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janiliz  Posts: 210
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Hello I'm new to this group. I found it yesterday as I was just beginning to recover from the worst flare up I have ever had and was searching on line to see if anyone else felt like this. Sooooo glad to have found this site. All week it has felt as if my whole body has had a really bad migraine, I had brain fog, nausea, headache, neck pain and the worst hip and groin pain I can imagine. Today the pain has largely subsided but I feel really spaced out as if I have got off a huge roller coaster and am having to find my feet again on firm ground - still a bit wobbly. In all of it I found heat (hot baths, hot water bottles) the most comforting. Thank you all for your comments and advice. It has been truly comforting to find others who experience the same things as me though I wish none of us had to go through it. God bless, Janiliz |
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txmedicalfreak Posts: 650
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janiliz~ Welcome to the group  I am always like a roller coaster, one day I feel fine and the next I am hurting and can't get up. Not to mention the fact that I never can think or remember ANYTHING  Hugs, Mandy You can also find me as group leader in the Thyroid Cancer Support Group http://www.mdjunction.com/thyroid-cancer and the Parathyroid Gland Support Group http://www.mdjunction.com/parathyroid-gland
Synthyroid 200mcg, Calcitroil .5mcg, Vitamin D 50,000IU, Metformin 2,000mg, Tramadol 200mg, Cycobenzaprine 5mg, Clonazepam 0.5mg, Furosemide 20mg, Calcium Citrate 1,000mg, Magnesium Citrate 800mg, Cyanocobalamin (B-12) 1,000 mcg, Iron, Lyrica 50mg
Peace =^./.^= Mandy |
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janiliz Posts: 210
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Thank you Mandy. Its such a horrid thing - I just can't work out how we can hurt so much but nothing to show for it. Mind you I am glad I have finally discovered what's causing the poor memory I was beginning to get really worried. Hugs back, Janiliz |
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txmedicalfreak Posts: 650
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Janiliz~ I hear you, before I got diagnosed with FM my husbands grandmother found out that she had been having mini strokes. When these started before any of us found out, she started saying "I just keep forgetting my words?" I thought OH GREAT, not strokes for me too... Luckily it is just FM, CFS, anemia, etc... Mandy You can also find me as group leader in the Thyroid Cancer Support Group http://www.mdjunction.com/thyroid-cancer and the Parathyroid Gland Support Group http://www.mdjunction.com/parathyroid-gland
Synthyroid 200mcg, Calcitroil .5mcg, Vitamin D 50,000IU, Metformin 2,000mg, Tramadol 200mg, Cycobenzaprine 5mg, Clonazepam 0.5mg, Furosemide 20mg, Calcium Citrate 1,000mg, Magnesium Citrate 800mg, Cyanocobalamin (B-12) 1,000 mcg, Iron, Lyrica 50mg
Peace =^./.^= Mandy |
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bc1028 Posts: 3377
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Janiliz, welcome to the group, we are so glad that you have found us and can relate to us. It is so comforting to know that others are going through the same thing even if it is not pleasant. I know what you are talking about, after a flare up, my body feels like it has been beat up. I can hardly move. I notice that before a flare up, I start getting very foggy and mixing words or forgetting them. I am glad that you are starting to feel better, plese continue to look around and post wherever you want. Again Welcome. |
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Janilee
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Hi janiliz, welcome to our fibro family. I'm glad you found us. I happy that your flare is finally going away. My flares don't last that long and I don't have to take meds for the fibro or the pain either. Keep posting so we get to know each other better. Hugs Jan |
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aTinaL  Posts: 11832
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janiliz, welcome and what a pleasure it is to meet you! I actually do find that hanging out here generally lowers my pain level. I guess it's all the yucks we share as well as having people to commiserate with you when things are bad. I'm glad you're coming out of your flare! And now you have found us. I think you have a win win on your hands! Yay! Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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janiliz Posts: 210
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O my gosh you guys are just brilliant! You have no idea how alone I have felt living with this thing. I am a single parent with 2 great kids, I live in a very rural part of England where no one as ever head of FM. I keep going through it all as best i can cos I have to work and have to run the kids around but whenever I try to explain to someone how I feel when I am going through a flare that look at me as if I've lost the plot cos generally I look OK. Actually there is one very dear lady now in her mid 70's who lives s not too far from here and suffered very badly with ME she and I have good conversation as she really does understand. My eldest has just passed her driving test which is such a help as she is able to do a lot of the running around for me when I need her to. My son has just started his driving lessons too, as much as I love them both it will make a huge difference to me when they are less dependent on me. God bless and love to you all, thank you for your replies and for just being there. Janiliz |
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0hCasty Posts: 2917
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Janiliz I am so glad you found us. We all know the look you're referring to. You will not get that feeling here. This place is such a relief to know so many people totally get what you mean and you don't have to explain yourself here. Now if we could figure out how to live next door to each other we would have the perfect world! I hope you are finding all the many discussions alright but if you wonder if we ever chatted about a certain topic you can use the search field and add on to an old discussion or start a whole new one. I made a poster that describes what you were talking about. Feel free to use it for awareness purposes but not for profit. Welcome to the lot of us! I know you will fit right in!  Love,
Casty
We are NOT insane, we are in PAIN!
Who are the Jones' and why do we care what they think? |
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dreaming3671 Posts: 194
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I am new too. You sound like your yesterday is my today and that is why I came a lookin for the group... I felt so alone with all this pain...really sucks but glad to have found you all , kind of like an oasis I think my memory has been ALOT better since my md put me on celexa but it was so bad before that it was hindering me at work and I would just come home and cry and I was terrified that i would forget something critical with my kids ... it was terrible so I am thankful for the celexa and the one week of no pain that came when I started taking it... it all came back of course but I keep on marchin and this too shall pass??!! |
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"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)
