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12/09/2008 09:14 AM

i feel very lucky after reading here

newgoal300
Posts: 19
Member

i wanted to say how lucky i feel compared to some of your experiences here. after years of not knowing what was wrong w/ me that i was in so much pain all the time, some days and weeks sometimes months i'd be in so much pain i was unable to get out of bed, but my saint of a wife would dress me, sometimes almost carry me to the car and take me to my family dr where i'd get pain shots and corticol steroids and sent home w/ no understanding about what was happening. after years of this and numerous visits to specialists that always cooked up some cooky diagnosis, my family dr. of all people said "i think you have fibro" God what a Godsend that was, i was lucky enough to be sent to a fibro specialist just a few blocks away from my family dr. for a official diagnosis. he went through his exam and said without a doubt i was suffering from fibro. so back to my family dr. with the paper work and thank God she's so understanding, many days she'll see me w/ no appointment and work me in to give me pain shots and at leasdt give me some relief. i'm currently taking lyrica 150mgx3 a day, along w/ 4 7.5mg percocet a day. that's right i actually have a dr. that will prescribe me 120 7.5mg percs a month. after reading here all the struggles some go through to get treatment i realize how lucky and blessed i truely am. God bless my wife for putting up w/ my illness and taking car of my 13month old son. and God bless my dr. for being opened minded and willing to treat me properly.....
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12/09/2008 09:18 AM
Iknowpain
Iknowpain  
Posts: 1841
Senior Member

God bless you for finding the positive in a miserable situation.

12/09/2008 10:10 AM
thomasann
thomasann  
Posts: 681
Member

Newgoal,

You have the right outlook. ! Stay positive.


12/09/2008 11:02 AM
newgoal300
Posts: 19
Member

you can always see things in different ways, glass half full or half empty, but reading here before joining opened my eyes to let me understand, one that i'm not alone w/ this disease and also how fortunate i've been so far. other than the 4-5 that i suffered and didn't know what was wrong w/ me. and was scared to find out. my first episode as my wife would call them, i was alone and woke up almost paralized w/ pain to a degree i'd have never felt prior. i was sure i'd had a stroke, because i was in bad, bad shape. but being in my early 20's and bull headed and money hungry at the time, i tried to go about getting ready for work, and i also didn't have health insurance at the time, so a hospital visit was out of the question. i remember sitting there in tears getting dressed because even the clothes against my skin were painfull. i somehow drove to work, i look back and now realize i could have killed some one that day including myself. ohhh to be young again!!!! being in sales i was useless that day, i sat in my office w/ a grimace on my face in no way able to do my job effectively. being in such a cut throat business i was afraid not to show up, or go home early. luckily now i have good health coverage and can be treated by a incredible family dr. that's compassionate and can think outside the box if you reason w/ her, and she'll fight insurance companies to get you the treatment she recommends. my insurance turned down a couple of medication she prescribed and she got them to ok both. and specialist visit's are always ok'd. and God my poor wife, the constant caretaking of me, my son and herself along w/ two dogs. she never gets a brake and she works full time also. what a absolute saint. the things she's done for me can not be paid back. numerous times she's dressed me because i was unable to even move, lifting me from a chair so i could get onto my feet, and her being 5 foot nothing and me being 5'8 230lbs, it's no easy task. carrying me to the car and into the dr's running for prescription and bringing them to me at work if needed. i've got the best one out there guys. i feel very guilty about everything she does for me and my family, being the man of the house i feel i should be responsible for more but feeling awfull 90% of the time grinds on you. my wife's sister is disabled from a car wreck and my mother in law is her 24/7 caretaker, and that's always been something my wife never understood how her mother did all she does, and here i am putting her in that same situation w/ me many days, weeks, it's been months lately. but she's a very special person who at least understands the best she can what i go through on a day to day basis, and does what ever she can to make me comfortable. so in many, many ways i'm blessed in my current situation, i know that sounds crazy w/ the pain i'm in but i'm better off than most people stricken w/ fibro.

the worst thing i go through is not being as active as i'd like w/ my 13mnth old son, last night i couldn't even let him crawl on me or play much because of the intense pain in my legs and feet. and there's days i can't even pick him up and hold him because i'm just physically unable. so if there's anything i could change that would be number one.


12/09/2008 11:13 AM
Janilee

Welcome to our fibro family newgoal. I'm glad you found us. Please feel free to post anytime or to any discussion. Everyone here knows what you are going thru in one way or another. My fibro isn't that bad although I had a CT Scan this morning and I couldn't lower my arms after it was done and once I got them down, my leg wouldn't move. I just let the techs help me cause that's what they get paid for.

I'm glad to hear that you have such an understanding wife. She must be a godsend to you.

Give her a hug and an attaboy pat on the back for me.


12/09/2008 12:23 PM
emma1980
emma1980  
Posts: 691
Senior Member

Hey newgoal,

What a wonderful positive attitude you have, its so refreshing (no offence everyone). Thankfully my fibro doesnt affect my whole body just my legs & lower back, im having a flare at the moment which is driving me mad but 'oh well, tomorrows another day' Smile Im not always this positive, reading your post must have had an effect on me!!! Laughing I agree with Jan, definitly give you wife a hug & an attaboy pat on the back Smile


12/09/2008 01:44 PM
fluffyluggage
fluffyluggage  
Posts: 4722
VIP Member
I'm an Advocate

I agree! Great attitude. It's hard sometimes to get to that point, but when you do, OMG, it feels so good. And because this is invisible, it can be difficult to share with others. You definitely should hug your wife as much as possible and thank her for helping you! Smile

I also have Lyme disease and CFS. It's so hard for me to communicate with others what I'm feeling, so I've taken to kinda keeping it in. To be honest, these support groups have helped turn my attitude around and to help save my life, so not only do I have to thank my hubby for helping do so much around the house, which thank Goddess, he so totally does, but I have to thank Roy and MDJ for being here and helping me see that so many other people are in the same boat as me, AND they help me keep my own positive attitude. I'm so thrilled to see so many other people with that same attitude! You go, dude!! Smile


12/09/2008 01:48 PM
newgoal300
Posts: 19
Member

in life we can't decide what cards we're dealt just like in vegas, the house has the advantage, so we need to play the cards we're dealt. a close friend of mine once told me to organize your lumps. is it a lump in your oatmeal, a lump in your throat, or a lump in your breast. none of us fibro people have a lump in our breast, meaning it will not kill us. so we have to deal w/ the lumps in our oatmeal and throats the best we know how. the last place i worked was next to a grocery store and whenever i was feeling down or felt i just couldn't handle the pain anymore i'd see a woman and her kids headed to the grocery store, the woman would drive by in her wheelchair steering w/ her chin, you see she didn't have arms or legs, and her daughter would be hanging on the back riding to the grocery store. i would always think what would it be like in her shoes. i think i have it bad bull####, i can deal w/ this pain if she's able to deal w/ that type of struggle...she was my silent inspiration

12/09/2008 04:41 PM
Auntie3285
Auntie3285  
Posts: 9182
VIP Member
I'm an Advocate

HI newgoal,

Welcome to our group ...we are happy to have you with us.

Please come by often !!!!


12/09/2008 06:00 PM
Tabby
Tabby  
Posts: 432
Member

welcome to the group newgoal. Glad you found us! Sounds like we are on the same meds! I also take 150 mg of Lyrica 3x per day and 4 10/650 percs per day, and I too have a wonderful PCP!! I just love her! Smile
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