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Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
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FMS ForumsIntroductions & Personal StoriesJust found you guys!
05/31/2009 03:12 PM
grandmalynda
grandmalynda
 
Posts: 71
Member

I belong to 2 other groups in MDJunction and just found the FM group today. I am thrilled. I was diagnosed with FM about 15 yrs. ago. Life was intolerable for a very long time. I joined an online group similar to this one that was very helpful. Eventually I got so depressed that I dropped it and everything else good in my life. After many med trials I started taking Lyrica about 2 yrs. ago. It was my saving grace. I still had fibro and many of the things that go along with it but it was at least more tolerable. The flares were fewer and farther between. But all good things must come to an end, so they say. In Jan. of this year my husband lost his job; along with that went the medical insurance. No more Lyrica (waaaaay too expensive), no more trigger point injections, and no more Tordol injections; all of which were helping to maintain my sanity. Now it's all back to square one. And to add insult to injury, I'm on a new psych med that causes muscle stiffness. Go figure! I don't know if I can stay on this one but it is starting to help the mania. I'm very confused about what to do.

Eventually my husband will be working again and sometime in the future we'll have health insurance again, but my dilemma is what to do in the mean time. I'm looking forward to meeting all of you soon.

LyndaErmm

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05/31/2009 03:48 PM  Top
hatbox121
hatbox121
 
Posts: 10502
Group Leader

Hey Lynda. I'm in that same uninsured boat with you so pass the sunscreen this way! Wink I just wanted to say welcome to the group. It's a great group of people and will give you lots of support and laughs!

Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

05/31/2009 03:51 PM  Top
hopefull1
hopefull1
 
Posts: 1965
VIP Member

Welcome to the group Lynda! You will find a lot of amazing people to offer you support and suggestions. It's great to meet you!

Steffanie
Do you or someone you know have Von Willebrands Disease? Come join us at http://www.mdjunction.com/von-willebrand-disease

Please note that any advice given is not a substitute for getting a diagnosis from your doctor.

06/04/2009 04:36 PM  Top
booklady14
booklady14
 
Posts: 1188
VIP Member
I'm an Advocate

Welcome to our fibro family. We are glad you found us, but hate to get to know you through sickness.

But, I am especially the lost of job, income and medical needs. I pray that he will find another job and then some. But, usually when he gets another job, don't they have open membership, so you don't have to wait 90 days.

I'm, again feel so terrible about your situation, and I hope it ends up soon.

Kathy

Hugs

((((HUGS))) Kathy

we all need "splashes" of JOY in the cesspools of life
3:16...........real joy

I am not a doctor, or in a medical field of any kind. I share only my results or information I have found. If you have special needs, please see your regular physician. Kathy



[IMG]http://i429.photobucket.com/albums/qq12/booklady14/graphic1.jpg[/IMG]

06/04/2009 05:01 PM  Top
aTinaL
aTinaLPosts: 11832
VIP Member
I'm an Advocate

Lynda! I'm so glad you found us, too! Welcome to our Wonderful World of Mighty Fibromites!

I hope you'll hang out with us now that you've found us! You can tell us whether or not we're not the funnest group on MDJ Wink Hahaha!

I can't wait to get to know you Smile

Newbie hugs, Tina

Tina

"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen


"All aboard the suboxone train!"
- Tina


I'm not a doctor, but I play one on tv!
-Tina

Previous discussions I participated in:
Anyone NOT have sleep issues
Fibromyalgia
Hi fibromites

06/04/2009 05:51 PM  Top
BelaBo

Hiya Lynda, I'm glad you found us. Sounds like in the nick of time too. I'm sorry about your situation and hope things get better for you soon. It's no fun being without insurance or meds that's for sure but with our help, you'll get through it.Smile

You may want to contact Pfizer and see if you would qualify for free Lyrica.

http://www.pfizerhelpfulanswers.com/pages/misc/Default.aspx

Pfizer LYRICA Call Center for Fibromyalgia Patients 1-888-5-LYRICA (1-888-559-7422)

Good luck and feel better soon. Welcome to the group!

Post edited by: BelaBo, at: 06/04/2009 06:10 PM


06/04/2009 06:07 PM  Top
shortstuff116
shortstuff116
 
Posts: 1633
VIP Member
I'm an Advocate

Lynda, WELCOME TO OUR FAMILY! I am so excited that you found us and it sounds like you are going through a rough patch. I am so sorry for that.

We are all here to help, comfort, give advice and listen. We all understand that having Fibro and all that goes with it is not easy and not having meds. to help is brutle. Again, WELCOME! God Bless You. shortstuff

Post edited by: shortstuff116, at: 06/04/2009 06:10 PM

Post edited by: shortstuff116, at: 06/04/2009 06:11 PM







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Health Topics: Muscle Stiffness
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