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jaime33
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Thank-you so much for the wonderful reply, it is so good to feel that there are people out there in my corner. My children still don't understand, how the fibrofog makes me do crazy things they have been brain-washed by my husband to thinking that it is the meds and that I am over medicating, I'm not but I have a 6 month plan to get off the drugs and go to more natural ways of healing, by going to a Dr. who uses Atlas Orthogonal machine, cold laser therapy, Manuel therapies, spinal decompression, Needle free acupucture, Kinesio taping, Earthing technology, and emotional freedom technique. He also has a machine that helps you get off addictive drugs. I don't know if my insurance covers it but my Dr. dosen't accept insurance either and the medications are bloody expensive. I need to get myself out of the control off fms,cfids, and chronic fatigue-my kids need me and I'm not there for them, I need a new way of handling my situation, it has taken over my life, and I have a 11 year old son and a 17 yr old, they need me, my oldest son came right out and told me- that never happened before, he actually reached out and said he needs me- and I have to get control of the fms that I am not fibromyalgia I'm just someone who has it I need to face it down and the first way of doing it is to let go off the drugs and struggle though it so I can have a clear mind, I'll try this out,and if its fibrofog,I'll get something to help with the fog.But narc. drugs only makes matters worse.Any way these are my feeling I need to be tough and fight this problem o, I also need to begin working out and stick to it, I need to turn over a brand new leaf. Thank-you for your post, this is a great group I'm so glad I found it!! jaime from Virginia Beach, Va. |
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foggy
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Hi jaime33; Welcome. I am fairly new myself, but I can tell you with confidence; that you have found a family and support here. I too have lost my mom in 06, and I have lost my marriage and a little of my self-esteem. But I have been battling fibro for over 30 years. And I have learned alot here and on my own. We fibromites are a strange and unique group. We have problems that no normal person could ever comprehend. We lose friends, wealth, pride, and some of us lose our spouses. There are some of us that are very fortunate and blessed to have loving, caring, and understanding partners. But I can tell you that to be with someone who does not support you, only makes our condition worse. I found comfort and feel so much alive now that we have separated. Yes it is hard doing everything myself,but to be honest with you, it now feels like I was doing it all anyway. And everyone here will tell you. That having love and support is half the battle with this evil disease. I hope I don't sound like I'm preaching. But I really want to make you feel at home with us. I can't live forever. Let me live for Today................. |
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Cathy0402
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i an sorry yourhurting i am praying and wishing you the best i hope for good things in your life and healing cathryn |
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hipmama42
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Jaime, I have been in your shoes in the past with having to ask my ex for money and everything else. You are in a very difficult position right now, but at least you have the love and respect of your children and you have a wonderful support group right here of people who really care and understand. As far as weaning off of the pain meds, I would go slowly on that until you find natural pain relief that really helps you. I will keep you and your family in my prayers and hope for better days ahead for you. |
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jaime33
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Sometimes it sounds wonderful to leave my husband, but other times I think it would be horrible I been with him for 23 years, we been through thick and thin together. Right now he is going through an especially bad time-he thinks he is going to be fired his job is very stressful,he is a food and beverage manager of a big Hotel in Norfolk.He doesn't have enough staff and they are not hiring. So he works long hours and can't take vacation and is lucky to get a day off a week. So he leaves work and goes directly to the bar, and then comes home to a sick wife, who is incapable off doing much. There are days I can't even empty the dishwasher, it is incompresible about the pain and fatigue I am in, he just can't wrap his hands around it.He has been in pain he had an arthritic hip and worked on it for many years but he still got up and worked, he had it replaced 7 years ago, but the pain is back due to the hours he works- so he had his own pain, but fms is different it zaps your energy, and makes you feel horrible and incapable to due anything,But I can imagine how horrible going home to a house in disray and your wife in bed with the bed not even made, but he can't imagine how I feel neither can my boys, especially when I go into fogs and do strange things and say strange things, they blame it on the drugs. It is not the drugs I take the same amount every day and I'm not whacked out 98% of the time. I don't know what it is that causes the strange behavior. Leaving my family is not an option for me, I would end up in a homeless center. I haven't a car, I pretty much allow my son to use my car all the time.I can get it, after school but he is involved with a lot of after school activities. So before I make any plans or appointments I have to check with him if he needs the car, and I have to make it late in the afternoon and lots of Drs. aren't open after 4:00. So my home life is really bad. I am going to start some natural ways of dealing with fms and I given myself 6 month to get off my pain meds.When i go back to my Dr. I'm going to tell him I want to wean off the pain meds.This Dr. I want to go see even has a way of helping with addiction. Well I have to go and do something with my house. Keep up the great work, thanks for youe support and for posting me, I really appreciate it. jaime from Virginia Beach, Va. |
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teach123
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Jaime. First of all, welcome. Secondly, I'm so sorry you're going through such a tough time in your life. There is a strand on this forum about Disability Insurance. Many have said it's difficult to apply for and be approved, but I couldn't help but think that this might be a way to help your financial situation. I'm lucky and can still work, although it's not at all easy. It helps that I love what I do (I teach 4th grade) though, and it takes my mind off my pains during the day. I recommend you check out that strand and also the other one unsupportive spouses. Hang in there!!!  Post edited by: teach123, at: 02/07/2008 00:39 Post edited by: teach123, at: 02/07/2008 00:40 |
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jaime33
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HI, I have tried to collect disability, but I don't have enough working points, you see I worked a lot off the books in my 20's and after I had my oldest son I opened up a day-care center in my house,I am sorry that I didn't take social security out, but it was very lucitive one of my problems is I don"t think a head.When Iwe moved to Virginia Beach, Va. I decided to use my degree and got a job in a day-care center where I opened up a kindergarten. All was well for about 6-7 years, even my son was able to go there for pre-school and my oldest was picked up for after-school activities. This was all free.The pay was good too,enough to buy groceries pay a few bills including my credit cards and cell phone and have money left over for myself.Then I ruptured my 2 lower disc in my spine, which made my fms go from handilble to full blown fibro. It attacked my muscles to totally feeling pain along with unberable fatigue,I was bed ridden for about 2-3 years, nothing helped it not injections, not pain meds, not chiropractics, or acupunture- nothing would help-plus an unbelievable sleep disorder (which my Dr. put me on Sequel which helped the sleep but made me gain 60lbs in about 6 weeks. That is one thing I discovered with fibro is that its a weight gainer, if its not the drugs its the messed up thyroid, so many of the drugs pack on the weight. Thats the first question I ask about any new drug is does it make you gain weight, so many Drs say no but then I go home and check it out on the computer and weight gain is one of the first side effects.I tried cymbalta too, and it made me crazy, dizzy and it reacted really badly with my other drugs.I laugh at the commercials on the t.v. it really rendered me incapable of doing anything, I though I was in a flare but then I decided to go off cymbalta and almost right away I felt better.Well from one teacher to an other my son is home and I'm useing his computer so I have to close- but thank-you for the post,post me anytime- time is on my hands, except when I'm flaring then I don't even have enough energy to read my posts. Thanks again jaime |
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singingangel
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Jaime I was a teacher too. I got a degree in special ed. I hope they can find the right meds to handle your pain w/o weight gain. It is hard with so many causing it. I hope that you can find a way to exercise and follow healthy diet to lose some. I know losing your dad didnt help either. Stress often causes people to eat more. Know we understand and want to help anyway we can. please take care. I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive. |
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"All I can say is that this has been the best place ever. It has been six to seven months since I joined, and I have learned so much. I now believe in myself and accept myself on a completely different level. The people on MDJunction has been so supportive and accepting that I have been able to adopt it into my personal life. That has reduced a lot of stress in my life. Thanks to all." (bunnyfly)
