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Alijacob Posts: 4
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Hi all! Greeting from SC. I am 38yr old mom of 2 teens and have a great supportive boyfriend. I have been going through the battle of getting a diagnosis for all my pain and such the last year and Last week my family doc finally said she had no doubt in her mind that it was Fibro with Raynauds. So finally something to work with. The not knowing was horrible to go through thinking the worse of course. I am still trying to learn as much as I can for I will not give up on myself or let the disease over take me. Yes I know the lack of sleep and the chronic pain is incredible and very hard to work through but I let it get the best of me for almost a year and its time to ge tmy life back. For the first 6 months I couldnt even get out of bed bc just the pressure on my feet was so horrible I cant describe but I was put on Lyrica and a few other things and it has helped so much. I am so blessed to see such a wonderful place to come to and learn and for support.
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Auntie3285 Posts: 9112
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Hello from Ohio and Welcome to our group ~~~ Sorry you re suffering as the rest of us but you ll not find a better group for advice, friendship and caring support because we all understand your pain. I look forward to getting to know you better soon ~~~  Marilyn |
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captainhook Posts: 27
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Welcome friend, I lived in SC for 19 yrs...maybe it's the water. You are on the right track, connecting with others with similar circumstances. I felt so alone for the 1st 15 yrs when FM was not a known syndrome. Glad to hear the Lyrica is helping, are you sleeping? That is a priority for you to feel better. Learning to say no was a big issue for me as well. But, you finally realize you're no good to your family if you don't pace yourself and narrow down where to expend your limited supply of energy. Hang in there, gentle hugs to you. Captain Hook |
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hatbox121 Posts: 10642
Group Leader
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Welcome to the group! I have raynaud's as well. Horrible going to the grocery store! Look around or join in wherever you like! Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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JJAbs08 Posts: 205
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~Ali~ Warm welcome and gentle hugs! Sorry your in our club but glad you found us. There are a varity of people here, people who are new to Fibro (like me) or have been dealing with it since before there was even a name for it. Great to have you aboard! Jj |
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mabri Posts: 4710
Group Leader
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Alijacob, Welcome to the fibro group! You have definately came to the right place to find help, support, understanding and caring. I know you must be relieved to at least have a name for what you have been dealing with for so long. Fibro is really hard to deal with, but there are ways. The fact that your attitude reflects that you are not gonna give up, is the first step. It may take awhile to make changes to your life to live with it, but you can do it. I'm sure you will find that there are a lot of great ppl here who have a lot of knowledge either by research, experience or both. Feel free to ask questions, start threads, comment on others' or whatever makes you comfortable. I also suggest you read some of the older posts as there is a lot of good information there. We look forward to getting to know you better. Welcome to the fibro family!! HUGS Please do not take anything I say as medical advice. I am not a doctor.
**Becky** |
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Alijacob Posts: 4
New Member
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@Auntie - tyvm and I hope to speak with you again some time @Hook - maybe it is the water LOL and no I don't sleep well. Some days I can sleep fine and other days I can go without sleeping for 3-4 days but not from the lack of trying. I have a wonderful doctor who is trying all sorts of things to help me so hopefully something will work. She told me it was normal though that with Fibro sleep issues is definately one of the side effects. @Hat - yea Raynauds is horrible to have with this..if it isnt the nerve pain then its pain from lack of blood supply but definately know what your saying about grocery stores and such. I try to stay away from anything with drastic temp changes so the bf goes to the store for me and such. @JJ - ty so much its good to know there are others who know how I feel and are going through what has just started for me |
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hatbox121 Posts: 10642
Group Leader
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I use gloves. Looks weird but works! Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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Alijacob Posts: 4
New Member
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@hat - that is definately something I am going to try ty! |
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mem6449
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Welcome, Alijacob, to our little corner of the cyberverse! Hope you like the waters here-they're generally hospitable. I haven't seen any sharks yet! -gentle hugs- TeaButterfly |
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"MDJunction has been my lifeline. In the beginning, when I was at my worst physically and emotionally people helped me through the rough times with compassion, understanding and information. As I progressed and finally got a handle on my condition, giving back that same support and hope has been my mission. To all that come here seeking help or information, you will be able to find in all of the various forums; no matter what issues you are going through, there is always a helping hand to raise you up and provide hope and support when you need it the most." (thematrix777)
