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02/17/2008 08:17
MarieJune
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Hello, everyone. I am Marie. I'm 27 years old, and a single mother of a 5 year old girl, and 12 month old boy/girl twins. I was diagnosed with fibromyalgia in 2003, but had symptoms since 1997. I also have chronic fatigue. It's rough and most days (especially during the winter) I just want to scream...but thank the Lord for these kids being in my life, because they force me to realize there is a hope, and a chance of happiness even through the agonizing pain. I accept the disorder finally...took me years! And now I fight the fight and won't let up. I went to the rheumatologist 2 weeks ago and they diagnosed me with 14-15/18 tender points inflamed. I am like a 90 year old woman when I first get out of bed in the mornings...stumbling around, and dropping things, as though I don't know where my hands are! (*giggle*). It is so hard to not be able to just be a normal 27 year old, jump out of bed, feed the kids, shower, and get going. I have to take my tramadol, make a coffee, and sit down, worried I may drop a child if I try to attempt to do a diaper change, feed them, etc....so I patiently sit and wait for the medicine to kick in before attempting to be super mom. Other than those things, I guess my life is really good. I make the most out of everything...I guess I sort of have to with this battle...

Well, what about all of you? If you made it this far through my biography, please tell me about yourselves. It is really nice to meet you and I am glad to be part of a group that focuses on Fibromyalgia. (((((((((((((((HUGE HUGS)))))))))))))

Post edited by: MarieJune, at: 02/17/2008 10:20

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02/17/2008 08:33
sweetheartsuzee
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Welcome!!!

I know what you mean about having to take meds and sit and wait for them to kick in before I even attempt to THINK about doing anything!!! We have the same morning ritual as each other!!

We're a really close group! We all care about each other soo much, it's unbelievable! I've never had such good friends...EVER!

I'm glad you've found us! Post away girlfriend...ask, do tell, answer, vent, cry, laugh, share...WHATEVER!!! Do it with us!! Don't be shy...jump right in and join us...you won't be sorry!!!

{{{{Fibro Hugs}}}}

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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02/17/2008 09:54
wildfire826

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18 tender points that is alot. I was borderline at first and thats only because he said tell me when you cant stand the pain when I push all of them were very painful but I could stand them so i didnt know when to tell him so I think he came up with the number by himself on the ones I moved and wanted to kick him for touching so I really don't know my tender points. All I know is I have knots all over on a good day in my chest and under my arms it feels like I have tumors its bad.

I feel your pain with your kids sometimes I wish I could do more. And other days I am so glad they are here because even though they make me crazy and I wonder how I am going to get everything done. They keep me focused and sane if it wasnt for them I think I'd just lay in bed all day and sleep

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02/17/2008 13:07
teri hayes
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welcome to the group. great bunch of people here all willing to listen and help.
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02/17/2008 19:36
singingangel
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I start my day reaching for my meds so I can feel halfway normal. I am lucky that my kids are grown.One is married and the other is 20 but lives at home. It was hard when my kids were little. I lived on the couch trying to be the best mom I could.

Welcome. As you can see we do understand your fibro. We are caring and tell you what we can. We can be silly or just answer your question. Welcom again.

I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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02/17/2008 21:24
kychick
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Wow...........only 27. At 27 the only pain i ever felt was self induced.LOL I am glad for everything i did now,right or wrong,because at least I had the opportunity to really live life and didn't start falling apart until i hit 40.I really respect those of you that have small children or are trying to keep working past the pain. You guys rock!!
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02/18/2008 01:14
hipmama42
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Like everyone has said, welcome Marie June! It is hard enough to take care of kids that young when you are totally healthy! And I cannot imagine having that level of pain at your age either. I understand how you feel about your kids being the main thing in your life that keeps you going and gives you hope amidst the pain and fatigue. I hope you have some people in your life, friends and relatives who can help you out with the workload.

I was beginning to have symptoms when my kids were toddlers and it was very hard. Looking back on that time, I don't know how I made it through

and it all seems a blur to me now. Now that they are 10 and 12 they can take care of themselves and even help me out, so that is something for you to look forward to. Also I believe they are kinder and more comopassionate kids, although we do have our rough days when they resent me being in bed so much or having to cancel plans. I have learned not to promise things ahead of time so I don't have to let them down so often. They also know that mom needs at least an hour in the morning after getting up for her meds to kick in, and coffee of course.

I'm glad you found this site; everyone here cares and understands.

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02/18/2008 08:17
TeainTN
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welcome marie june!! You really seem to have a positive attitude about this illness. You really have your hands full but I know what you mean about the children giving you hope. I have 3 ages 12,10 adn 4. I've had this fibrohell for 20 something years. I'm 41, today! I've learned how to live with it I guess. I hate having to change plans at the last moment and knowing I'm the reason the family doesn't get to do something just kills me. I try to get them to go ahead with the plans and leave me at home but they usually won't, they want me to be with them. I'm the more crazy one in my marriage. The kids like that.

I'm so glad you found us, I have made some very good friends here, the best ever. Everyone here understands what I'm going through because they are right there with me. We laugh and cry together. welcome to our little family.

Post edited by: TeainTN, at: 02/18/2008 10:19

There is a light at the end of the tunnel -- but it's a train about to run over you.
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02/19/2008 06:12
desertmom54
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Welcomr Marie, some days Im a day late on here. I was DX in 1998 but sure I have fibro longer than that. Im 53 years old and cant imagine being in that kind of pain at 27, when I was 27 I was haveing my last child. I have worked all my life waited tables for 30 years. In 2003 I went to work for Dollar General as a general Manager. and thats when it realy hit me. I worked so hard and didnt have time to be in pain. but after two years I had to quit the pain had hit full force and now I cant harley get out of bed, well I dont sleep in the bed and havent for months. I sleep on the couch or recliner as I dont want to keep my hubby up nights cause he has to work. I received my SSI in June 2007 . I have 4 grandkids and 4 grownkids. Its just me and my hubby and my 3 little doxies at home. This is a great group and you will love it here.
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02/19/2008 14:52
MarieJune
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Thank you everyone for all your kindness and hugs. I know already I have found a wonderful group...now if I can just find the time in between taking care of the babies to log on, that would be a plus! lol. (((((((((((HUGS))))))))))
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