Fibromyalgia Support Group

Currently living in Georgia but we are relocating to Texas! I just joined today and am SO glad I found you all!

Welcome to our group Tara and big Fibro Hugs to you!!

Thank you Kgrin! I see in your most popular posts that you have Fibro Fog Moments. I'm still learning the symptoms that are associated with Fibro.. The brain fog has been the most frustrating thing for me even though the pain has been unbearable at times. I thought I was getting Alzheimers or something. Wow I think this site is going to give me way more than I anticipated as far as understanding and "freedom" from the "UNKNOWN" that go with fibro.

Tara this is a great group of people for sure.. I count my blessings every day because I have people that understand even more so then my family, it's great.. Yes the fibro fog is a huge deal for a lot of us.. I have learned to laugh at that part of it more then anything.. it helps for sure..

Tara! Welcome to our Wonderful World of Mighty Fibromites1

We're excited that you've joined us

Please, please make yourself comfortable and feel free to poke around and post, post, post! Getting really involved with the group is the best way to get as much out of it as you can and make a lot of splendid friends in the process.

What part of Texas are you moving to? We have several members also from TX. Are you happy to be moving? The subject of moving came up a couple weeks ago, and most of decided that that with fibro you either need professional movers or you stay put

I'm in the stay put category. I've told my hubby he better get used to the fact that we'll live and die right where we're at, lol!

Anyway, post away, because we're all excited to get to know you

Relocation hugs, Tina

Hello TINA

We LUCKILY have a company moving us. They are supposed to be packing us and moving us and then finally UNPACKING US as well. We'll be moving either the end of June or beginning of July.

We are relocating for my husbands job. He will be reporting in Waco TX. We found a home on or close to Lake Whitney that the company is going to also pay for for a year YAY! That's all we know so far.

I'm looking forward to the move since it will be taken care of. On the other hand...we moved in Jan. when our lease was up (because I knew we were relocating we moved into a very cheap temporary place). My husband was in ITALY for training and It all fell on me. I had to hire someone to move the furniture of course.. But it took me a month literally to move and pack and unpack all of the little stuff.. Honestly I ended up putting most of our things into storage.

I literally could not get out of bed for atleast a week once we finally turned our keys in from the other place. I still haven't fully recovered. On top of that I fell down our front steps during the rain and herniated a disc in my neck and fractured my right ankle. I couldn't understand why after a month I still had swelling and bruising that didn't go away.

I broke out in Hives because of the pain meds and thats when I got referred to a pain clinic. I still have the hives after almost two months but they are just now diminishing some. I haven't been able to take even a tylenol because the hives and itching are so bad.

It was the pain clinic that tipped me off to fibromyalgia. They treat it all day long and basically said I was a text book case.(If ever there has been a text book published on fibro. LOL)

I haven't been Diagnosed Yet. But I will be seeing a specialist in the near future. I've been in denial for years. I knew years ago that I fit all of the known symptoms of fibro. I'm embracing it now. When I get the diagnosis it won't make any difference emotionally...I've come to grips mentally and am trying to learn as much about treatment and symptoms as possible.

Thank God for you guys/gals!

You poor baby! OUCH! Ouch, ouch and more OUCH! I'm so sorry that you went through all of that

I'm glad you've got someone this time to do all the stuff for you! You certainly wouldn't want to go through that again!

I was the opposite of you. I suffered for 5 years without a clue as to what was wrong with me. It drove me crazy. Misdiagnoses right and left. When I finally got the dx of fibro, I was like, "Yeah, right, Mmm-hmmm." Then I got home and checked the symptoms on the computer and it all finally fit!

I've been happy, pain-ridden little camper ever since! Mostly because I joined this group the same day. It has made a huge difference in my life.

I hope, Tara, that you're going to enjoy it here as much as the rest of us do.

Owie hugs, Tina

Wait a minute...You mean to tell me that YOU CAN BE PAIN FREE ?????? IT IS POSSIBLE?? I thought I was gearing up to bear pain for the rest of my life. I thought the Docs would have me try every exercise known to man and then just shake their heads and say "SORRY You have to live with it and make the best of it" YOU MEAN TO TELL ME THERE IS HOPE??????

I honestly am so new to it I thought there was really nothing that truly would help. That is exactly why I am here... I'm trying to learn about the treatments the syndrome itself and what "I" should be doing to help myself. GEEZ

WOW Im blown away literally. TELL ME MORE! How did you become pain free???

Oh, sweetie1 I said pain-ridden Not rid of pain

Although, to be fair, I was kind of joking. I'm doing so much better now than I was before.

Having the right doctor is paramount. I actually just started with a new one, and he did give me a lot of hope. He said he believes I can return to my former glory, but it's going to take some time and a lot of work and dedication on my part.

I started a few supplements a little over a month ago that have worked wonders as far as I'm concerned.

There is a new drug just out, called Savella. I've been trying to get on the phone with my doctor all morning for a script, but I keep getting side tracked. Can you imagine that?! A fibro fog head getting side tracked!

Diet is important. Just eating healthy. There are some people who swear by certain diets. I say more power to them. I'm too fogged in most of the time to try anything that complicated.

Heck, even just taking better care of myself turned out to be more difficult that I had imagined. When your sick, hurting and tired, it can be very difficult to make right decisions and follow through on them.

I will say, though, that hands down, the best thing I've done for myself is joining this group.

I'll give you a for instance. I thought it was my "dirty" little secret that I take showers as little as possible because they exhaust me beyond reason.

Someone brought it up in a thread one day, and it turns out that the majority of us are exactly the same way! You don't know how liberating that was! I got all excited like a kid in a candy store, lol!

That's why you're in exactly the right place. Frequently we find that the group knows more than many doctors do.

There have even been a couple of people with doctors smart enough to know that!!!

Wow, that was a long winded post on my part. I guess the crux of it is that yes, there is definitely hope.

Chatty hugs, Tina

Well there ya go! Brain FOG on my part. I swear sometimes I think I'm retarded lol. I read that a couple of times and it registered the same way in my head both times.. Pain ridden....Rid of pain..etc.blah blah..but yea, I've tried SO many things over the years with the MANY diagnosis's that I've had...Different diets/supplements...chasing down all of these exotic natural substances to drink/eat... Wheeew.. talk about exhausting.. and nothing helped.

Yea, I miss a shower once or twice a week. But I try to atleast freshen with a wash cloth.. I almost NEVER take a bath anymore though..TOO hard to get up out of it. I can't even catch myself during a fall if my knees are bent..No strength in my legs. I fall a lot..

Does anyone else have dizzy spells with fibro? Not just where you are dizzy...but spells where all of a sudden you just about go down cuz everything spins including the sensation you have in yourself...Then it clears up in about 20 seconds or so.. Weird!