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"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....

thanks MDJunction
" (cinderella)
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12/03/2008 09:52
Sistrozzie
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I'm not badmouthing your husband, sweetie. It just hit a sore spot with me at that moment. I have issues with my son about fibro so we just don't talk about it. But like Starr and everyone else said, we are hear to listen, to support and to give you the advice we have received ourselves. you are not alone in this and you are not crazy! You and your husband have every right to be frustrated. Did you know that this disease has been around since the early 1800's? It has just had different names. It's time for someone to find a cure and now that we are being recognized, I think it will happen soon. Maybe.
PatOsborn
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12/03/2008 10:10
BellasMomma
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Hello! And welcome! I'm new to this group too, but was diagnosed with FMS almost 8yrs ago. I completely understand your frustration, exhaustion, pain, and feeling like you're crazy! I was still working in an office when originally diagnosed, and at the time was training for a marathon.......and suddenly couldn't barely get out of bed, much less run anymore! My family, friends, co-workers, and I had no idea what was going on, and a lot of people thought I was just lazy & depressed. Needless to say, a lot has changed in the past 8yrs.......and I know people are here to help.

I'm one of the lucky people who has a husband who understands to the best of his ability, and in essence picks up my slack. I'm glad your husband is trying to understand as well!!!

Hope you have a good day!

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12/03/2008 17:59
Janilee
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It took awhile but my hubby and his family saw me in full blown fibro last Easter. I had spent the night before making stuff for the annual Easter get together. I hurt so bad the next day I couldn't hold onto the steering wheel. Anyhow. They all saw me at my worst and they all understand what I'm going thru. I had a remission right after that and I was in heaven with just brief flares from then until yesterday. Seems my fibro don't like snow.

Plus I've been missing my naps in the afternoons too. I'm going to keep track this time of how long my flares last. Right now I know my hands and feet is the arthritis flaring. My shoulders are very painful to touch now and my right arm just doesn't want to move at all. Wish those SSDI people could see me now. LOL

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!

Popular posts by Janilee
    Tomorrow....
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12/03/2008 18:29
Cori
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Hello bchazarr I am so happy that you found us! This group is wonderful and very supportive. You are not alone and not crazy! Some of us get a little worked up from time to time but I don't think we are fully crazy A question I have for you is are you on any medications? If you are and they are not working please talk to your doc? Also what about meds for depression? I am on Cymbalta and I went from crying and "losing it" just about every night to well... I only get frusterated and sad every once in awhile now. And it is not to the extreme that it was before. I really think that the Cymbalta works wonders for me. But just because it works for me doesn't mean that it will work for you but it might be something that you could talk to your doc about. Also some people in the group find help in talking to a physcologist, I am considering this myself since I am having a hard time letting go of the old me and get into fits of sadness. Anywhoo just a few suggestions for you and again welcome! We are so happy for the newest addition to our Fibro Family.


Sometimes it's hard to walk, talk, or even know what tomorrow brings. But as long as I have a smile on my face I can give a little bit of sunshine!
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12/03/2008 19:17
bchazarr
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Hi Cori, thanks for you message. Yes, I am on Lyrica, Soma, Relafin and Norco (as needed) (all for Fibro) and I have been on Celexa and Well Butrin for about 2 years for depression. My Rheumatologist is going to put me on Cymbalta next week. He changed some of my meds up last time I was in and didn't want to change too many things at once, sooo I am patiently waiting for the Cymbalta. I am really hoping it works for me. Since I am so newly diagnosed they are still trying to get all of my meds right to decrease my pain.
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12/03/2008 19:20
bchazarr
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Thank you....my husband also understands to the best of his ability and picks up my slack as well, we are lucky in that matter, can I ask what is FMS?
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12/03/2008 19:23
bchazarr
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oh no, i completely understand, one of my sisters is the same way. she simply thinks its all in my head and i am a hypo. she has no clue...so i just stopped trying to explain myself to her. i didn't think you were putting my husband down at all, i just didn't want anyone to get a bad impression of him because he is awesome and tries his best to understand and help pick up my slack...but you know no one understands unless they are going through it...plane and simple.
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12/03/2008 19:27
bchazarr
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I have the same problem..well almost. my problem for about the last 3 weeks is my right foot...both shoulders, elbows, hip and butt. i know thats alot...my tailbone gives me the worst pain. i have had 3 shots in my back for it and it still hurts just as bad. my dr also told me last time i probably have bursitis (not sure if i spelt that right) in my hip and leg. my leg will just start burning and hurting so bad if i am on my feet too long and get kind of numb. and this cold weather is not helping me either!!!!
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