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sweetbean
Posts: 8
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 Hi, I am new here. I just found this group, and happy to say so! I've been reading through some of the chats, especially about family understanding. How hard is it! And it makes me feel better to know that I'm not crazy, others are going through the same things I am. I have two children, girls, ones almost 13 and the other is 5. How horrific is it to tell your children, Mommy can't play right now because I'm in too much pain, or Mommy's having a bad day again. And then hearing, Mommy, I wish you could do things with me like you use to. It breaks my heart! Then I have a fiance, who is usually really good. But occasionally he has days where he gets very angry with me for being in so much pain I can't function. He'll say things like, I refuse to get out of bed, or I refuse to tell my doctor that my meds aren't working and to fix them. Or he'll get mad if he comes home to dishes in the sink. Sometimes he makes me feel like it is my fault or my doing, like I'm putting myself through this hell on purpose. And know matter how I explain it, it's like talking to a wall. He's sais our lives revolve around my pain and med schedule. But then he'll have days where he's so supportive, waits on me hand and foot. Gives me massages, brings me my meds and drinks, he'll even help me bathe if I need him too. I don't get it. I know how frustrating and depressing Fibro is to me, so I assume it is for him too, but when he's not supportive, it makes my pain worse. I don't get it. Doesn't he realize I'm living in hell inside my body and I can't get away? And that's just what I live with, forget everyone else. Know one gets it, no one! Sometimes I just want to pack my kids up and go far, far away, and start over. Tell know one I meet anything, and pretend I'm not sick. Anyways, God I'm sorry, I've just been blah,blahing and complaining.... I guess I'm just so excited that I found a place to talk and vent to real people who understand! I look forward to getting to know some of you, and maybe I won't feel so alone anymore. Sweetbean Sweetbean |
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Mona
Posts: 10
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Hi I just joined yesterday and, it’s totally cliché but (if it helps to know) I understand you. I feel your pain. I wish I could reach through my computer right now and hold your hand and hold you and your girls and love on you just how all people with this debilitating illness deserve to be love on. Like I said, I just joined but WOW; these people have been so kind already. You feel free to post me or any of the other members in this group, they are so supportive and great at listening. You are so brave for seeking out this great and healthy release. Use us for everything; for your pain, frustration, anguish, joy, praise, and support. Don’t ever beat yourself down saying your complaining. It is not only natural for humans to express emotion… its healthy. When we think negatively, we feel even worse. Please don’t take this as a lecture, a righteous, superficial or unauthentic response to your pain. I suffer so much as well, but in the last 20 odd hours I’ve been on this site I've already found that its better to share with those who understand your pain, and let them help and support you then keep it all on yourself. Thank you so much for your honesty and willingness 
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booklady14
Posts: 408
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Ladies, I forgot your names and since you have both entered our great group at the same time, I'll address you both. Welcome to our group Be assured that at any time you can come to this site for help, surport and encouragement. And almost everyone here will let you (pm)them.Don't give up and all of you hang in there ((((HUGS))) Kathy
we all need "splashes" of JOY in the cesspools of life
3:16...........real joy
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sweetheartsuzee
Posts: 1030
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Hi and WELCOME! You're gonna be soo glad you've joined us! We DO understand! We're right here with you! Every step of the way... I know how you feel when you say you would like to pack up and go somewhere and not tell anyone you're sick. But that wouldn't work! You ARE...and everyone would find out anyhow! There are a lot of threads on here about non-supportive spouses....please, search them and read them. YOU'RE NOT ALONE! We've even had spouses get on here...just to look and see that there are more ppl than just THEIR spouse and some have even posted and joined as well! Feel free to pm me anytime, for anything! I'm here for YOU and here for ME! Again, welcome to the group! {{{{Fibro Hugs}}}} ~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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truckin_angel
Posts: 168
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Welcome to the group, so good to have you here. These group is definately wonderful!! Sweetbean, I have a son that will be 16 tomorrow but was 14 when i was diagnosed. He is so sweet and helps whenever he can (most of the time). He tells his teachers at school he needs to hurry home just in case i need him for anything. He tells his football coach during football season I cant come to the game so be sure to have the games taped so i can watch them on tv. My daughter is 14 and was 12 when i was diagnosed. She is a big help as far as the housework when she doesnt have homework to do. When i was diagnosed i sit my kids down with some info i got off the internet and read a few things to them, talked to them about what fibro is and then they looked things up for themselves and that helped alot. I have never been able to play with my kids in the yard or ride bikes because i have been sick for a long time but diagnosed just 2 years ago. Sorrry for going on and on. If you want to chat just give me a yell, im usually always here. Today is my son's b-day party so i am gonna take his shopping for his b-day. Hugs to both of you, Alicia |
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BLB
Posts: 300
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Welcome and I am new too...I am having one of those days that even my clothes hurt....so I totally understand...and so does my husband..he just get frustrated that he can't fix me... |
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psk
Posts: 272
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You're so lucky to have a husband who understands. Mine isn't as supportive (but he thinks he is). He gets mad at me because he thinks I sit around feeling sorry for myself all day. When I told him about this group he said "Good, you'll finally have someont to talk to."
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BLB
Posts: 300
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He is probably frustrated too...he doesn't know what to say and he can't fix you either...Group hug!!!! |
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psk
Posts: 272
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 BLB, youre so right. It's just that he takes his frustrations out on me by starving me of the emotional support I need. Thats one of the reasons this group has grown to mean so much in such a short time. YOU GUYS REALLY DO UNDERSTAND.love, psk |
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cindylouwho
Posts: 16
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My husband has been a completely different person this past week. Calling me at work (cause he's on night shift) and offering to make supper, or get the potatoes started. Never fusses anymore if I say I'm tired, or I just need to rest for a bit.He's been SO NICE, I should say NICER than his usual self LOL! He's always nice. It's amazing...he's got full blown diabetes and has had it since he was 32 (now 10 years older) and I have been watching/taking care of him. I think now he feels it's his turn to take care of me. I am stillw orking 30 hrs. per week at my job, but I tell ya, every day is a chore for me. My eyes burn and ache and are so dry, I am so exhausted all I want to do when I get home is lay around and I know that's bad, but what do you do when you JUST do not want to move. I can't take a short cat nap usually because I have a 5 year old that needs mommie's attention. I go to bed earlier now but that doens't even help |
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