A few days ago I was reading a MayoClinic Article on Fibro. I found ME !!
Most of the symptoms I read applied, though not all did. Neuropathy/Neuritis/Neuralgia (I refer to this at the N's)is the diagnosis I have at the time. When I first started having ALL my problems.3 1/2 years ago. I was checked because the neuro suspected I might have Multiple Sclerosis.. and I didn't. He also checked for a brain tumor (none there).
I'm 36 (37 next month). All the N's were diagnosed officially about a year or so ago... but all the symptoms started about 3 to 3 1/2 years ago.. I just read a few days ago that Fibro usually occurs in your early to mid adulthood.. and more likely in women and IS hereditary... and can be affected by the weather.. I just, a few weeks ago, told my PCP that I feel sure my pain is worse during bad weather and she blew me off.. I have had many, many test to rule out all sorts of stuff..EEG's EKG's, 5 MRI's, CT Scans, whatever the test is to check for Carpal Tunel Syndrome, General X-rays.. lots of test in the doc office checking my nerve endings and responses... so many different test I don't remember what they all were...
My first Neuro sent me to check for the Carpal Tunel... when that was not the case he decided it must be MS or I had a brain tumor. Turned out not to be the case.. He finally decided I had a stroke ...at 33... I went to two other neuro who said that after reviewing all the test and records they do not believe I had a stroke... That is when I changed to the neuro I have been seeing for about 3 yrs. I ended up with a diagnosis of Migraine w/aura (OK, I do have that too) and then more recently when I kept telling the neuro all about this pain (every time I go in there) and how it has never GONE AWAY.. I got the N's diagnosis (about a year or so ago)..
UPDATE:
I went to my neuro today. I told him ALL my symptoms (in detail). I gave him all the info... what I feel, how I feel, when I feel and what brings it on. Med problems, as in Ibuprofen doesn't work anymore.... He asked me tons of questions... including tired, fatigued, trouble sleeping, etc ... He told me he wants me to try Elavil.. and come back in 6 weeks.. I never attempted to diagnose myself.. I just told him the facts.
He then told me "Listen to me, Tracey" ... "I have been treating you for several years now.. We have done every test under the sun... I know your history... we have ruled out many things... and with the symptoms you have been describing to me for a while and with what you are telling me now... I feel pretty sure you have something called Fibromayalgia !!!!"
He wants me to please try this med and when I come back he wants to send me to the Rheumatoligist down the hall. He called his name and told me he specializes with Fibro patients...
He also sent me for bloodwork just to be sure I am in overall good health otherwise... I was floored, but very happy that maybe I won't have to fight to get treated....
I was telling one of my best girlfriends this info today... Her mother who is like a 2nd mom to me is a massage therapist... She works with several Fibro patients.. I didn't realize her specialty is deep tissue and pressure points !!! Yay ...
Today I rec'd a preliminary diagnosis of Fibromyalgia.. and will be going to a Rheumy in a few weeks for clarification.
Does anyone have any information or experience with Elavil.
I would like to get to know people here and hopefully get some insight and maybe learn enough to share with others soon.
Post edited by: Tracey, at: 08/11/2007 01:50
Post edited by: Tracey, at: 08/11/2007 01:56
Post edited by: Tracey, at: 08/11/2007 01:58
Post edited by: Tracey, at: 08/11/2007 02:02
