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03/24/2008 09:29
Kaze
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 Red2 that sounds like a very good book. I will be ordering it soon. Kaze
Friends are angels who lift us to our feet when our wings have trouble remembering how to fly.

Popular posts by Kaze
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03/24/2008 09:29
mamanordy
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 You know in all the years I have had FM, I havent read any books on the subject. I think I might.
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03/24/2008 09:40
jgamble409
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 Kaze, my daughter is also the one I talk too. She has colitis so she totally understands the not looking sick thing. She is also a microbiolist

so she understands alot more than I do and is able to keep up with the lastest news on both issues. Full time job, husband and 2 kids she is an inspiration. I am not sure that I know what I am doing since this is my first forum but I am learning hopefully someday I will help others also.
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03/24/2008 09:45
Kaze
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 You already have Kaze
Friends are angels who lift us to our feet when our wings have trouble remembering how to fly.

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    A Toast to us all !
    New Symptom
    Fall
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03/24/2008 09:51
Red2
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 Wow jgamble, hope you can share any new info. your daughter comes up with. Sounds like you have a wonderful daughter!! What a blessing! You are already helping others just by sharing your story with us.
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03/24/2008 13:21
JamClarks
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 I have been reading Fibromalgia for dummies,never thought It would be as good as It Is, Its just got so much info and answers to things you wonder about, worth every penny!

Jamie
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03/24/2008 13:27
jgamble409
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 Just received the Mayo Clinic Health Letter and it is talking about Fibromyalgia this month. Did not realize that 2% of the population has this to live with. It is interesting but not alot that we don't already know. Was going to forward it but it is copyrighted and don't know if I can.
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03/24/2008 14:57
bc41129
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 Wow that does surprise me that only 2% of us people have this disease. No wonder they are not putting out enough money to find a cure for this.

Well, I hate to say this but it looks like if this is true we have a long wait to find anything that will rally help us.

All we can hope for then is more ways to treat the symptoms. Gee that is very dissappointing.

brenda
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03/24/2008 15:14
jgamble409
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 Yes, but look at all the fellow members we have just on this website and how many more do not even know it is here. The greasy wheel gets noticed first. The only way I found out about this website is because I googled to find some informaton out. If we all could let our healthcare providers know about this and made more people aware maybe we would not be treated as though we are crazy. Sometimes we just need to realize that alone we are one but together we are many and that makes a louder voice.
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03/27/2008 05:35
ZeusMom
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 jgamble409, have you tried the yoga tape yet? (if you get fittv, "namaste yoga" is the best!) yoga's one thing that's helped stay "mobile". i know when i don't feel like it or make time for it, i continue to curl up tighter and tighter. if i struggle through maybe 10-15 minutes, gently (the breathing, the stretching--ahhh) , i feel so much better for hours! (not totally "normal", but...)

i'm reading "the fibromyalgia advocate" by devin j. starlanyl, m.d. it cover the basics on what you need to know, information for your health care providers, legal rights, friends, family and other issues. she has another book that she co-authored with mary ellen copeland called "fibromyalgia & myofascial pain syndrome:a survival manual". that one's next on my list-well, maybe after a few others!
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