Fibromyalgia Support Group

Hi, my name is Brenda, and I am new to this site. I have had health issues for years. I started with IBS about 10 years ago, as well as my arthritis and my new doctor thinks possibly the Fibromyalgia as well. I can't tell you the last time that I had a day with no pain, and that I didn't feel sick. I just don't know where to turn. Sleep is something that I just think and dream about. I feel like I am walking a very fine line between my life and loosing everything. Will this ever get better? I simply don't know where to turn. I can tell everyone is tired of hearing me always say I just or I don't feel good. So, I just keep it all inside now. I can't blame them I guess. Who wants to listen to my whining all day? So, I usually just sit and cry. I feel like I am screaming and raging inside all of the time now. I have not dealt well with my diagnosis of Fibromyalgia very well. Here I go again, another diagnosis. Another diagnosis with no explanation as to what causes it, and no cure. Just like my arthritis and my IBS. I just don't know how to handle this, or where to turn.

You are allowed to say anything you want here, including whining, crying, venting, telling us how crappy your day is, or sharing smiles, laughes and good days. We have wide shoulders and as the saying goes, no one will understand what you're going thru, except we who are also going thru it.

Have you been to a rheumatologist? They are the ones who usually diagnosis and treat Fibro. And don't give up yet! Unfortunately, with this disease, no one thing cures all. Each of us has our own group of meds, therapy, coping mechanisms, etc. Some may share a med, or a strategy, but it's trial and error to find what group of things helps each of us more.

There is a LOT of good information on this site. Browse around, look at old posts, jump in with both feet. Don't be shy! I'm sorry that you are suffering and needed to find us. But I'm glad you did!

Hi,

All I can say is WOW! Are you me?

I feel like you have totally read my mind and said how I feel each and every day of my life.

I am sorry that you feel this way too.

I don't have the answer but I just want you to know that you are not alone and I totally understand.

I will be back. Just really almost surprised because this is exactly how I feel too.

Thank you for expressing yourself so beautifully.

Post edited by: angelonearth, at: 03/16/2012 03:33 AM

Oh and I almost forgot...WELCOME!

hey Brenda

I can tell you this,you are not alone,and in some ways that is a great comfort to me knowing that..I went through the ruetine of denial, anger,depression,greaveing..it is a normal process so I have found out..I want you to know though it might not ever go away we are here with you through it all.we have come up woth some great helpful hints to get through a day, epsion salt baths are great for muscel pain,salon pas pain patches are great for localized pain.I ands others take meletonin over the counter for sleep.and several take magnesium for body pain..you will find we all have advice,some good some not but here we are to get through the day,you will due it.you like me have delt with this for a long time,look back how many days did you think you wouldnt make it? and here you are ten years later..

Brenda,

It's unfortunate, but our friends and family do have a hard time understanding and being sympathetic to our plight. Usually you get sick, they feel sorry for you, help you out, and then you get well, and it's over. With fibro, there is no "well" . Not saying you won't have well periods, because that is possible...however, this is a life long thing. I'm not trying to depress or upset you, I just want you to understand that family and friends are not so understanding of a life long illness, especially one that they cannot see.

The biggest help to this is to educate them as much as possible. Depending on how open they are, you may print out fibro education and leave it around the house. Broken always leaves it in the bathroom so they have something to read. The more they know about it, the more they are apt to accept it. This way they know that it is real, and exactly what the symptoms and pains are, even though they can't actually feel it. There are also "letters to my family" that are posted that may help. If you are interested in them, let me know, and I will dig them up for you. You can either post, or pm me.

Again, welcome to the family, and we look forward to getting to know you better!!! HUGS

Glad to see you here and sorry you have reason to be here, look forward to getting to know you.

Welcome to the group!!! I agree with Angelonearth, you expressed your self beautifully. I wished I could express myself that well...."fibrofog" makes it difficult.

Hi Brenda (my name too). I understand and feel the same way. I feel alone and I am crying a lot. Nobody seems to get it.

I am overwhelmed because of the Fibro and osteoarthritis and I may have Lupus (more tests are scheduled for that). I'm 55, having trouble with everything in my life. My Father is very ill with kidney failure and a bad heart and is hanging on but I know it won't be long. I am also taking care of my poor dog who is 11, has diabetes and now went blind. He is sick 24/7 and I have to care for him constantly. One medication mistake and he is worse for days. I'm up with him all night and can't ever go anywhere at night or weekends without hurrying home. And it's so important to me to take care of him while he still has any quality of life left.

But what about me? Is it horrible to feel neglected? I have been seeing a Rheumatologist SP? who seems great and is trying to help. But I'm just SAD in every way.

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Brenda (or) beeleeg

Brenda,

Hope that you are feeling a little better!