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03/10/2008 13:47
amyj298
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Just to let you know about me. I was on top of the world in 2003. Then I found out my husband was leaving. I was an unemployed mother of four and very scared.

Then I decided to go back to college. I took every loan I could get and went to college. I graduated the summer of 2006 and once again, was on top of the world. I was fit, free (single), and soon to be financially secure! ... then Fibro entered my life.

Teaching jobs were few and far between, I started having one symptom after another, I started gaining weight like crazy, and I was under a lot of stress trying to support four children; two with special needs. It was a very tough time in my life and to be honest, life is still hard at times.

I was finally/officially diagnosed in January 2008 after being in and out of the hospital. I am currently a part time tutor for our school system and working with my students makes me forget everything I have been through; at least for 6 hours out of the day, 3 days a week. I have my good days and my Fibro days ... (as you all know they are ALL Fibro days) ... I don't want to say "bad days" because I find that people won't ask what is wrong if instead of saying, "I am having a Bad day", I just say I am having a Fibro day.

I was in denial these last few months but now I am trying to see what I can do to help me and my family come to terms with this syndrome. I push myself, maybe too much at times and pay for it the next day, but I take one day at a time and most importantly, I will never let FM permanently take over my life.

LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/10/2008 13:52
Cathy0402
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you go girl i wish i could be that strong
cathryn
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03/10/2008 14:21
amyj298
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Cathryn, don't get me wrong. I am just having an "up moment". It too will pass. Seriously though, I have really been in denial these last few months and very down on life but after reading these post and realizing it is not all in my head, I am going to fight FM for another round. I am sure there will be days it wins but I am pretty sure that I am going to have some victories of my own; like meeting new friends on this site. Strive for the good days and we can be strong together. HUGS! Amy
LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/10/2008 21:52
DEE30
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amyj298, welcome welcome!

i think i was in denial for about a year. it takes time to adjust. it defintley is a lifestyle change however i'm so happy to hear you say you wont let it take over your life!! your right, your life is yours! it took me a long time, i was devestated in jan 05 when diagnosed, it ruined my career and got discharged from the navy reserves. it sucks! my husband is active duty so i get jealous. anyhow , if you ever need anyone to talk to, you can pm me.

and yes there are days when my fibro wins too, however, one day at a time. my theory is, it could be worse

sometimes even the strongest of people need a weak day.

devon

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03/12/2008 13:11
amyj298
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Devon, that you so much for your post. FM as really turn things upside-down for you. My heart goes out to you. I guess my biggest challenge now is how to get my children to understand that "mommy can't play right now" or that "laundry didn't get done" because I am having a Fibro moment/day/week.
LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/14/2008 17:51
DEE30
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hmmmmmmmmm, not really sure how to help you on explaining it to your child. i have no children. hope you feel better, will write more later !

devon

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03/14/2008 20:01
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Fibro is hard on kids. They see you as the same person and yet you can't do the things you used too like ride bikes and do tricks on the skateboard and go sled riding. I know my children get tired of me being sick. My oldest child is 23, and she and I are so close she can sense when I am feeling bad. Laura is the mother of my first grandchild and it breaks my heart when he spends the night at his other grandmas instead of mine because I just cannot do it. Claire is 17, and she helps me at home. She only has school 1/2 a day and was supposed to go to college or have a job, but she helps take care of me. I love he so much, but even she gets tired of me not wanting to go anywhere or missing her games because I am sick. It has been the hardest on my son Spencer. He is 16, and has no idea what is going on. One day I was fine and the next day I was sick. He told me the other day he misses the things we used to do. I also used to be thin and pretty and all of his friends teased him, but now I am heavy and not very attractive. He wants the old me back. I guess we just explain it the best we can and re-explain when they don't seem to get it. You can understand why the kids don't get it when most of the general public doesn't get it either.

It is really hard when the school or sports events wants you to volunteer and they can't understand when you tell them you can't. They see you at the game. ( once in a while, they see you at a game when you feel like you can come, or you take enough drugs that you are there, but you can't concentrate enough to know what is going on.) Then they talk about you behind your back. Or they pester you until you find something you can do to shut them up. This year for my son's basketball my oldest daughter did it and when we walked over they said "Oh, here is Sandi" and my daughter said "no really here is Laura, I am doing it for my mother, she is too sick to do it so she is sitting here to get the credit and I am doing the work."

Sorry, meant to answer the question

and ended up venting a little,

Hope you can find some help

in the answer,

Sandi

ccc

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03/14/2008 20:45
JanfromTN
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My ex came home one night after work, after 20 years of marriage, and told me he was in love with someone else and he was leaving. When he left I had 3 children,2 in high school, had lost my job because I had been diagnosed with rheumatoid arthritis and the doctor had told my employer I could no longer do the job I had been doing and they said they had nothing else available but they had long term disability that would pay me to go back to school and get re-trained. I had been going back to school a couple of months when he decided to leave. He kept saying he and I might work things out but meanwhile he was seeing other women because that one hadn't worked out. This went on for a year and then he tried to commit suicide and 3 women showed up at the hospital to see him and it was as if God said it is over. I had been taught that divorce was wrong, but I finally seen that I didn't have to live with this stuff. I had 38 cents in my hand and no money in the bank when I told him we were finally and completely done. I did own my home though and I got it in the divorce so we didn't have to worry about a place to live. My oldest daughter was working and helped with food, but didn't make enough money to support all of us. I was also taking methotrexate for the RA and I had to take it on Sundays only. I would get so sick on it and I would stay sick until Tuesday afternoon and then I would start to feel better. One day I sat down at my computer and I started praying, I said Lord send me a job or something because I don't know what I am going to do. Just then a car pulled into the driveway and a man that my daughter had babysat for came up and said he needed someone to take care of his son Tuesday thru Saturday nights while he worked. His wife had left him and he didn't know who else to ask. I was so thankful for that job. I had finished school but was so sick on the RA meds. that I couldn't hold a full time job. My brother had asked me to go to church with him and I went one Sunday and that night met the man who I am married to now. So don't give up. There is life out there after Ra and fibro. I am sorry this turned into a novel. I just wanted to give you some hope and encouragement.

As for the kids, my neice asked me the other day if I used to play before I got old because I don't feel like playing with them most of the time.

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03/17/2008 16:46
daniixellie
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Hi ladies!

My mom's the one that started this discussion and I thought I'd drop in and say a few words.

First of all, I'm her second oldest child, one of the two that doesn't have disabilities . I'm still in high school, which I am very active in. I get decent grades and have the right friends. Overall I could probably say that our lives are close to everything I could want.

But when my mom was diagnosed with fibromyalgia (which, by the way, I spelled correctly on my first try ) things changed. She became very tired, always in a lot of pain and for a while, I though she was faking it..SORRY MOM! It was just impossible for me to believe that my mom who was full of life, was just worn out and done. Even after she was diagnossed, I had my doubts. I had never heard of fibro before and thought it was just a make-up condition doctors used when they really didn't know what was going on. I totally thought wrong. It's pretty much an every other day type of thing for her but lucky my mom is the way she is and she constantly fights through it. She still takes me places like today she went clothes shopping with me which has proven to be an obstacle in the past. I wasn't expecting her to do half of what she did for me and I was very very proud. She refuses to let this get in her way. She helps out so much when she can which makes it easy for us to let her crash on the couch on what she calls "fibro days".

However, it breaks my heart because she is constantly apologizing for the way she is. Mom if you read this, which I know you will, just know that it is perfectly fine. There is nothing you can do or could've done to avoid this. We still love you

Ladies, this goes for all of you. I can say, as a child with a fibro parent, that your child loves you just the same, if not more. This condition is not the end of the road for you, it's just a huge round-a-bout thats pointing you in no specific direction. You just need to get off at the right time and continue on before you are forced to go around the circle once more. Yeah, I'm not sure if that made any sense but I thought it sounded cool so if it helped at all, great .

Well, I look forward to giving you updates from a different perspective and even though I'm just a teenager, feel free to ask any questions you'd like!

Much love from a sympathetic teen<3

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03/17/2008 21:17
Smiley
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GOD BLESS YOU! Your mother did a super job raising you, and now you are one incredibly great lady. I hope you have the most fullfilling life, and have an incredible future.

You made my day!

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