me discounts. Please PM me and I will see if I can help you with the meds.

Hang in there!!