Since August 2006 I've had every test under the sun, and been told many things during this time. Like you have high CEA Levels, Lupus?, COPD, Chronic Bronchitus,?

Chronic Pneumonia, Oats Disease, Buergers Disease,

Endometriosis? Yes my CEA Levels are high yet they have not been able to find cancer is my body. Then not to have any

health insurance to find out what's going on. I can't afford to buy it cause I don't work I'm Trying for Disability. My husband done receives it because of 2 brain surgeries, seizures and degenerative disk disease.

My Doctor gives my samples if I get sick and doesn't charge me for the visits. Yet the last itme I went in I need 2 surgeries, nothing major. I go before Administrative Law next week aftr waiting 2 years for

disablility. I was suppose to go water therpy for the Fibro, but would it work. I had a Lawyer for this claim yet he dropped me out of no where and finding another this short notice is darn near impossible. But I worked for years in a special needs school, as a dietician. And since I left the board of Education I've worked factory jobs. In fact I was working a real good one when I became ill. At first it was just sleeping all the time. It went down hill from that point.

It's been life altering, I went from working 2 jobs, taking care of my son that's ADHD, Tourettes Sydrome, and Bipolar Disorder. Taking care of a house and a yard.

To renting a place and hardly able to keep the house clean.

Family: That the touchy one for me. My Mother claims I'm to young to be sick. And Fibro is just what Doctors say when they don't know what else to say.

I have 3 older sisters And helped raise all of their children when I was just a child myself. Yet not one of them can pick up the phone to say Hi, And I'm tired of always being the one to call them.

If I run into them in the store, they act as if they don't see me, although they can look directly at me.

I'm not a bad person, I bend over backards to help a friend in need and have a many of times. Including wacthing my friends 9 month old occassionally. But that is very exhausting. So Mommyofsix I Salute you irl I dont see how you can do it. Okay I'll shut up!!

Have a good and pain free day.

I told my friend on the phone today, I guess I can take my St, Patrick Day decorations down, But then maybe not. They add some color with the Easter, Valentine and yes a rare overlooked Christmas decoration. I just dusted off a spot and put an Easter decoration on it. Put a lace tablecloth on the table and "WA_LA" Easter decorating was completed. I would have never done that before. Spring cleaning was a hideous event. Taking down curtains and dusting b/t matresses. After all, I have teenagers, I might find something that could cause a fibro-flare. No spring cleaning for me. Little lysol in the corners and light a candle and I am done.

In everything you do, just do the best you can do. That is all you can do.

Your friend.

Sandi

Samdi

(havent learned how to get any smiley faces to appear but a smile), anyhow talk with positive people, to keep you spirits up!you will make it through this, just think, it could be worse.

devon