Fibromyalgia Support Group

Hello,

My name is Jennifer and it was recently confirmed that I have Fibro. I had been suspecting it for a while since my symptoms were getting worse (Being unable to sleep for no reason, being so sore and tired that I was hardly able to function, among all the others). I went to my doctor and she confirmed it. I am going to be 21 this year and I am so glad to be able to find some other people my age that are dealing with the same thing.

I am dating someone and he is having a really hard time dealing with all the pain and stuff that I am going though, not to mention the lack of intimacy. I am glad to hear that some other people my age are having the same problem and that I am the only one that has absolutely no sex drive. I feel bad crawling into bed with him every night and not feeling like having sex with him. Before I started getting this bad with the Fibro we were able to have a healthy relationship in that way.

Hopefully you guys will accept me into the group and I can start to learn ways to get around the problems that I am facing with this. =]

Of course you are welcome to this group or actually Family!! I'm so very sorry you have to have this horrible illness at such a young age. We do have other members that have it and are quite young, actually I think they have their own group now that I think of it. I think you will have to make a decision regarding your BF. If he can't handle it well now, he probably won't be in it for the long haul but that's going to be something you two will seriously need to discuss. We are here for you, you don't ever have to be alone or suffer without anyone to talk to. You can ask questions, vent, cry, laugh, whatever your needs, we are here. There is NO judging here so you can talk about anything. You can also PM members if you feel better speaking privately. I will add you to my prayers. I only wish I could take the pain and fatigue from you young members so you can enjoy life while your young. Let me know if I can help in any way

Hi Jennifer. You absolutely have a family here to support you and help you through all the tough times as well the good. Each of us understands what you're going through. I'm sorry that you have it at such an early age. When I was first married, my husband would not have a nice bedside manner when I was ill. He could'nt handle it either, and we are divorced. However, my husband, now and of 35 years, has been a wonderful husband. He may not have understood the symptoms and pain of my illnesses, however, he had the tenderness when he saw me in pain and crying. And I think FM impacts the sexual feelings of just about everyone who has it. I have a few other diseases that impacted that area of my life, so I can't say for sure which one it was since all 4 play a role in that area. You didn't mention what meds your endo put you on. Are you taking meds for the FM. I hope so.

Kiarabear,

We are glad to have you!!!!

Post edited by: millsbuck, at: 07/30/2011 04:32 PM

Post edited by: millsbuck, at: 07/30/2011 04:32 PM

Welcome to our family, there is always room for more family here. I'm sorry you are having to deal with at such a young age , I understand the frustration and confusion you are dealing with now, my baby is 19 and was just recently diagnosed with it, she is still learning to deal with it herself. Feel free to PM me anytime you want to. You can also ask any question, vent, or post about anything you want to on here. I look forward to getting to know you better.

Thank you all so much. I teared up reading all of your nice messages. It is really hard, and I am glad that I have other people here to talk to about it that understand what I am going through and know that it is not just something that I am complaining about. I really am in pain when I say I am in pain and not looking for just some sympathy. It means more to me than you will ever know to have other people standing beside me reassuring me that what I am going through is not all in my head as some people that don't have it seem to think.

Thank you all so much for welcoming me here <3

first Im sorry Im late on the welcomes.as you have already noticed we are very much a family here..so welcome to the family..

Fibro makes you feel very alone finding others that understand is such a life saver..

no honey you are not crazy and you are not alone

hello,

i truly feel you. im am turning 21 this year also and saw a doctor that comfirmed i had fibro when i was 19 but Ive been living with it for 2 years before that. so if you ever need someone to talk to pm me.

Yeah, the doctor that diagnosed me was looking at my records of seeing her from the last 3 years of university and wondered why she hadn't seen it before. I guess it isnt something that you really think of to diagnose someone our age with. She just saw the individual symptoms that come with it and never put it together.

Welcome kiarabear;

This is a wonderful site, we all know how you feel and how it is so horrible that people always seem to think you are just looking for sympathy. I am a little older then you (28) but I know that people look at you like you should be fine because you look ok and your young. So frustrating sometimes. My partner has had a hard time dealing with it also, especially the lack of intimacy so your far from alone.

Hope your having good fibro day.

Momma Manda