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02/07/2008 19:12
maguirre
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Hello Everyone. I have never done this before so... I apologize in advance. I am 29 years old, have three children and have been married for 5 years. I was diagnosed with fibro 8 years ago a little while after I was injured at work. I was young then and did not really understand how this disease was going to affect the rest of my life.

I went through years of this disease being "all in my head", as my husband would say. He read up on fibro one time many years ago and has not himself attempted to do any research or attend a doctors appt. with me since.

I like many of you have seen over a hundred doctors been on many different meds, changed my diet, tried alternative medecine etc. It just does not work. I do not belive in alternative medicine, but I attempted it anyway. Anything to get rid of this disease. I did physical therapy, massage, aquatics, pain managment, injections etc. nothing helps.

For the last 4-5 years I have been on a combination of Norco for pain and Prozac for depression. These are the only two that I am myself-getting any relief from. It enables me to get up and take care of my children and run my household, but It does not get rid of my symptoms it gives just enough relief to function minimally.

A little over a year ago, my husband told me that he would divorce me if I did not stop taking the pain medication. I was afraid and did not want to lose him, so I stopped for a lttle while, but did not last long until I had to be put back on them. I kept it from him and just dealt with it until now. I told him about a week ago that I have been taking it. His big problem with it is that I am supposedly uhhappy when I am on it. He said that I have b een so happy while I was not on it for the last year, well obviously at that point I let him know that I had been on it and that my happiness or my moods had very little or nothing to do with my meds. I was unhappy because I have a husband that just does not get it. The things that he says to me sometimes is so ignorant.

Basically, he calls me a drug addict and has his whole family convinced I am a drug addict. I only take those 2 medications and I take them as prescribed. I am aware of all the official terminology and the only bill I fit is dependance. I depend on it for relief and my body is now dependent on the drug and will withdraw if I stop taking it, but that is not to be confused with addiction.

My husband called me on the way home from his father's house today. He had a relative that was over there that has had fibro for about 15 years. She told him that pain meds and anti depressents do not work and that I will not be able to have a life until I stop taking them. She got her life back with alternative medecine and changing her diet. Is anyone else disturbed by that? I am. Now, he feels like he has been validated. Here is this disease that I am living with and someone else gives him that sort of advice. It makes me so angry. So of course he called me and laid into me about my disease and how I have been so wrong about things.

I am extremely frustrated with my husband.I get out of bed every morning at 5:30 am with my newborn and then my other 2 children wake around 7 and my day gets going. Thankfully I can do that much. I did not used to be able to, but I refuse to let this disease take over my life. But I cannot do it alone anymore. I am at that point where, your spose is supposed to love you unconditionally, and they are supposed to love you so much that they want to see you get better and will do anythiung to help you get there.

The truth is, I just do not have that. Other than this situation, my husband is a very good and kind person, just for whatever reason is against pain medication... I feel as if my situation is hopeless and that it may be time to walk away fro my marriage. I feel that it may be detrimental to my fibro care and my ability to accept the fact that I have this lifelond disease.


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02/07/2008 19:33
coolmamma
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Maguirre, first of all, welcome to the group. I am so sorry that you are going thru so much right now. I wonder if you have tried getting your husband to read updated info on fibro? There has been a lot more information on it in recent years. (I have had it for 16yrs so I know about the theory about it being in your head.) Let me be one to tell you, it is NOT in your head. Fibro is a real illness and causes real pain.

Years ago I went thru a time with my hubby where he didn't want me to take meds cuz he thought it was a matter of having more faith. Needless to say, he didn't understand the FM. It wasn't until he talked with a good friend of ours that he was able to understand that I was not taking the meds because I wasn't faithful, but rather WAS faithful. After that, he started reading more about fibro and has suggested various things for me to try. (I have tried many to no avail.)

I tell you all of this because even though it was difficult, we worked it out. Do you think your hubby can pull from his goodness/kindness to go to a counselor or a dr appt with you? Have you each been able to express your fears with one another? It's hard to know what will work best for you. Alternative meds and changes in diet don't work for everyone, just like not all meds work for everyone. Unfortunately there isn't one thing that fm can be treated with since each person's case is unique.

I happen to have a spouse that is very supportive. I know that there are many people here that know exactly what you are going thru and can provide more advice than me. I pray that things get better for you and that you have better days ahead. Feel free to PM me anytime - I'll do what I can for you. Best of luck!

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02/07/2008 19:36
spruce1
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My dear maguirre,

Your husband is a #**##! Sorry!! Just by what you said and him having a relative that has aid pain meds are wrong and alternatives worked for her!! GARBAGE!!!! My sister also has this ilness and she has always done alternative and she still needs pain meds. She's very balanced in her thinking. Her daughter also has fibro and the mother of 2 boys, she eats good and does alternative and needs pain meds. It's good to be open minded but not everything works the same for everyone. Your husband talks to one person and thinks he's got the answers, well, feel free to tell him what I said!! Everyone is different and personally, if that relative had fibro and is "cured" may be shows she never had it or thought she did and never was dx with it!!

Many people think cause there tired and hurt a little that think they may have it. Also, many doctors will tell someone that they have it, but first EVERYTHING else has to be ruled out first! You need to tell this woman to keep her nose out of your business, what helps one person does not alwasy help another and she's not a doctor!!!

I'm sorry....I'm being very strong about things tonite and get so angry at peoples comments that I could just spit!!!

My support is for you and my anger is for you, you don't need this stress. Just tell your hubby to leave that you've been wanting to lose weight anyways !

I know it's not that easy and you are feeling hurt !

I just want you to know your not alone and keep coming back whenever you feel the need. You can vent here, scream and cry if you want. Hey, sometimes we even have little pity parties! After all don't we deserve to cry once in a while, we don't want to be like this. The choice was not given to us and we don't need the extra stress of people putting us down. It's like kicking a dog when it's down and you don't deserve it!!

Sorry for rambling, just felt so bad for you that I thought I'd get mad for you !

Spruce

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02/08/2008 08:03
BeachBum
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Maguirre,

I am so sorry to hear what you are going through. You sound like such a strong and determined woman, who is doing everything she can to stay postiive through this illness, and raise 3 children, one being a newborn! That is really impressive. Your husband sounds like he is in some serious denial, to think that you are going to just get better if you do what someone else has done. Before you tell him to leave if you have any love for him at all, I would give him an ultimatum, and MAKE him go to therapy with you for sure, and make him be involved and participate with your appointments...you DESERVE his support, and if he refuses to give that to you, then I don't know...I just hate to see you alone with the 3 kids, and the newborn, that is a lot for you to handle on your own!

I'll be thinking of you...please stick around, this site is absolutely GREAT! You will get LOTS of support here!

Post edited by: BeachBum, at: 02/08/2008 10:04

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02/08/2008 09:06
sweetheartsuzee
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Welcome...

Stick around kiddo...we're here for you and your needs! ALWAYS!!!

I truly hope that things can be worked out for the two of you...but I will say again...

"Everything happens for a reason". And, I truly believe in that!!

I'm glad you found us and you will be too...you'll see!!!

{{{{Fibro Hugs}}}}

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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02/08/2008 09:16
singingangel
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First I want to welcome you. This is a safe place. We are here for advice, venting, silliness, and anything else you can think of. I think you need to show your hubby info about fibro. I dont take narcs because Va. doesnt give them out for ppl with fibro. I use other meds and as a result my pain level is always on the high side. I hope you can get him to understand that there is a differenvce between being addictive and needing them for pain relief. Just like diabetics need meds fibromites need meds. Welcome again.
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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02/08/2008 19:37
angelblessed
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It's a shame he can"t walk one week in your shoes! This is such a difficult disease because theres no real test for it. Do you get good sleep at night? I take elavil to help me sleep, the nights I do get good sleep, the pain is better the next day. You need that deep REM sleep(its the restorative sleep). My doctor asked if I had dreams,& I hadn't in about 10 yrs. That was the REM stage of sleep that I hadn't been getting. I don't know if that information can help u or not. I just wish your husband would educate himself,with his understanding your life would be less stressful. Less stress could possibly help your pain level. Prayers to you
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02/09/2008 07:52
Aquarian211
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Sweetheart - welcome. I feel for you - your hubby is putting you in a terrible situation as he listens to others for advice and ignors your doctors. I am glad you have found this site - i know we can help you when you want to vent!! this is a wonderful group and i'm glad you are here..... baby... i don't even know what else to say... but i'm glad you're here!
Things turn out best for the people who make the best of the way things turn out.
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02/09/2008 08:47
natesmommie
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welcome,

your hubby shouldn't be listening to other people,another thing he should get his a**at the drs office with youstart dealing with the fact his wife has fibro has to take medsto get through the day.

Bernadette


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02/09/2008 08:52
sweetheartsuzee
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Do you think he would even consider going to the doc with you?

That would be a wonderful idea!!

And, we've had a lot of spouses get on HERE and read around a bit. Some have posted and some even PM'd others with questions! I think it's helped a few people to better understand their spouses.

What do you think about that?

{{{{Fibro Hugs}}}}

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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