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trk
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Hello everyone, I am so happy I found this site. I was beginning to feel like an alien. I was dignosed with fibro in oct of 07. Had never heard of it until then. I am 33. I have three wonderful teenagers and a wonderful husband who I just married in July of 07. I lived in a horriable marriage for years with my x. I sometimes wonder is that why I am now sick. But I guess I would blame him for world hunger to so I probaly am being unfair in thinking that. I just know that I was under stress for years then my life turns around and I am as happy as can be and then BAM I start falling apart. That makes me want to cry. Last year I completed my GED and started college. A long lifetime dream of mine. I only have two months left and Im not sure if I am going to be able to finish. Get this, I am / was going into the medical field. Once again this makes me want to cry. At times I get so tired of the aching, burning, confussion, memory loss, tiredness, depression, ect ect. Even with meds it still hurts. Then I think if I have a hard time carrying on a conversation how in the world can I work in the medical field. Granted, its not all the time but still I am scared this will be a problem. I dont know to just give up or push myself. At times I dont want to go out of my house. I dont want to answer the phone, I dont want to have to think. Then at other times I think this must be in my head. I am just lazy. But this burning is so real. I talk to my friends, family coworkers but I feel like they cant understand. God knows I wouldnt have until now. Please someone talk to me, tell me I am not crazy or tell that I am .... at least I wont have to wonder then. Should I give up school. Right now I work full time and go to school full time. Come Monday I am cutting my hours back at work. School I am still undicided about. Thanks for listening and thank God for whoever opened this support group |
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BeachBum
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Hi and welcome, This site is fantastic, you right about that, and I'm sure you will get lots of much needed support here. I can not tell you what to do regarding school, because I am not you and I can not feel just how bad you are hurting. All I can say is that if you have 2 months left, and it has been a life long dream, that you may regret it if you don't finish...I would try to do it, thats if it were me. You never know what life will bring you, but from what I have learned on this site this illness doesn't seem to get much better over time, probably worse..so if you can tolerate it, and its not to stressful, seize the day try to keep going, if it becomes too much you can always stop, but it sounds like you may very well regret it if you don't finsh and get your GED. Just my thoughts...but again, this is just me, you ultimately have to decide for yourself, with whats best for you! =) Post edited by: BeachBum, at: 02/08/2008 10:18 |
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trk
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thanks beachbum for your reply. I was thinking about maybe just taking a leave for right now. My husband thinks its a bad idea. I dont know if he understands just what a struggle this is. He is supportive and he really takes care of me. When I have one of my "fibro fog" days he is the one I want to be near. I feel safe and know that he is going to take care of me. I feel like if I take a leave I will be letting him down. He believes in me so much. I feel like I will look like a failure to everyone. But I am not sure how much more I can push myself. This class is the toughest yet. I have four test that I have to score nothing less then an 100 to pass the course. How in the world am I going to do that when somedays I have trouble putting a sentence together. I have moments where I just sit and stare. Anyone else go thru that.... I read somewhere that is sounds like fibro fog |
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BeachBum
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Trk, you have to do what right for you and your body. You know it better than anyone else. I'm sure your hubby(who sound amazing) will be behind you 100% no matter what you decide. It is wonderful that you have someone that you can lean on and trust. You are not a failure...you are raising 3 teenages, that is a huge accomplishment in itself! You are the only one that can answer if it's too much for you...and don't feel guilty if it is, it's okay. We are all finding things that we just can't seem to do anymoe. And as far as the Fibro Fog goes...yeah everyone here knows all about that! LOL Hang in there, and stick around...everyone here is great! |
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trk
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what has been your experence with fibro fog? With me I will be sitting there staring off and I hear someone asking me something but I just cant or dont answer. Then it usually follows with crying and confusion |
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trk
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oh yeah, is extreme tiredness part of it to? cause I mean, sometimes I would rather pay to not have to walk across the room |
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wondervixen
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When I have fibro fog, it causes me to have serious memory problems, problems concentrating, being unable to put thoughts or sentences together properly, and that confusion and spacing off that you mentioned. Sometimes I feel really stupid, because I don't "get" stuff, you know? Anyway, you are certainly not alone. This is a very common side effect. You have to do what's right for you, and not worry about letting people down. That is one thing that you will learn in your journey with FM. We try to do all the things we used to, and be everything to everyone, but we can't anymore. Our loved ones have to come to understand that we have limits, and even if they never understand, we have to realize that is their problem. You have to take care of yourself. I hope it works out for you. |
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trk
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thanks, your right it is hard to accept that we cant do the things we use to. Does anybody know what causes this condition? Like right now my arms and legs are on fire. It has me so irritable. I wish I could take off my clothes and set under a fan. Not possiable at work! |
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spruce1
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Welcome Trk, I realy feel for, especially being fairly new dx. When I was first dx I kept waiting for it to go away. I pushed and pushed until I couldn't push anymore. Stress affects this condition terribly. Learning to pace yourself and trying to find a balance is very difficult thing to do. Only you can read how your body feels and needs to decide what you can and cannot do. When you say tired, if your describing sleepiness, that's not my kinda tired, it's exhaustion and fatigue and everything feels like work!! Taking a shower wipes me out for the day. I can't plan to do anything on the day I take a shower. It's this your probably talking about. It's like someone drained your blood out of you, right? The burning is something you need to talk about with your doc. I get burning in different parts of my body. It alsmost feels like sore skin for me, like a slight burn. When it hits your feet, it's very difficult to be on them. Since this is new to you, you'll need to learn to adjust and read your own body. Don't let anyone tell you to what you NEED to do, that's up to you!! I really feel for you and know how hard this is and just know your not alone. Please keep coming back and you'll see your not alone. Do you have a good doc who helps you with your pain and other symptoms? Take care and try to have a decent day!! Spruce  |
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singingangel
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Only you know whether you can do this. I would really try if I didnt have that much to go. You need to talk to dr about all your problems. He might give you provigil for the fog. It helps you concentrate. Unfortunately you will always have pain. It is just a matter to have it be at a tolerable level. Good luck with your decision and getting meds that work for you. I hope you can reach your dream. I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive. |
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"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
