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03/09/2008 18:34
mommyofsixFriend2U
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I just joined this group earlier today. My other post didn't get any replies so I thought I 'd write a little bit about me. I am 40 and have 6 kids. I was diagnosed in Oct with Fibro. I have had 10 surgeries in the last 2 years. I had a very complicated pregnancy and had to have a c-section hysterectomy. The doctors made a mess of my insides while trying to save my life and that of my daughter. This is why I had to have so many surgeries. I had a fistula in my bladder and colon. Then I had several large masses in my pelvic area. Thankfully not cancer! Still a very frightening experience. Now after my last surgery I thougt I was going to get better and be able to enjoy my children and life again. NOT!!! I started having trouble getting out of bed and pain in my muscles and joints. I thought it would go away but it kept getting worse. Went to several doctors and finially was dx'd with fibro. It has been 9 months without any relief from the pain and I don't know if I can take much more. Somedays I think that it would be easier to be dead than to live with this. I can't even take care of my family and feel like such a burden on them. It is hard when they don't understand what I'm going through and that I need them to help. They knew after my surgeries but how do I explain fibro to them? You can't see it. It just sucks!!!Well that's enough from me. Take care everyone! Chris
Your Friend, Chris
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03/09/2008 18:46
savedone
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Oh my dear you sure of had enough!! I will pray for you,,god has been there for me ..I let him into my heart,,I am born again!! my walk with christ has been awsome... " Let Go And Let God" He is going to be up any way!! If you need strength we are here,,Lesley/savedone
I HAVE BEEN STUDYING UP ON FIBRO. I HAVE DECIEDED TO DO IT NUTRIONALY, AND USING AS LITTLE MEDS AS POSSIABLE!SCIENCE HAS FOUND WHAT WE HAVE BEEN WAITING FOR!NOW WE CANIMPROVE OUR HEALTHWITH WHAT GOD HAS PROVIDEDNATURAL.WITH HIM ALL THINGS ARE POSSIABLE!!!
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03/09/2008 18:49
DoDo
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Hello Chris, and welcome to the family! Sorry things have been so rough for you.

Everyone here understands what you are going through, and we are all here for you!

Lorna

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03/09/2008 19:24
mommyofsixFriend2U
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Thank you for replying. I have a difficult time with God and all of the suffering that goes on in this world. I haven't had much faith in anything but am hoping to get better at it. It seems like some people go through a life time of pain and suffering while others have it so easy. Not fair! Not God's fault but easy to blame. I'm not sure how to let God in my heart. It is nice to know that others care and understand. I hope to make some new friends and maybe help a few along the way. Thank you sooooo much! mommyofsix
Your Friend, Chris
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03/09/2008 19:43
ALCSS2008
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Chris, wow that must be hard taking care of six children. Lelsey is a born again Christian. I too am born again. This means I believe Jesus died for my sins and I have asked him to live in my heart. IN the Bible, John 3:16 says, For God so loved the world that he gave his only begotton son, that whosoever believed in him will not perish, but will have eternal life. Sometimes when the rest of mmy life is out of control I know that God loves me and that he is watching over me. To be born again is the simple task of praying and asking God to forgive you sins and ask Jesus into your heart. It means that you will never be alone. Whan I have to have a procedure, I am not alone. When I am in bed and the pain is so bad, I think I will go crazy, I am not alone.

You will love the forum here. We care about each other. I have come to feel close to people I know only by on-line names. I pray for each one daily. I feel when they are sick. I feel when they can't afford their meds. I hope you will feel welcome here. I am sure we will enjoy hearing about your children when you feel like typing. I am sorry you have had such a bad time. I don't know why some of us are chosen for pain and heartache and others are blessed with good health and wealth. I guess each of us is given what we are meant to have and we just have to deal with it.

God Bless you,

and please remember,

there are friends here who care,

your friend,

Sandi in Maryland

ccc

Popular posts by Sandi
    Muscle spasms
    Hip Pain
    Spasms
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03/09/2008 20:32
mommyofsixFriend2U
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There is the saying that God never gives you more than you can handle. What deos that mean? I never really understood that. I have never been a religious person and rarely went to church when I was young. I guess my parents had a bad experience at a church with a fake minister healing people or something like that. I have been in other groups that want you to believe in a higher power and I seem to have trouble getting that. I believe that there is a God and Jesus died for us. I just haven't found inner peace or faith. I will get it eventually but it seems to take me longer to understand religious things. I wish I did! I guess that God has put you all here for support when I can't get it at home or at least not all the support I need. I am very thankful for that. God also blessed me with 6 wonderful, very energetic children. I also know that there are people who are much worse than I am and try to be grateful for the things I do have and don't have. I was in the oncology part of the hospital a couple of times when they thought that my pelvic masses were cancer It was a humbling experience. I just get so frustrated and have all this resentment bottled up. This is the first time that I have been able to express myself freely and to people who understand. it is hard because people treat you like your crazy or faking it when you say that you have fibro. Even my fiance thinks I am faking some of the time. It really hurts my feelings. and they are very tender since being dx wth fibro. Again I want to thank you, friendship is the best medicine. Good Thoughts are going out to everyone. mommyofsix If I post to much just say something. I have noone but my kids and most of them are to young and I don't like to bother the other ones with my problems. They have enough going on just growing up.
Your Friend, Chris
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03/10/2008 04:47
ALCSS2008
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You can never post too much. I too have struggled with what I have always been told that "God never gives you more that you can handle" I actually stood on my front porch last year, when we didnt have any money and the kids needed stuff anda the bill collectors were calling and said " Enough God, I cannot take it anymore" We have learned to look for the blessings. We are closer, because, we didn't have any choice but to spend time together.

I have a strong support system. My parent helped us. When we didn't hsve anything to eat last Christmas season, we spent the time with them and they never said a word-they just opened their home to us. My sister-is a wonderful person. She lives in Texas which is very far away from me. She is a born-again Christan who is an activity director for a nursing home. She calls me so much-----sometimes I have my husband tell her that I am asleep.

I know what you mean about people not believing in fibromyalgia as an illness. This is something we will all have to fight for. As I mentioned earlier in this forum, My mom told me one day that she was supposed to get tested for fibro but she thought it was a crazy disease, so she never went. I told her she should have gone. I guess you will have to take him to the doctors with you and get him some education.

I feel like we are friends here supporting each other. We help each other and inform each other when we can. You can never post too much. Remember the only stupid question is the one not asked.

God Bless you and your family.

hopes for a pain free day

SAndi in Maryland

ccc

Popular posts by Sandi
    Muscle spasms
    Hip Pain
    Spasms
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03/10/2008 06:06
coolmamma
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Welcome mommyofsix ~ You must be an amazing, strong woman for being able to handle that many kids. I only have two and I think sometimes I can't handle them. LOL

One thing I have learned about myself, is that God doesn't give me anything more than I can handle. He always provides a way out. The second line of that is really important...he provides a way out. For me, it isn't always the way I am looking for, but I know that everything always turns out for the best even when it has been difficult to "go thru the fire". Whenever I look back at a situation, I find that I had to go thru it to learn the lessons that were intended for me. It's hard, I know. That is why you have all of us here to lean on for help.

Some of my closest friends are here on this site. You never have to explain the pain...we understand it. Come lean on us when you have questions, need to vent, cry, be silly, whatever you need....there is usually someone here at all times day/night. If there is a pause in responses, it may just mean that your fibro friends are getting a little rest...we will answer you.

So, welcome to the FMily.

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03/10/2008 09:09
mommyofsixFriend2U
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Hello everyone, Thank You all so much! Having friends here makes my day! I don't have many other friends. They all got scared when I got sick and I don't hear from them much. I'm not able to keep up with them anymore and guess it is too much for them to slow down to my pace. You have all been just wonderful to me since I joined and am so glad that I did. I guess I was feeling lonely and uncared about yesterday. It's hard when your family doesn't understand. I have gotten more caring from people I haven't even met than from family. I know that my Dad would have been here for me but he died last year from a stroke. He was a great man! I have 5 siblings (1 brother that died 15 years ago). They are just busy with their own lives and don't have time to help me out. I have been dealing with this alone for so long that now that I have found all of you I am very excited and all of my feelings are comming out at once. I finally have someone who will listen and not judge me. I will have to remember that I always have God beside me too. You have all been wonderful. THANK YOU!!!!! mommyofsix and still have hair Mostlly grey
Your Friend, Chris
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03/10/2008 19:12
savedone
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HI there, my dear fibromite!!These girls have sure had a wonderful way with there words of love and support..Even when you think you are alone ,, "you are not" the lord is always with you!!always remember,god knows we are not perfect,,he know our heart!! The enemy/devil always tries,,DOES,,try to rule us and and contoll our thoughts ...the mind is a battlefield,,satan has realy worked in my life before I new it was "him"the closer you get to the lord the more spiritual warfare you get,, pulling through makes you stronger,,and evertime you have a battle, you get stronger,, then you see how you start to recieve blessings,, when your down just start taking to the lord and praying and a peace comes over you!!,,WITH GOD ALLTHINGS ARE POSSIABLE!!!I have tremendous faith, and I have had many storms,,I dont think you could believe how I pulled throught he muck and mier,,,keep in touch,,,many blessings!! savedone/Lesley

Post edited by: savedone, at: 03/10/2008 21:18

I HAVE BEEN STUDYING UP ON FIBRO. I HAVE DECIEDED TO DO IT NUTRIONALY, AND USING AS LITTLE MEDS AS POSSIABLE!SCIENCE HAS FOUND WHAT WE HAVE BEEN WAITING FOR!NOW WE CANIMPROVE OUR HEALTHWITH WHAT GOD HAS PROVIDEDNATURAL.WITH HIM ALL THINGS ARE POSSIABLE!!!
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