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mesothornie Posts: 5
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I've known about fibro all my life! My mother, aunts, grandmother on my fathers side, all have had it. It wasn't till i was about 16 years old that i started to notice the same symptoms my mom described. I went to my doctor several times, and she told me every time that there was nothing wrong with me. Finally it got to the point that she was walking into the office and would say to me "whats wrong with you now". So, I decided, well actually my husband TOLD me (lol) I was going to switch doctors. I found a wonderful doctor who set aside an hour and a half just to talk to me the first time. I told her all of my symptoms and family history, and she ran a few tests (including the trigger point/pressure point test) and within the week I had three diagnosis'. Lupus, fibromyalgia and hoshimotos syndrome. This explained why i was always sick, in pain and so depressed. This also explained why me and my husband were having such a horribly difficult time getting pregnant. I also found out that week that my previous doctor had put in my records that i was a hypochondriac and a pill seeker. I dont understand that. I never asked once for pills, I just wanted to know what was wrong with me. Now since I dont have insurance I do not receive the treatment I need. I now only take Flexaril. That helps some, and I can sleep if i take Two. Other than that all I have is the love and support of my family and my wonderful husband. Who, will NOT let me do anything for myself on my really bad days. He's wonderful....  |
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faieriemama Posts: 3345
VIP Member
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Welcome mesothornie. No, you have never been a hypochondriac some doctors are just not aware enough of to diagnose you properly. So glad you were able to find one finally and get a proper diagnosis, and find us you're going to love it here. Love the picture of you and your hubby, it's wonderful that you have a such a supportive husband, it makes everything so much better. Fee free to post here about anything and as often as you want, read up on old posts,articles I look forward t oseeing you around the boards. Hugs and Love  I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.
Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das |
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MoiraWolf Posts: 3410
Senior Member
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She's a friend of mine, I made her come! lol Chin up hon! At least it didnt' take you 25+ years to get diagnosed like it did me! And while my new rhuematologist diagnosed me immediately, and is treating me, my new primary care doc said she thought it was a "trashcan diagnosis" for "doctors who are too lazy to figure out what's really wrong." I may have to get a new primary care doc. But I think I'll keep the rhuemy! I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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hedap Posts: 2009
Senior Member
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Mesothornie, I don't know why it's so difficuly for doctors to dx fibro and fatigue. With anythig it's a process of elimination. I believe many are just not educated about fibro and thus go by inaccurate information. There's really no exuse for your doc not having checked for fibro with your family history. I'm sorry about the insurance issues. Does your community have low cost/ sliding scale clinics? Ours does and for someone in your situatio it might be a good idea to try there. They may also be able to help you with your presciptions as well. So sorry to hear about the other illnesses as well. Take care and let us know how you are making out, heather PS cute couple! Post edited by: hedap, at: 02/28/2012 12:11 AM Savella 50 mg 2x daily
Lortab 10's 4x day
Tramadol 50 mg 4x day
Nuvigil 123 mg day
Klonopin o.5 mg 4 doses daily
Aplenzin 348 mg 2x day
Abilify 5 mg day
Lamictal 50 mg 2x day
Misc.
Levothyroxine 150 mcg 1x day
Vitamin D 50000 IU's 1x weekly
Pravastatin 10 mg day |
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Montag Posts: 252
Member
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Mesothornie, Welcome to you! I can relate - `There is a name for how yucky i feel!` I recall a family member was angry to find out i wasn`t faking this illness. she was always talking me down..... to the point i was doubting myself. I`m happy you have a supportive husband ! Ignore docs who write such junk- i think many are just plain paranoid of a lawsuit so they over-compensate by blaming us in writing. I share from my experiences Only- I am not a medical or legal professional.
"Some of our greatest victories come from knowing when to retreat." author unknown
"Everyday is exactly the same but different..." |
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hatbox121 Posts: 10493
Group Leader
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Hey there and welcome to the group! There is a post on the general info forum about people who have no insurance. You might want to check that out. It may have some things that can help you get treatments. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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Moiaddy Posts: 384
Member
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If your health meets certain criteria you might be able to get on your state medicaid plan, its worth a shot. Lupus and Hashimotos has got to be monitored, if you are put on Plaquenil for the Lupus, you will need to get your vision checked at least every six months. I'm not one of those sue happy people at all, but when they treat you like crap and write things like that in your file I get upset at their know all atitude and there is no reason for it....but without telling them why....or just say its for your private medical records, get a copy of your medical file, make sure you ask for everything including lab results...(I learned the hard way they don't give you what you don't specifically ask for), and get your current doctors lab reports and diagnosis, if you can afford it take the new lab results to another doctor for a second opinion or confirmation of diagnosis and sue the shit out of the first doc for failure to diagnose. I'm sorry....*stepping off soapbox*....I just get upset when this happens and what could happen to you without medical follow-up. *walking away from soapbox* In any case, I'm glad you have gotten some help, there are also med assist programs for free or reduced medicine...your doc might be a part of one where you get the meds free so talk to the doc or the nurse. Gentle hugs... Victoria
"Every soul you meet has a lesson to learn from you and a lesson to teach you, be giving and be receptive" ~Me
My quote above is copywrited and all my postings are just my opinion and are not medical advice, please talk with your doctor :) |
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hatbox121 Posts: 10493
Group Leader
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Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)
