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01/05/2008 21:43
hanginon1
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Hi... This website is wonderful. I've been reading alot of them.... I was diagnosed with FM about 2yrs ago. I didn't know anything about it, so I researched. I was sure I would be able to eat right, exercise, etc. etc. and overcome it. Of course that didn't happen. Then my left side just got worse and worse, couldn't lift my arm without severe pain, and knew that I soon wouldn't be able to. Then down to my hip and leg. Then when I just mentioned that I could'nt use my nasal spray with my left hand, he suddenly sets up an MRI. Long story, short, I had two ruptured discs in my neck that were pressing on my nerves and had surgury. I prayed and prayed that they had been wrong about the Fibro and that the surgury would take care of everything. Well, no, that didn't happened. This was all about 6 months ago. Somethings are better, but......Anyway, I'm rambling. I've been going through a big flare up the last couple of days. I tried not taking Vicodin, dr wants to cut me back to 2 a day. It's hard. I hurt. Thanks for listening....
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01/05/2008 22:00
spruce1
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Welcome Hangingon!!

I'm sorry about your flare up....it's miserable, eh?

Having doctors that really help you are far and few. 2 pain pills a day is nothing for what your going thru.

Have you considered looking for a new doctor? What part of the country are you in?

I've had CFS/FMS for 20 yrs. It took me a long time to adjust (if you can even call it that lol)!

I hope you have supportive people around you. If not feel free to type and vent or talk whenever your up to it!!

Try to have a good nite,

Spruce

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01/05/2008 23:09
hanginon1
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Hi Spruce! Wow, how cool to have a response so quick! I'm feeling a little better. I am medicated though ... I'm thinking about looking for a new dr. I really like him, but it seems that he's getting upset that I still have pain. I am on cymbalta and I have muscle relaxers too. But through trial and error (painful error) I know that the soma and vicodin combo work well enough for me to keep going. An he keeps wanting to reduce the pain meds?? I am frustrated.

I really don't have anyone to talk to that really understands. My children and my mom are supportive, as much as they can be. My best friend of 37 years passed away a few months ago from illness. Although we didn't have the same thing we understood each other's pain. I miss her so much.

Well, I'm going to get myself more familiar with this site and become part of the community. I've read so many posts that say the exact same things I have said. The one the stuck out the most was from someone who I don't remember their name, but she said "I'm 39 and I can't believe I have to go through this for the rest of my life." I have said that to myself so many times! Except with a 52

Oh, I am in the San Diego area..

I hope everyone sleeps well tonight.

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01/05/2008 23:18
spruce1
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So glad your here!!

I'm sorry for the passing of your friend ! To lose someone who was so close and understanding is soooo hard.

Well, I hope you hang in there because that's all we can do. I thought the same way, this can't last forever....well, 20 yrs I'm still hurting! I guess you have to come to termes with it and I'm glad to see you have a good attitude!

Hang in there and type soon,

Spruce

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01/05/2008 23:21
hopefulwishful
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I am up at 1;30 in the morning the throbbong in the back of my leg and thigh woke me up put the deading patches on waiting for them to take some of the pain away
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01/05/2008 23:31
spruce1
Purple Ribbon
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I'm sorry for all that pain, girl! Pain usually keeps me up. I took my meds but I'm having a hard time myself!

Hope you feel better tomorrow!

Take care and keep in touch!

Spruce

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01/06/2008 04:03
Snoopy30
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welcome hanging on. I'm so glad you found us. there are alot of people here that found this site because they too were going through a major flare and had no one to talk too. So here we are ready to listen. You never have to worry about rambling or ranting. we all do it from time to time and everyone understands. I'm so glad to hear your children and mom are supportive that means a awful lot in our crazy mixed up lives.
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01/06/2008 06:07
savedbygrace
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BELIEVE ME I KNOW WHAT YOU MEAN, WHEN THE DRS SAY TRY TO CUT BACK HA, SEE IF IF YOU'RE IN THIS PAIN IF YOU CANT CUT BACK RIGHT? BUT ANYWAY THEY HAVE NO IDEA THE HOW EXCRUTIATING THIS PAIN CAN GET. BUT I AM WITH YOU 100 PERCENT. IT IS HORRIBLE AND I PRAY EVERYDAY TO THE LORD TO REMOVE THIS THORN, BUT I TOO HAVE TO SAY I AM BLESSED CAUSE IT HAS BROUGHT ME TO HAVE A CLOSER RELATIONSHIP WITH GOD. FOR SOME REASON PAIN IS ONE OF HIS WAYS TO DRAW US CLOSER TO HIM.

I AM HERE IF YOU NEED THERE IS A CHAT GROUP FOR FIBROMITES IF ANYONE WANTS TO USE IT CALLED XAT.COM/FMSUPPORT I AM AMODERATOR OF THIS GOUPR A TIME CAN BE SET UP IF YOU WANT TO MEET ME THERE I CAN MAKE ANYONE A MEMBER.

SO JUST LET ME KNOW IF YOU OR IF ANYONE THAT IS READING THIS IS INTERESTED. YOU HAVE TO BE MADE A MEMBER TO CHAT THERE SO JUST EMAIL ME fibrochick@inbox.comOK

HUGZ TRISH

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01/06/2008 06:29
hopefulwishful
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Thank you spruce the pain gets bad. I have had a major flae since Christmas it got better then wham in my leg and knee wheww

must to have been sugar I ate Christmas.Welcome saved by Grace aren't we all. If the DR was in that much pain it would be different

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01/06/2008 06:41
hopefulwishful
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My son is a Baptist preacher. You people are wonderful you never say anything about my typos or missplelling
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